No-one in a medical team can explain MS from the perspective of the person with MS. Sue can and does, with personal candour and incredible humour.
The initial diagnosis was hard to accept. As Sue puts it, "Once I ran out of things to blame, the shock really took over. My husband, bless him, has a great ability to make people laugh. When I was with him, it wasn't too bad. But when I was alone, the pain of feeling hard done by and victimised really hurt. Like a physical thump in the guts and literally an ache in the heart. And really, even many, many years on, there are still times when I seek out company, so I can't dwell on how hurt I feel."
Sue handles a difficult subject sensitively. There is a large body of information in this book, which will be useful to everyone affected by MS, whatever their role. Medical staff will find it useful to gain the perspective of one of their "users" (as Sue describes herself).
Sue's sister was diagnosed with MS in 1989, four years after Sue's own diagnosis, and died in 2001. It was only then that Sue realised that MS could be fatal. It was the trigger that inspired the writing of this book.
Told in the first person by the author - with a dry sense of humour adn touching intimacy this is an invaluable book for anyone who is either a victim or carer for someone with this terrible condition as through listening to the authors account they will gain insight and understanding into the lives of those with MS and what it means .