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The Sunflower Conversations

The Sunflower Conversations

De: Hidden Disabilities Sunflower
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Welcome to the Sunflower Conversations, the podcast where we explore the experiences of disabled people with non-visible disabilities through the lens of the Hidden Disabilities Sunflower.

This is a space to hear authentic stories from disabled people navigating life with non-visible disabilities such as chronic illness, mental health conditions, neurodivergence, and more. While most episodes focus on lived experience, we also feature occasional insights from experts in healthcare, accessibility, and inclusion.

Whether you or someone you care about wears the Sunflower, our conversations aim to raise awareness, build understanding, and help create a more inclusive and compassionate world.

Empowering voices. Raising awareness. Challenging assumptions - one conversation at a time.

© 2026 The Sunflower Conversations
Ciencias Sociales Crianza y Familias Higiene y Vida Saludable Psicología Psicología y Salud Mental Relaciones
Episodios
  • Palindromic Rheumatism, Comorbidities and Neurodivergence with Danielle Cudjoe Michalksi
    Feb 1 2026

    Danielle is neurodivergent and lives with palindromic rheumatism, undifferentiated connective tissue disorder, endometriosis, and adenomyosis.

    We hear how her conditions intersect and why comorbidities complicate care. Danielle explains fascia and its effects on her body and organs. She also clarifies what palindromic rheumatism is: during flare-ups, pain moves around the body in episodes lasting hours or months, and a defining feature is the absence of joint damage, which often delays diagnosis.

    Danielle's mental health has also been affected, especially after serious problems like blood clots and lung infection.

    The conversation includes practical tools, guidance on workplace flexibility, and highlights the supportive power of the Sunflower community.

    For support:

    • Arthritis Ireland
    • Arthritis Action – UK
    • Arthritis Society Canada
    • Arthritis Foundation - USA



    If you are concerned about any of the subjects discussed in the podcast, please follow up and seek support from your healthcare practitioner.


    Hosted by Chantal Boyle, Hidden Disabilities Sunflower.

    If you enjoyed this podcast, please leave a rating and review.

    Find out more about the Sunflower by visiting the website hdsunflower.com

    Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website





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    43 m
  • POTS and ME/CFS with James - Australia and New Zealand
    Dec 1 2025

    In this episode, Flic Manning chats with sunflower advocate, James Dunn on sudden onset of Postural Orthostatic Tachycardia Syndrome (POTS) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), the long road to diagnosis, and how he rebuilt identity and purpose after stepping away from a legal career.


    • Energy budgeting and daily structure
    • Identity loss after leaving work and values reframing
    • Navigating public spaces with a hidden disability
    • Travel barriers, queues and access to seating
    • Workplace culture shift from proof to trust
    • Simple adjustments that help everyone

    Visit our website, Facebook, or Instagram for more resources.

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    22 m
  • FND with Simone Round
    Nov 30 2025

    Simone Round shares how a hand tremor evolved into a complex FND diagnosis, now consisting of tics, chronic migraines, non‑epileptic seizures, and the reality of becoming an ambulant wheelchair user. In this episode, Simone talks us through her journey from an active lifestyle and career, working over 70 hours a week, to the steps she now takes to support her mental health and wellbeing. She explains how she now takes pleasure in a much slower pace of life, mindfulness and connection with people who also live with chronic illness.


    Simone also describes the differences between carers and PAs and how her independence feels restored since having the aid of one.

    If you are concerned about any of the subjects discussed in the podcast, please follow up and seek support from your healthcare practitioner.

    For support:

    • Visit your Healthcare practitioner
    • FND Hope International
    • FND Hope UK
    • FND Action UK
    • FND Ireland
    • FND Matters Northern Ireland
    • FND Hope Canada & USA Facebook support page


    Hosted by Chantal Boyle, Hidden Disabilities Sunflower.

    If you enjoyed this podcast, please leave a rating and review.

    Find out more about the Sunflower by visiting the website hdsunflower.com

    Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website








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    47 m
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