About IBD By cover art

About IBD

By: Amber J Tresca
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  • Summary

  • Crohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
    ©2023 Mal and Tal Enterprises; ©2023 Cooney Studio
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Episodes
  • The Harms of Copay Accumulators

    The Harms of Copay Accumulators
    Apr 30 2024
    Did you notice that suddenly one year you started paying more for your healthcare? Crohn's disease and ulcerative colitis are sometimes treated with medications that are expensive. Manufacturers create programs to help patients afford these drugs. In the beginning, these payments from assistance programs counted toward a yearly health insurance deductible. Then, suddenly: they stopped counting. Overnight, patients found themselves responsible for more costs, while insurance carriers received what amounts to double payments. A 2023 court ruling says that this practice should be reversed again, but it's not happening. Amber McCown tells her story of how a copay accumulator program took her by surprise and why she's partnering with the HIV+Hepatitis Policy Institute and working with legislators and agencies to advocate for change. Aimed Alliance. How a Loophole in the Patient Protection and Affordable Care Act Can Impact Access To Your Necessary Treatments: https://aimedalliance.org/wp-content/uploads/2022/07/Aimed-Alliance-Non-EHB-Fact-Sheet-FINAL-1.pdf Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2021; Notice Requirement for Non-Federal Governmental Plans: https://www.federalregister.gov/documents/2020/05/14/2020-10045/patient-protection-and-affordable-care-act-hhs-notice-of-benefit-and-payment-parameters-for-2021 Copay Accumulator Programs: https://cga.ct.gov/2024/rpt/pdf/2024-R-0034.pdf?t=1713267305928 State Insurance Departments: https://content.naic.org/state-insurance-departments From the HIV+Hepatitis Policy Institute: In 2022, the HIV+Hepatitis Policy Institute, two diabetes groups, and individual chronic disease patients filed a lawsuit in the U.S. District Court for the District of Columbia challenging the federal rule that allowed "copay accumulators." Insurers use "copay accumulator" programs to avoid counting the value of copay coupons that patients get from drug manufacturers toward a patient's deductible and out-of-pocket costs -- effectively double charging the patients. In 2023, the court ruled in favor of the plaintiffs and struck down the federal rule that had allowed health insurers to avoid counting copay assistance from drug manufacturers toward a patient's out-of-pocket cost. But the government isn't enforcing the court's ruling, so patients are still subject to copay accumulator schemes. It's bad enough that the federal government is effectively ignoring a court ruling. Far worse is the fact that patients are still being unjustly subjected to copay accumulators that prevent them from being able to afford their prescription drugs as a result. Patients need the federal government to issue a new rule ASAP. Find Amber J Tresca at: AboutIBD.com: About IBD Verywell: Verywell Health Facebook: @aboutIBD Twitter: @aboutIBD Pinterest: @aboutibd Instagram: @about_IBD Find Mac Cooney (mix, sound design, and theme music) at: Facebook: @maccooneycomposer Instagram: @maccooneycomposer Web: Cooney Studio Theme music, IBD Dance Party, is from ©Cooney Studio. Episode transcript and more information at: https://bit.ly/AIBD151 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    35 mins
  • IBD and Somatic Therapy With Abri Bernstein

    IBD and Somatic Therapy With Abri Bernstein
    Apr 16 2024

    People with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and how somatic psychotherapy helped her cope with living with the disease. Abri explains somatic psychotherapy as a holistic approach to healing that focuses on the body and nervous system regulation. She describes various modalities, such as somatic experiencing, sensorimotor psychotherapy, and acceptance and commitment therapy (ACT), emphasizing the importance of addressing trauma stored in the body for healing to occur.

    Resources and information discussed in this episode:

    • What Is Somatic Therapy?
    • Trauma and the Nervous System: A Polyvagal Perspective
    • Polyvagal Institute
    • The Trauma Foundation
    • Bonaz B, Sinniger V, Pellissier S. Therapeutic Potential of Vagus Nerve Stimulation for Inflammatory Bowel Diseases. Front Neurosci. 2021;15:650971. Published 2021 Mar 22. doi:10.3389/fnins.2021.650971.
    • Polyvagal Theory: A Science of Safety

    Find Abri Bernstein at:

    • Web: Healing With Abri
    • LinkedIn: Abri Berstein
    • Email: abribern@gmail.com

    Find Amber J Tresca at:

    • AboutIBD.com: About IBD
    • Verywell: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD

    Find Mac Cooney (mix, sound design, and theme music) at:

    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.

    Episode transcript and more information at: https://bit.ly/AIBD150

    These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    53 mins
  • Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley

    Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley
    Mar 26 2024
    Diagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley serves as an inspiration, demonstrating resilience, determination, and a commitment to making a difference for others. Find Dan "Dry Dock" Shockley at: Twitter: @Dryshockley Instagram: @DanDryDock LinkedIn: @Dan Dry Dock Shockley Find Amber J Tresca at:
    • AboutIBD.com: About IBD
    • Verywell: Verywell Health
    • Facebook: @aboutIBD
    • Twitter: @aboutIBD
    • Pinterest: @aboutibd
    • Instagram: @about_IBD
    Find Mac Cooney (mix, sound design, and theme music) at:
    • Facebook: @maccooneycomposer
    • Instagram: @maccooneycomposer
    • Web: Cooney Studio
    • Theme music, IBD Dance Party, is from ©Cooney Studio.
    Episode transcript and more information at: https://bit.ly/AIBD149 These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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    33 mins
Physical Illness & Disease Hygiene & Healthy Living
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