ALS Saved My Life...Until It Didn't
People who bought this also bought...
-
A Mighty Boy
- A Mother's Journey Through Grief
- By: Sarah Pullen
- Narrated by: Antonia Beamish
- Length: 10 hrs and 24 mins
- Unabridged
-
Overall5 out of 5 stars 2
-
Performance5 out of 5 stars 2
-
Story5 out of 5 stars 2
What would you do if a stranger told you your son was going to die? Silas is 10 years old when the headaches start. When the diagnosis arrives, his parents are told they have until Christmas...maybe. And so begins Sarah Pullen's battle to save her son, against doubting doctors and insurmountable odds. This story about love and loss traces her family's journey from that first day at the hospital, battling a tumour they named Bob, through Silas' death and beyond.
-
5 out of 5 stars
-
This is 100% reality
- By Leah on 09-12-17
-
Still Life: A Memoir
- By: Jeff Sutherland
- Narrated by: Nikola Muckajev
- Length: 5 hrs and 44 mins
- Unabridged
-
Overall0 out of 5 stars 0
-
Performance0 out of 5 stars 0
-
Story0 out of 5 stars 0
Diagnosed with ALS (Lou Gehrig's disease), Jeff Sutherland lost his abilities to walk and speak within two years and, confined to a wheelchair, was forced to retire from his life's work as a physician at 43. Not long after, he was locked in his own inanimate body, unable to eat, drink, or breathe without assistance. His meals were delivered through a feeding tube, and a ventilator controlled his lungs through an opening in his throat. The only parts of his body he was able to move voluntarily were his eyes.
-
There Is a Reaper
- Losing a Child to Cancer
- By: Michael Lynes
- Narrated by: Gerald Zimmerman
- Length: 11 hrs and 26 mins
- Unabridged
-
Overall4 out of 5 stars 1
-
Performance4 out of 5 stars 1
-
Story5 out of 5 stars 1
Five-year-old Christopher Aaron has always been a whirlwind of heroic action, leading his brothers into all sorts of youthful mischief. A mysterious illness suddenly plunges him and his family into a frightening nightmare of hospitals and doctors and extreme therapies far from his small-town home. Can his doctors diagnose his strange disease? How will he and his family adapt to a bizarre new world they have been thrust into?
-
4 out of 5 stars
-
Cancer
- By ZOE R on 09-13-17
-
Unshattered
- Choosing a Beautiful Life After Unspeakable Tragedy
- By: Carol J. Decker, Stacey L. Nash
- Narrated by: Stacey L. Nash
- Length: 5 hrs
- Unabridged
-
Overall5 out of 5 stars 49
-
Performance5 out of 5 stars 38
-
Story5 out of 5 stars 39
On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.
-
5 out of 5 stars
-
inspiring !
- By Cindy Tortorici on 12-03-18
-
But My Brain Had Other Ideas
- A Memoir of Recovery from Brain Injury
- By: Deb Brandon
- Narrated by: Helen Lloyd
- Length: 9 hrs
- Unabridged
-
Overall5 out of 5 stars 4
-
Performance4.5 out of 5 stars 2
-
Story4.5 out of 5 stars 2
When Deb Brandon discovered that cavernous angiomas - tangles of malformed blood vessels in her brain - were behind the terrifying symptoms she'd been experiencing, she underwent one brain surgery. And then another. And then another. And that was just the beginning. The book also includes an introduction by Connie Lee, founder and president of the Angioma Alliance. Unlike other memoirs that focus on injury crisis and acute recovery, But My Brain Had Other Ideas follows Brandon’s story all the way through to long-term recovery, revealing without sugarcoating or sentimentality Brandon’s struggles - and ultimate triumph.
-
5 out of 5 stars
-
Fascinating!
- By LA Meredith on 01-08-19
-
Struck
- A Husband’s Memoir of Trauma and Triumph
- By: Douglas Segal
- Narrated by: Douglas Segal
- Length: 7 hrs and 53 mins
- Unabridged
-
Overall5 out of 5 stars 8
-
Performance5 out of 5 stars 8
-
Story5 out of 5 stars 8
One of life's biggest cliches becomes a horrific reality when Douglas Segal's wife and young daughter are hit head-on by a Los Angeles city bus. Miraculously, his daughter was unharmed, but his wife faced a series of life-threatening injuries. Following the accident, Segal began sending regular email updates to their circle of friends and family - a list that continued to grow as others heard of the event. Segal's compelling memoir is an intimate and honest chronicle built around these email updates and is a profound example of how people show up for one another in times of crisis.
-
5 out of 5 stars
-
Heart Piercing
- By Jwoodward H on 11-13-19
-
A Mighty Boy
- A Mother's Journey Through Grief
- By: Sarah Pullen
- Narrated by: Antonia Beamish
- Length: 10 hrs and 24 mins
- Unabridged
-
Overall5 out of 5 stars 2
-
Performance5 out of 5 stars 2
-
Story5 out of 5 stars 2
What would you do if a stranger told you your son was going to die? Silas is 10 years old when the headaches start. When the diagnosis arrives, his parents are told they have until Christmas...maybe. And so begins Sarah Pullen's battle to save her son, against doubting doctors and insurmountable odds. This story about love and loss traces her family's journey from that first day at the hospital, battling a tumour they named Bob, through Silas' death and beyond.
-
5 out of 5 stars
-
This is 100% reality
- By Leah on 09-12-17
-
Still Life: A Memoir
- By: Jeff Sutherland
- Narrated by: Nikola Muckajev
- Length: 5 hrs and 44 mins
- Unabridged
-
Overall0 out of 5 stars 0
-
Performance0 out of 5 stars 0
-
Story0 out of 5 stars 0
Diagnosed with ALS (Lou Gehrig's disease), Jeff Sutherland lost his abilities to walk and speak within two years and, confined to a wheelchair, was forced to retire from his life's work as a physician at 43. Not long after, he was locked in his own inanimate body, unable to eat, drink, or breathe without assistance. His meals were delivered through a feeding tube, and a ventilator controlled his lungs through an opening in his throat. The only parts of his body he was able to move voluntarily were his eyes.
-
There Is a Reaper
- Losing a Child to Cancer
- By: Michael Lynes
- Narrated by: Gerald Zimmerman
- Length: 11 hrs and 26 mins
- Unabridged
-
Overall4 out of 5 stars 1
-
Performance4 out of 5 stars 1
-
Story5 out of 5 stars 1
Five-year-old Christopher Aaron has always been a whirlwind of heroic action, leading his brothers into all sorts of youthful mischief. A mysterious illness suddenly plunges him and his family into a frightening nightmare of hospitals and doctors and extreme therapies far from his small-town home. Can his doctors diagnose his strange disease? How will he and his family adapt to a bizarre new world they have been thrust into?
-
4 out of 5 stars
-
Cancer
- By ZOE R on 09-13-17
-
Unshattered
- Choosing a Beautiful Life After Unspeakable Tragedy
- By: Carol J. Decker, Stacey L. Nash
- Narrated by: Stacey L. Nash
- Length: 5 hrs
- Unabridged
-
Overall5 out of 5 stars 49
-
Performance5 out of 5 stars 38
-
Story5 out of 5 stars 39
On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.
-
5 out of 5 stars
-
inspiring !
- By Cindy Tortorici on 12-03-18
-
But My Brain Had Other Ideas
- A Memoir of Recovery from Brain Injury
- By: Deb Brandon
- Narrated by: Helen Lloyd
- Length: 9 hrs
- Unabridged
-
Overall5 out of 5 stars 4
-
Performance4.5 out of 5 stars 2
-
Story4.5 out of 5 stars 2
When Deb Brandon discovered that cavernous angiomas - tangles of malformed blood vessels in her brain - were behind the terrifying symptoms she'd been experiencing, she underwent one brain surgery. And then another. And then another. And that was just the beginning. The book also includes an introduction by Connie Lee, founder and president of the Angioma Alliance. Unlike other memoirs that focus on injury crisis and acute recovery, But My Brain Had Other Ideas follows Brandon’s story all the way through to long-term recovery, revealing without sugarcoating or sentimentality Brandon’s struggles - and ultimate triumph.
-
5 out of 5 stars
-
Fascinating!
- By LA Meredith on 01-08-19
-
Struck
- A Husband’s Memoir of Trauma and Triumph
- By: Douglas Segal
- Narrated by: Douglas Segal
- Length: 7 hrs and 53 mins
- Unabridged
-
Overall5 out of 5 stars 8
-
Performance5 out of 5 stars 8
-
Story5 out of 5 stars 8
One of life's biggest cliches becomes a horrific reality when Douglas Segal's wife and young daughter are hit head-on by a Los Angeles city bus. Miraculously, his daughter was unharmed, but his wife faced a series of life-threatening injuries. Following the accident, Segal began sending regular email updates to their circle of friends and family - a list that continued to grow as others heard of the event. Segal's compelling memoir is an intimate and honest chronicle built around these email updates and is a profound example of how people show up for one another in times of crisis.
-
5 out of 5 stars
-
Heart Piercing
- By Jwoodward H on 11-13-19
-
Until I Say Good-Bye
- My Year of Living with Joy
- By: Susan Spencer-Wendel, Bret Witter
- Narrated by: Karen White
- Length: 9 hrs and 15 mins
- Unabridged
-
Overall4.5 out of 5 stars 114
-
Performance4.5 out of 5 stars 105
-
Story4.5 out of 5 stars 101
Susan Spencer-Wendel's Until I Say Good-Bye: My Year of Living with Joy is a moving and inspirational memoir by a woman who makes the most of her final days after discovering she has amyotrophic lateral sclerosis (ALS). After Spencer-Wendel, a celebrated journalist at the Palm Beach Post, learns of her diagnosis of ALS, more commonly known as Lou Gehrig's disease, she embarks on several adventures, traveling to several countries and sharing special experiences with loved ones.
-
3 out of 5 stars
-
5-Star End of Life; 3-Star Book
- By Gillian on 01-26-15
-
A Few Minor Adjustments: A Memoir of Healing
- By: Cherie Kephart
- Narrated by: Lillie Ricciardi
- Length: 7 hrs and 6 mins
- Unabridged
-
Overall4 out of 5 stars 8
-
Performance4 out of 5 stars 6
-
Story3.5 out of 5 stars 6
Told with brutal honesty, astonishing wit, and a haunting vulnerability, A Few Minor Adjustments is an unforgettable memoir that captures the horrors and triumphs of one woman’s harrowing quest to find life-saving answers. In the end, she finds much more than a diagnosis.
-
5 out of 5 stars
-
An amazing and unpredictable journey
- By Brian on 02-05-19
-
Together
- A Memoir of a Marriage and a Medical Mishap
- By: Judy Goldman
- Narrated by: Kathe Mazur
- Length: 6 hrs and 16 mins
- Unabridged
-
Overall4 out of 5 stars 16
-
Performance4.5 out of 5 stars 14
-
Story4.5 out of 5 stars 14
When Judy Goldman’s husband of almost four decades has a routine spinal injection to alleviate back pain, he is instantly paralyzed from the waist down - a phenomenon no doctor can explain or undo. She’s forced to take over, navigating the byzantine medical world they suddenly find themselves in. Her husband is forced to give in. This is the starting point for Together, which looks at the changes every couple faces - the slow, ordinary ones brought about by time and the sudden, dramatic ones that take us by surprise.
-
5 out of 5 stars
-
Completely involving
- By Jane Smith on 05-23-19
-
Prognosis
- A Memoir of My Brain
- By: Sarah Vallance
- Narrated by: Cat Gould
- Length: 9 hrs and 8 mins
- Unabridged
-
Overall4 out of 5 stars 122
-
Performance4.5 out of 5 stars 103
-
Story4 out of 5 stars 104
When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.
-
5 out of 5 stars
-
Fascinating and inspiring
- By Ardent Reader on 08-20-19
-
ALS: A Respiratory Perspective
- By: Kipling A. Jackson
- Narrated by: Scott R. Smith
- Length: 1 hr and 17 mins
- Unabridged
-
Overall3 out of 5 stars 1
-
Performance3 out of 5 stars 1
-
Story2 out of 5 stars 1
Kipling A. Jackson, diagnosed five years ago, refuses to let ALS become a death sentence. Jackson takes an in-depth look at the respiratory side of the disease. His wry sense of humor produces a hilarious narrative that will leave the reader feeling inspired. As Jackson shares his personal journey, he discusses why he chose to extend his life with mechanical ventilation and the tracheostomy. His story is an excellent educational tool for everyone who comes in contact with ALS.
-
Beautiful Affliction
- A Memoir
- By: Lene Fogelberg
- Narrated by: Henrietta Meire
- Length: 9 hrs and 27 mins
- Unabridged
-
Overall5 out of 5 stars 1
-
Performance5 out of 5 stars 1
-
Story5 out of 5 stars 1
Lene Fogelberg is dying - she is sure of it - but no doctor in Sweden, her home country, believes her. Love stories enfold her, with her husband, her two precious daughters, her enchanting surroundings, but the question she has carried in her heart since childhood - will I die young? - is threatening all she holds dear, even her sanity. When her young family moves to the US, an answer, a diagnosis, is finally found: She is in the last stages of a fatal congenital heart disease. But is it too late?
Publisher's Summary
Most people know life will not necessarily go as they planned. But what do we do when nothing goes as we had hoped? How do we cope with unpredictable changes in body and spirit - changes that require constant shifting of our view of ourself, other people, and the world?
Jenni, diagnosed in 2009 with Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig’s Disease), has been forced to find answers to these questions every day. With the hope of helping others move forward after life-altering events, Jenni shares her story of life with ALS, outlining both the practical and existential changes needed to adapt and thrive. Embodying the idea that courage does not always roar, Jenni reveals the combination of self-reflection, radical acceptance, grit, and social support that have allowed her to remain true to herself while living her life to the fullest.
What members say
Average Customer Ratings
Overall
-
5 out of 5 stars
-
5 Stars4
-
4 Stars0
-
3 Stars0
-
2 Stars0
-
1 Stars0
Performance
-
5 out of 5 stars
-
5 Stars2
-
4 Stars0
-
3 Stars0
-
2 Stars0
-
1 Stars0
Story
-
5 out of 5 stars
-
5 Stars2
-
4 Stars0
-
3 Stars0
-
2 Stars0
-
1 Stars0