The Pituitary World News Podcast  By  cover art

The Pituitary World News Podcast

By: pituitaryworldnews
  • Summary

  • Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions. Each episode brings conversations with information and experiences from expert professionals and people living with these challenging disorders.
    Copyright 2024 All rights reserved.
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Episodes
  • S10E5: The FDA listens to acromegaly patients
    Apr 29 2024

    Today's podcast covers my conversation with Jill Sisco, president of the Acromegaly Community, about the recent meetings with the Food and Drug Administration (FDA), the US governmental entity responsible for approving new medications. Our conversation focuses on the original meeting held in 2021 and a recent listening session where the AC provided additional feedback to the FDA. These meetings help ensure the FDA considers patient's experiences, needs, and expectations as they provide drug development guidance to pharmaceutical companies. You can read the original report here.

    Jill also briefly mentioned during our chat the "Faces of Hope" initiative they undertook a few years ago. Here's a link to that photographic essay. Worth a look!

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    30 mins
  • S10E4: Amplifying knowledge of Cushing's; every day, every month, every year.
    Apr 8 2024

    On today's podcast and Cushing's awareness day and month, we bring you a few excerpts from our soon-to-be-released new book on Cushing's. The book's author and Pituitary World News cofounder, Dr. Lewis Blevins, reads from a few selected chapters to give insight into the book's content. We are delighted to present these excerpts to join the many organizations, patients, and healthcare professionals in recognizing Cushing's disease awareness month and day. The book is well underway, with over 37 chapters on the editor's and publisher's desk. The book's release date will be announced shortly. Stay tuned for more information about this exciting project from Pituitary World News. You can read more about the book in this article.

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    10 mins
  • S10E3: A remarkable acromegaly story of transformation.
    Feb 7 2024

    Today’s podcast is about our super athlete friend Risa August and her new book, “The Road Unpaved.” We first met Risa in 2019 when she came to the Pituitary World News/UCSF patient gathering. We chatted about her experience and and her plans to ride her bike from Canada to Mexico. We followed her herculean effort to ride 1845-plus miles to get from Canada to Mexico on the Pacific Coast Highway, which, as you can imagine, is no picnic for anyone, let alone if you are fighting acromegaly symptoms. It is downright amazing she did it at all. Now, she has written a book about her experience with acromegaly, the ride, and life. Learn more about Risa, her practice, her upcoming plans at Risa Unleashed, read her PWN articles search for Risa or Marisa here, or go to – www.risaaugust.com

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    25 mins

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Finally a Pituitary Podcast

Thank you for the great info and insights. It’s such a complicated and complex for those of us who suffer from Pituitary problems.

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