Mostrando títulos en Personas con Discapacidades

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents.

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

The Anti-Ableist Manifesto defines ableism as discrimination in favor of non-disabled people and helps listeners understand that ending discrimination begins with self-reflection. Tiffany Yu celebrates the power of stories and lived experiences to foster the proximity, intimacy, and humanity of disability identities that have far too often been “othered” and rendered invisible.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Can four words change a life? On a rainy autumn day, four words changed the life of a young cardiology nurse. Four little words hurled across a dimly lit exam room struck fear in a mother’s heart. “You are legally blind.” Anita’s journey through blindness began with the devastating diagnosis of retinitis pigmentosa, an untreatable, degenerative retinal disease. At the age of 33, she was forced to face not only vision loss, but also the loss of driving, her nursing career, and even her independence. Anita was convinced that life was over.

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

In Queen of Hearts: Born a Lemon, Nova tells on herself; candidly, unapologetically, and often hilariously. She takes you through the surgeries, the setbacks, the sarcastic remarks that got her through, and the signs that kept showing up to remind her that she was never as alone as she felt.

Inspirational, humorous, and thought provoking, Noah Galloway's Living with No Excuses sheds light on his upbringing in rural Alabama, his military experience, and the battle he faced to overcome losing two limbs during Operation Iraqi Freedom. From reliving the early days of life to his acceptance of his "new normal" after losing his arm and leg in combat, Noah reveals his ambition to succeed against all odds.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.

When Anna Gazmarian is diagnosed with bipolar disorder in 2011, she’s faced with a conundrum: while the diagnosis provides clarity about her manic and depressive episodes, she must confront the stigma that her evangelical community attaches to her condition. Over the course of ten years, we follow Anna on her journey to reframe her understanding of mental health to expand the limits of what her religious practice can offer. In Devout: A Memoir of Doubt, Anna shows that the pursuing our emotional health and our spiritual well-being is one single mission and, in both cases, an act of faith.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

At 30 years old Bryan Bishop’s life was right on track: as the sidekick on The Adam Carolla Show, his career was taking off and, newly engaged, his personal life was soaring to new heights. Then he was diagnosed with an inoperable brain tumor. Suddenly Bryan’s promising future was looking at a troubling schedule of radiation and chemotherapy. But having found refuge in comedy, "Bald Bryan" recounts his alternately heartbreaking and hysterical experience of cancer treatment and recovery.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

This is the very personal and frank account of A.W.J. Pilgrim’s battle with schizophrenia, in the context of his whole life story. He is a Londoner, dad and talented prolific artist painter and author. Learn how his illness progressed, how he struggled, his personal thoughts about it, detailed accounts of being sectioned, effects of medications, psychosis, hallucinations & delusions. The story not all sad, he has had some good luck too, and still has dreams. Learn how he has put his schizophrenia into remission.

What do you do when life takes away everything you’ve worked for, including your voice—the very tool that defines you? In When It All Falls Apart, Robert B. Haase shares a deeply moving account of his journey through devastating challenges, including a life-changing cancer diagnosis, the loss of relationships, and the unraveling of long-held dreams. Yet, in the face of unimaginable hardship, Haase uncovers something extraordinary: the power of resilience, the importance of connection, and the beauty of hope. With raw honesty and unexpected humor, Haase opens a window into his darkest ...

He grew up, he says, at "belt-buckle level" and stayed there until Kevan's beloved posse decided to leave his wheelchair at the Atlanta airport, board a plane for France, and have his friends carry him around Europe to accomplish their dream to see the world together! Kevan's beloved posse traveled to Paris, England, and Ireland, where, in the climax of their adventure, they scale 600 feet up to the 1,400-year-old monastic fortress of Skellig Michael.