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Unseen
- Narrated by: Jacinta Parsons
- Length: 6 hrs and 50 mins
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Publisher's Summary
Broadcaster Jacinta Parsons was in her 20s when she first began to feel unwell - the kind of unwell that didn’t go away. Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.
What’s most extraordinary about Jacinta’s story is how common it is. Nearly half of Australians live with a chronic illness, but most of these conditions are not obvious, often endured in secrecy and little understood. They are unseen.
With compelling candour, Jacinta trains a microscope on the unique challenges of living with an invisible condition. She lays bare the struggles with shame, loss of identity, the threat of mortality and the profoundly complex relationships between the chronically ill and their own bodies, as well as with those around them. It’s a story of trying to fix an unfixable illness, getting beaten down then clawing back up and how that experience can shape a life.
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What listeners say about Unseen
Average Customer RatingsReviews - Please select the tabs below to change the source of reviews.
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Overall5 out of 5 stars
-
Performance5 out of 5 stars
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Story5 out of 5 stars
- starsunderwater
- 04-27-22
Brings light to the unseen
As a nurse of 3 decades I have mostly seen the acute illnesses that land people in hospital. The invisible, chronic, undiagnosed, unnameable, relentless illnesses that I barely knew existed until I got sick after a virus are poorly researched, funded or diagnosed/understood. Post viral fatigue, CFS/ME, dysautonomia, POTS, illnesses that pause a life in it’s tracks whether it be childhood/ teenage or adult life, are much more common that other neurological conditions yet receive the least funding.
I sobbed reading this as all the dark unspoken and unseen moments I have experienced were given a voice.
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Jacqueline Rogers
- 11-18-20
Brutally honest, but beautifully written
A much read for anyone who lives with chronic illness and those who are in their lives.
-
Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- John Hughes
- 10-15-20
The most gorgeous book I have ever read
Jacinta for PM. The honesty and rawness. I could barely keep my eyes dry. Thankyou
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Overall5 out of 5 stars
-
Performance5 out of 5 stars
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Story5 out of 5 stars
- annie emery
- 10-05-20
Well worth the price of admission
I loved this book so much. Jacinta's story is so big and her sharing of it will be undoubtedly appreciated for all sufferers of invisible illness and those who care for them. Listening to her narration was like listening to a friend telling me about things over several hundred cups of tea.
I highly recommend.
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-
Story4.5 out of 5 stars 121
A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
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5 out of 5 stars
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Excellent book
- By LZ on 02-14-21
By: Tessa Miller
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Disability Visibility: First-Person Stories from the Twenty-First Century
- Unabridged Selections
- By: Alice Wong
- Narrated by: Alejandra Ospina, Alice Wong
- Length: 8 hrs and 1 min
- Unabridged
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Overall4.5 out of 5 stars 282
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Performance4.5 out of 5 stars 248
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Story4.5 out of 5 stars 247
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
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4 out of 5 stars
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Missing stories
- By Adrianna A. on 11-19-20
By: Alice Wong
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The Soul of Care
- The Moral Education of a Husband and a Doctor
- By: Arthur Kleinman
- Narrated by: Arthur Morey
- Length: 8 hrs and 55 mins
- Unabridged
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Overall4.5 out of 5 stars 34
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Performance5 out of 5 stars 32
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Story5 out of 5 stars 33
In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important.
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5 out of 5 stars
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The Agony and the Ecstasy of Caring for Humans
- By Elisa on 07-04-20
By: Arthur Kleinman
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Floating in the Deep End
- How Caregivers Can See Beyond Alzheimer's
- By: Patti Davis
- Narrated by: Christina Delaine
- Length: 8 hrs and 25 mins
- Unabridged
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Overall5 out of 5 stars 32
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Performance4.5 out of 5 stars 26
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Story4.5 out of 5 stars 26
From the challenges of navigating disorientation to the moments when guilt and resentments creep in, listeners are guided gently through slow-burning grief. Along the way, Davis shares how her own fractured family came together, and how her father revealed his true self - always kind, even when he couldn't recognize his own daughter. The result is an achingly beautiful work on the fragile human condition from a profoundly wise and empathetic writer.
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5 out of 5 stars
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Practical Advice For Care Givers
- By Charles From Sonoma on 10-03-21
By: Patti Davis
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Long Walk Out of the Woods
- A Physician's Story of Addiction, Depression, Hope, and Recovery
- By: Adam B. Hill
- Narrated by: Johnny Heller
- Length: 5 hrs and 28 mins
- Unabridged
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Overall4.5 out of 5 stars 62
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Performance4.5 out of 5 stars 54
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Story5 out of 5 stars 53
A pediatric oncologist and palliative care physician Dr. Adam B. Hill suffers stress and disillusionment with the culture of medicine. It led him to alcoholism, depression, and suicidal thoughts. Then, while in recovery, he loses a mentor to suicide, revealing the extent of the burnout epidemic in the medical field.
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5 out of 5 stars
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A Wonderful Surprise
- By Callie on 04-23-20
By: Adam B. Hill
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Ask Me About My Uterus
- By: Abby Norman
- Narrated by: Abby Norman
- Length: 10 hrs and 19 mins
- Unabridged
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Overall4.5 out of 5 stars 141
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Performance4.5 out of 5 stars 125
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Story4.5 out of 5 stars 126
In the fall of 2010, Abby Norman's strong dancer's body dropped 40 pounds, and gray hairs began to sprout from her temples. She was repeatedly hospitalized in excruciating pain, but the doctors insisted it was a urinary tract infection and sent her home with antibiotics.
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5 out of 5 stars
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A fantastic memoir and history of female pain
- By kateRb on 03-29-18
By: Abby Norman
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Canary in the Coal Mine
- A Forgotten Rural Community, a Hidden Epidemic, and a Lone Doctor Battling for the Life, Health, and Soul of the People
- By: Dr. William Cooke, Laura Ungar - contributor
- Narrated by: Tim Dixon
- Length: 10 hrs and 6 mins
- Unabridged
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Overall4.5 out of 5 stars 39
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Performance4.5 out of 5 stars 35
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Story4.5 out of 5 stars 35
When Dr. Will Cooke, an idealistic young physician just out of medical training, set up practice in the small rural community of Austin, Indiana, he had no idea that much of the town was being torn apart by poverty, addiction, and life-threatening illnesses. But he soon found himself at the crossroads of two unprecedented health-care disasters: a national opioid epidemic and the worst drug-fueled HIV outbreak ever seen in rural America. Confronted with Austin’s hidden secrets, Dr. Cooke decided he had to do something about them.
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2 out of 5 stars
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My home town is the subject of this book!
- By C Pru on 07-01-21
By: Dr. William Cooke, and others
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A Sky Full of Stars
- Learning to Surrender to God's Perfect Plans
- By: Meg Apperson, Lisa Leonard - foreword
- Narrated by: Emily Ellet
- Length: 6 hrs and 20 mins
- Unabridged
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Overall5 out of 5 stars 50
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Performance5 out of 5 stars 48
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Story5 out of 5 stars 48
Meg Apperson grew up having a relationship with Jesus, and she always trusted God. But it wasn't until her daughter Avery - a miracle in so many ways - was born with a litany of life-threatening birth defects that she began to fully understand what it means to trust Jesus with everything. In this heartbreakingly beautiful memoir, you'll learn how a mother fought for her child, her family, and even herself as she grappled with the weight of failure - of letting down everyone around her and feeling let down by God.
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5 out of 5 stars
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Honest and beautiful
- By Katie on 12-28-20
By: Meg Apperson, and others
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The Sleeping Beauties
- And Other Stories of Mystery Illness
- By: Suzanne O'Sullivan
- Narrated by: Suzanne O'Sullivan
- Length: 10 hrs and 12 mins
- Unabridged
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Overall4.5 out of 5 stars 40
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Performance4.5 out of 5 stars 31
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Story5 out of 5 stars 31
In Sweden, hundreds of refugee children fall into a state that resembles sleep for months or years at a time. In Le Roy, a town in upstate New York, teenage girls develop involuntary twitches and seizures that spread like a contagion. In the US Embassy in Cuba, employees experience headaches and memory loss after hearing strange noises during the night. These are only a few of the many suspected culture-bound psychosomatic syndromes - specific sets of symptoms that exist in a particular culture or environment - that affect people throughout the world.
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About a Girl
- A Mother’s Powerful Story of Raising Her Transgender Child
- By: Rebekah Robertson
- Narrated by: Rebekah Robertson
- Length: 10 hrs and 25 mins
- Unabridged
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Overall5 out of 5 stars 46
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Performance5 out of 5 stars 44
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Story5 out of 5 stars 44
In 2000, Rebekah Robertson gave birth to twin boys, George and Harry. But as they grew older, their preferences began to show, and by the age of three it was clear Georgie was drawn to anything that was pretty or had a skirt that could swirl. Before long Georgie began to insist that she was a girl and became distressed that she had to hide who she really was when she started school. Soon the bullying started, and she would come home in floods of tears, begging her mother to help her.
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5 out of 5 stars
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Loved it. Good for anyone with a young trans child
- By Kitty Kat on 10-23-19
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- By: Sallie Tisdale
- Narrated by: Gabra Zackman
- Length: 7 hrs and 11 mins
- Unabridged
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Overall4.5 out of 5 stars 167
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Performance4.5 out of 5 stars 145
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Story4.5 out of 5 stars 144
You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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5 out of 5 stars
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I thought I had more time...
- By Alyssa on 09-09-19
By: Sallie Tisdale
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Hello I Want to Die Please Fix Me
- Depression in the First Person
- By: Anna Mehler Paperny
- Narrated by: Kirsten Potter
- Length: 10 hrs and 57 mins
- Unabridged
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Overall4.5 out of 5 stars 240
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Performance4.5 out of 5 stars 206
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Story4.5 out of 5 stars 205
In her early 20s, investigative journalist Anna Mehler Paperny had already landed her dream job. On the surface, her life was great. Nevertheless, she spiraled out, attempted suicide (the first of more attempts to follow), and landed in the ICU and then in a psych ward before setting out to tackle her recovery. In Hello I Want to Die Please Fix Me, Mehler Paperny turns her journalist's eye on her own experience and others' - in the ward; as an outpatient; facing family, friends, and coworkers; finding the right meds; trying to stay insured and employed.
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5 out of 5 stars
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I enjoyed this experience
- By Anonymous User on 06-11-21
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Elderhood
- Redefining Aging, Transforming Medicine, Reimagining Life
- By: Louise Aronson
- Narrated by: Eliza Foss
- Length: 18 hrs and 22 mins
- Unabridged
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Overall4.5 out of 5 stars 126
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Performance4.5 out of 5 stars 106
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Story4.5 out of 5 stars 105
As revelatory as Atul Gawande’s Being Mortal, physician and award-winning author Louise Aronson’s Elderhood is an essential, empathetic look at a vital but often disparaged stage of life. For more than 5,000 years, 'old' has been defined as beginning between the ages of 60 and 70. That means most people alive today will spend more years in elderhood than in childhood, and many will be elders for 40 years or more. Yet at the very moment that humans are living longer than ever before, we’ve made old age into a disease.
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4 out of 5 stars
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Well written but too long
- By Eric Troyer on 08-21-20
By: Louise Aronson
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Grace and Grit
- A Love Story
- By: Ken Wilber
- Narrated by: Steve Rimpici, Hillary Huber
- Length: 18 hrs and 50 mins
- Unabridged
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Overall5 out of 5 stars 42
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Performance5 out of 5 stars 38
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Story5 out of 5 stars 38
Here is a deeply moving account of a couple's struggle with cancer and their journey to spiritual healing. Grace and Grit is the compelling story of the five-year journey of Ken Wilber and his wife, Treya Killam Wilber, through Treya's illness, treatment, and, finally, death.
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5 out of 5 stars
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essential
- By Kimberly Sloss on 07-19-22
By: Ken Wilber
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Being Mortal
- Medicine and What Matters in the End
- By: Atul Gawande
- Narrated by: Robert Petkoff
- Length: 9 hrs and 3 mins
- Unabridged
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Overall5 out of 5 stars 13,503
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Performance5 out of 5 stars 11,688
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Story5 out of 5 stars 11,655
In Being Mortal, best-selling author Atul Gawande tackles the hardest challenge of his profession: how medicine can not only improve life but also the process of its ending. Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit.
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5 out of 5 stars
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A Walk through the Valley of the Shadow
- By George on 11-02-14
By: Atul Gawande
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The Inevitable
- Dispatches on the Right to Die
- By: Katie Engelhart
- Narrated by: Katie Engelhart
- Length: 10 hrs and 12 mins
- Unabridged
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Overall