The Unexpected Journey

Finding Strength, Hope, and Yourself on the Caregiving Path

De: Emma Heming Willis

Narrado por: Emma Heming Willis, Maria Shriver

INSTANT NEW YORK TIMES BESTSELLER

NATIONAL BESTSELLER

"This book is a game changer for caregivers of loved ones with dementia. It comes out of Emma’s pain, which she has turned into a purpose bigger than herself. I couldn’t be prouder of her and the courage it took for her to write this. This book will help millions of families, like hers, like yours, like mine, like everyone’s. It’s a book for our time.” —Maria Shriver

From Emma Heming Willis, wife of Bruce Willis, a deeply personal and richly compassionate supportive guide that helps caregivers care for themselves while they navigate a loved one's dementia.

AN OPEN FIELD PUBLICATION FROM MARIA SHRIVER

The day Emma Heming Willis’ husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of that doctor’s appointment frozen with fear, confusion and a sense that her world had just fallen apart.

In fact, it had. Bruce and Emma had their story written, their future mapped out. Yet all those dreams crumbled with that diagnosis, and Emma felt alone and more isolated than ever. How would she care for her husband while parenting their young daughters?

At that devastating time, Emma just wanted someone who'd been through it to tell her, “This feels terrible right now. Your life is in shambles. But it’s going to be okay. Here are some things to think about and put in place so you cannot just survive but thrive.”

With The Unexpected Journey, Emma has written the book she wishes she’d been handed on the day of Bruce’s diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one. Weaving her personal journey as a care partner with the latest research and insights from the world’s top dementia, caregiving, and integrative experts she offers the guidance and wisdom caregivers everywhere so desperately need to hear, including:

• A diagnosis isn’t just a label, it’s a starting point. It helps you better understand your person’s behavior and respond with more clarity and compassion.
• Taking care of yourself is not optional; it's mandatory. It will make you a better care partner. It’s not selfish, it’s self-preserving.
• You don’t have a choice about being on the dementia caregiving journey. But you do have a choice in terms of how you approach it and reframe it.
• Caregivers are human so you aren’t always going to be patient and selfless. You have challenges and struggle with conflicting emotions and that’s okay.

Ultimately, The Unexpected Journey shows you how to care for yourself while doing one of the hardest, most heartbreaking jobs in the world. Because if you don’t take care of yourself, you are not going to be able to look after anyone else—especially your loved one with dementia.

For anyone caregiving for a loved one with any form of dementia, and even for those caregiving for other conditions, The Unexpected Journey shows that you are not alone. As Emma writes, “I know that no two caregiving journeys are the same, but we are connected by the same unchosen thread. It’s not an easy path for you, your loved one or your family. But I’m here to let you know that you are not alone, and, in time, you will find your footing, and a way forward."

What wonderful life lessons….

I applaud you, Emma there is so much wisdom here no matter what it is that one is facing. There are so many lessons here, I will carry with me for the rest of my life.

I have a daughter with a TBI and Emma’s description of ambiguous grief was chillingly accurate.

If you are a caregiver, this is a must read! So many practical strategies to fight the burnout that inevitably comes with caring for someone who can no longer care for themselves.

Helpful

Her advises and experiences; I am a caregiver to my 94 year old mother and, it is soooo hard to handle them sometimes. God gives me strength and patience every day.

just what I needed to hear now.

thank you Emma for sharing your journey it has helped me right now as my journey with Alzheimers steal my soul mate of over 50 yrs. It's so difficult to let someone else take care of things & no they don't do it the way I do but I'm learning to deal with letting go. TY. I've always enjoyed Bruce's work & with miss future endevor that with not occur. Blessings to your entire family. Peace be with you.

Love the sharing by Emma

I loved that Emma shared the many things that she has tried for Bruce and how she is helping her daughters.

Honest caregivers perspective

I liked how this author, wife of Bruce Willis, prepares us to either support a loved one with dementia or support a caregiver of a loved one with dementia. The specific ideas of how to help are excellent. Bruce has been diagnosed with a form of dementia, FTD, that is diagnosed in younger patients than we typically see with other forms of dementia.

A Difficult and Necessary Sharing

Kudos to Emma for sharing all her knowledge and experience so far on her care partner journey - not an easy thing to do, but so necessary for so many. My sister-in-law has worked for and with Teepa Snow for years and was such a valuable resource when my Dad went through his dementia journey at the end of his life. Cannot recommend this book highly enough for its sense of support and community.

Great advice and suggestions for anyone.

Emma, thank you so much for sharing your journey this far with one of my favorite talented actors. Excellent guidance for the understanding for caregivers, families, health care providers, and the world in General. We love you Bruce.

The care team effectiveness.

As a spouse of a person with dementia, this was so helpful In how I need to navigate this journey. Thank you

Every thing

A wonderful story about Bruce and the care he has gotten So helpful for caregivers