The Unexpected Journey

Finding Strength, Hope, and Yourself on the Caregiving Path

De: Emma Heming Willis

Narrado por: Emma Heming Willis, Maria Shriver

INSTANT NEW YORK TIMES BESTSELLER

NATIONAL BESTSELLER

"This book is a game changer for caregivers of loved ones with dementia. It comes out of Emma’s pain, which she has turned into a purpose bigger than herself. I couldn’t be prouder of her and the courage it took for her to write this. This book will help millions of families, like hers, like yours, like mine, like everyone’s. It’s a book for our time.” —Maria Shriver

From Emma Heming Willis, wife of Bruce Willis, a deeply personal and richly compassionate supportive guide that helps caregivers care for themselves while they navigate a loved one's dementia.

AN OPEN FIELD PUBLICATION FROM MARIA SHRIVER

The day Emma Heming Willis’ husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of that doctor’s appointment frozen with fear, confusion and a sense that her world had just fallen apart.

In fact, it had. Bruce and Emma had their story written, their future mapped out. Yet all those dreams crumbled with that diagnosis, and Emma felt alone and more isolated than ever. How would she care for her husband while parenting their young daughters?

At that devastating time, Emma just wanted someone who'd been through it to tell her, “This feels terrible right now. Your life is in shambles. But it’s going to be okay. Here are some things to think about and put in place so you cannot just survive but thrive.”

With The Unexpected Journey, Emma has written the book she wishes she’d been handed on the day of Bruce’s diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one. Weaving her personal journey as a care partner with the latest research and insights from the world’s top dementia, caregiving, and integrative experts she offers the guidance and wisdom caregivers everywhere so desperately need to hear, including:

• A diagnosis isn’t just a label, it’s a starting point. It helps you better understand your person’s behavior and respond with more clarity and compassion.
• Taking care of yourself is not optional; it's mandatory. It will make you a better care partner. It’s not selfish, it’s self-preserving.
• You don’t have a choice about being on the dementia caregiving journey. But you do have a choice in terms of how you approach it and reframe it.
• Caregivers are human so you aren’t always going to be patient and selfless. You have challenges and struggle with conflicting emotions and that’s okay.

Ultimately, The Unexpected Journey shows you how to care for yourself while doing one of the hardest, most heartbreaking jobs in the world. Because if you don’t take care of yourself, you are not going to be able to look after anyone else—especially your loved one with dementia.

For anyone caregiving for a loved one with any form of dementia, and even for those caregiving for other conditions, The Unexpected Journey shows that you are not alone. As Emma writes, “I know that no two caregiving journeys are the same, but we are connected by the same unchosen thread. It’s not an easy path for you, your loved one or your family. But I’m here to let you know that you are not alone, and, in time, you will find your footing, and a way forward."

©2025 Emma Heming Willis (P)2025 Penguin Audio

Reseñas de la Crítica

“Becoming a caregiver to someone you love is one of the hardest and most heartbreaking jobs in the world, but Emma has documented her story with grace and empathy. From cover to cover, The Unexpected Journey is filled with straightforward, applicable information and honest reflections that will make every caregiver know that they are not alone.” —Katie Couric, award-winning journalist and founder of Katie Couric Media

“I admire Emma for telling her story of how strength, courage, and love can help you overcome fear and desperation in the face of neurodegenerative disease. Emma shares practical tips and valuable advice on how (and why) a caregiver can, should, and must take care of themselves. Giving of oneself and providing constant care for a loved one with dementia is beyond challenging, but The Unexpected Journey offers a road map forward on how to do so with balance and confidence.” —Richard S. Isaacson, MD, preventive neurologist at the Institute for Neurodegenerative Diseases and founder of the first Alzheimer’s Prevention Clinic in the United States

“Watching the journey our stepmom has bravely embarked on has been life-changing. Not only has she deeply educated and immersed herself in the world of caregiving, she has taken on this unexpected life change with poise and elegance. Emma’s fierce devotion, endless compassion, and relentless quest to learn has been nothing short of extraordinary. Her care for our daddio is tender and unwavering, and the vulnerability she shares with the world is a lifeline for so many others walking a similar path. We are endlessly proud of her and profoundly grateful to be her family.” —Rumer, Scout, and Tallulah Willis

Love the sharing by Emma

I loved that Emma shared the many things that she has tried for Bruce and how she is helping her daughters.

What wonderful life lessons….

I applaud you, Emma there is so much wisdom here no matter what it is that one is facing. There are so many lessons here, I will carry with me for the rest of my life.

I have a daughter with a TBI and Emma’s description of ambiguous grief was chillingly accurate.

If you are a caregiver, this is a must read! So many practical strategies to fight the burnout that inevitably comes with caring for someone who can no longer care for themselves.

Helpful

Her advises and experiences; I am a caregiver to my 94 year old mother and, it is soooo hard to handle them sometimes. God gives me strength and patience every day.

just what I needed to hear now.

thank you Emma for sharing your journey it has helped me right now as my journey with Alzheimers steal my soul mate of over 50 yrs. It's so difficult to let someone else take care of things & no they don't do it the way I do but I'm learning to deal with letting go. TY. I've always enjoyed Bruce's work & with miss future endevor that with not occur. Blessings to your entire family. Peace be with you.

It was very informative

I am a caregiver and it's good to know that other people are feeling the same things that I am. It was really helpful to read this.

A relatable journey of loss, heartbreak, grief, and perseverance! !

emotional and professional, and relatable...My husband's Early Onset Alzheimer's has been a nightmare of about a dozen years and so much of what the author describes is inherently similar. I've said and done many of the exact things she said and did!

A Difficult and Necessary Sharing

Kudos to Emma for sharing all her knowledge and experience so far on her care partner journey - not an easy thing to do, but so necessary for so many. My sister-in-law has worked for and with Teepa Snow for years and was such a valuable resource when my Dad went through his dementia journey at the end of his life. Cannot recommend this book highly enough for its sense of support and community.

Great advice and suggestions for anyone.

Emma, thank you so much for sharing your journey this far with one of my favorite talented actors. Excellent guidance for the understanding for caregivers, families, health care providers, and the world in General. We love you Bruce.

Thanks

Truly a lifeline book. Thanks for pouring your heart out to help those of us who are on the journey too. God bless you.