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Disability Visibility: First-Person Stories from the Twenty-First Century
- Unabridged Selections
- Narrated by: Alejandra Ospina, Alice Wong
- Length: 8 hrs and 1 min
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Disability Visibility: First-Person Stories from the Twenty-First Century
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Publisher's summary
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
From original pieces by up-and-coming authors like Keah Brown and Haben Girma, to blog posts, manifestos, eulogies, Congressional testimonies, and beyond: This anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites listeners to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
Critic reviews
“An exemplary collection...This month’s #RequiredReading.” (Ms. Magazine)
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Story4.5 out of 5 stars 147
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann's father was diagnosed with non-Hodgkin's lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver - cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying.
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2 out of 5 stars
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Ugh, so boring
- By Maranto on 05-13-19
By: Ann Neumann
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Sit Down to Rise Up
- By: Shelly Tygielski
- Narrated by: Shelly Tygielski
- Length: 7 hrs and 9 mins
- Unabridged
-
Overall4.5 out of 5 stars 37
-
Performance5 out of 5 stars 31
-
Story4.5 out of 5 stars 31
The practice of mindfulness is most often touted for its profound mind, body, and spirit benefits. Shelly Tygielski here shows that mindfulness can also be a powerful tool for spurring transformative collective action. In a winning combination of memoir, manifesto, and how-to, Tygielski shares her evolution from a Jerusalem-born child of traditional Sephardic Orthodox parents to a middle-class American suburban youth who questioned her faith to a young executive in corporate America.
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5 out of 5 stars
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Relevant and Motivating
- By Shelly G on 07-01-22
By: Shelly Tygielski
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The Future Is Disabled
- Prophecies, Love Notes and Mourning Songs
- By: Leah Lakshmi Piepzna-Samarasinha
- Narrated by: Leah Lakshmi Piepzna-Samarasinha
- Length: 9 hrs and 21 mins
- Unabridged
-
Overall5 out of 5 stars 24
-
Performance5 out of 5 stars 23
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Story5 out of 5 stars 22
In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?
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5 out of 5 stars
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Disability justice handbook
- By Alyssum M. Pohl on 03-17-24
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Girl Gurl Grrrl
- On Womanhood and Belonging in the Age of Black Girl Magic
- By: Kenya Hunt
- Narrated by: Kenya Hunt, Ebele Okobi, Jessica Horn, and others
- Length: 5 hrs and 39 mins
- Unabridged
-
Overall4.5 out of 5 stars 55
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Performance4.5 out of 5 stars 50
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Story4.5 out of 5 stars 50
Black women have never been more visible or more publicly celebrated. But for every milestone, every magazine cover, every new face elected to public office, the reality of everyday life for black women remains a complex, conflicted, contradiction-laden experience. An American journalist who has been living in London for a decade, Kenya Hunt has made a career of distilling moments, movements, and cultural moods into words. Her work takes the difficult and the indefinable and makes it accessible; it is razor sharp cultural observation threaded through evocative and relatable stories.
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5 out of 5 stars
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Inspired
- By Amazon Customer on 01-29-21
By: Kenya Hunt
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How to Be Sad
- Everything I’ve Learned About Getting Happier by Being Sad
- By: Helen Russell
- Narrated by: Helen Russell
- Length: 10 hrs and 28 mins
- Unabridged
-
Overall4.5 out of 5 stars 32
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Performance4.5 out of 5 stars 29
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Story4.5 out of 5 stars 30
Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.
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5 out of 5 stars
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A feel good book about being sad
- By AnnMarie on 02-04-22
By: Helen Russell
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Viral Justice
- How We Grow the World We Want
- By: Ruha Benjamin
- Narrated by: Ruha Benjamin
- Length: 13 hrs and 24 mins
- Unabridged
-
Overall5 out of 5 stars 49
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Performance5 out of 5 stars 43
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Story5 out of 5 stars 41
Long before the pandemic, Ruha Benjamin was doing groundbreaking research on race, technology, and justice, focusing on big, structural changes. But the twin plagues of COVID-19 and anti-Black police violence inspired her to rethink the importance of small, individual actions. Part memoir, part manifesto, Viral Justice is a sweeping and deeply personal exploration of how we can transform society through the choices we make every day.
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5 out of 5 stars
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Fantastic book!
- By Avie Kearney on 05-21-23
By: Ruha Benjamin
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The Myth of the American Dream
- Reflections on Affluence, Autonomy, Safety and Power
- By: D.L. Mayfield
- Narrated by: Nan McNamara
- Length: 7 hrs and 5 mins
- Unabridged
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Overall4.5 out of 5 stars 43
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Performance4.5 out of 5 stars 35
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Story4.5 out of 5 stars 36
Affluence, autonomy, safety, and power. These are the central values of the American dream. But are they actually compatible with Jesus' command to love our neighbor as ourselves? In essays grouped around these four values, D. L. Mayfield asks us to pay attention to the ways they shape our own choices, and the ways those choices affect our neighbors. Where did these values come from? How have they failed those on the edges of our society? And how can we disentangle ourselves from our culture's headlong pursuit of these values and live faithful lives of service to God and our neighbors?
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5 out of 5 stars
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Sooooo good. Powerful
- By D. Frazier on 08-19-21
By: D.L. Mayfield
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- By: Sallie Tisdale
- Narrated by: Gabra Zackman
- Length: 7 hrs and 11 mins
- Unabridged
-
Overall4.5 out of 5 stars 181
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Performance4.5 out of 5 stars 155
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Story4.5 out of 5 stars 154
You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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5 out of 5 stars
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I thought I had more time...
- By Alyssa on 09-09-19
By: Sallie Tisdale
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Marrow
- A Love Story
- By: Elizabeth Lesser
- Narrated by: Elizabeth Lesser, Sally Field
- Length: 9 hrs and 42 mins
- Unabridged
-
Overall4.5 out of 5 stars 227
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Performance5 out of 5 stars 208
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Story4.5 out of 5 stars 208
A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.
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5 out of 5 stars
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“ Love came first “
- By marie on 03-26-18
By: Elizabeth Lesser
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The Gift of Adversity
- The Unexpected Benefits of Life's Difficulties, Setbacks, and Imperfections
- By: Norman E. Rosenthal M.D.
- Narrated by: Erik Synnestvedt
- Length: 10 hrs and 21 mins
- Unabridged
-
Overall4 out of 5 stars 71
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Performance4 out of 5 stars 59
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Story4 out of 5 stars 58
The noted research psychiatrist explores how life's disappointments and difficulties provide us with the lessons we need to become better, bigger, and more resilient human beings. Adversity is an irreducible fact of life. Although we can and should learn from all experiences, both positive and negative best-selling author Dr. Norman E. Rosenthal believes that adversity is by far the best teacher most of us will ever encounter.
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4 out of 5 stars
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Book ruined by the narrator
- By David C. on 12-07-22
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Your Turn
- How to Be an Adult
- By: Julie Lythcott-Haims
- Narrated by: Julie Lythcott-Haims
- Length: 20 hrs and 21 mins
- Unabridged
-
Overall4.5 out of 5 stars 73
-
Performance4.5 out of 5 stars 59
-
Story4.5 out of 5 stars 58
What does it mean to be an adult? In the 20th century, psychologists came up with five markers of adulthood: finish your education, get a job, leave home, marry, and have children. Since then, every generation has been held to those same markers. Yet so much has changed about the world and living in it since that sequence was formulated. All of those markers are choices, and they’re all valid, but any one person’s choices along those lines do not make them more or less an adult.
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1 out of 5 stars
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Not the book that was advertised
- By M. Rogers on 04-13-21
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Fat Girls in Black Bodies
- Creating Communities of Our Own
- By: Joy Arlene Renee Cox Ph.D., Ta'lor Pinkston - foreword, Jill Andrew Ph.D.
- Narrated by: Gwendolyn Carter
- Length: 4 hrs and 57 mins
- Unabridged
-
Overall5 out of 5 stars 24
-
Performance5 out of 5 stars 20
-
Story4.5 out of 5 stars 19
Structured into three sections - "belonging," "resistance," and "acceptance" - and informed by personal history, community stories, and deep research, Fat Girls in Black Bodies breaks down the myths, stereotypes, tropes, and outright lies we've been sold about race, body size, belonging, and health. Cox's razor-sharp cultural commentary exposes the racist roots of diet culture, healthism, and the ways we erroneously conflate body size with personal responsibility.
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5 out of 5 stars
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AMAZING
- By Amazon Customer on 03-21-21
By: Joy Arlene Renee Cox Ph.D., and others
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My Two Moms
- Lessons of Love, Strength, and What Makes a Family
- By: Zach Wahls, Bruce Littlefield
- Narrated by: Kris Koscheski
- Length: 6 hrs and 53 mins
- Unabridged
-
Overall4.5 out of 5 stars 53
-
Performance4.5 out of 5 stars 47
-
Story4.5 out of 5 stars 46
On January 31, 2011, Zach Wahls addressed the Iowa House Judiciary Committee in a public forum regarding civil unions. The 19-year-old son of a same-sex couple, Wahls proudly proclaimed, "The sexual orientation of my parents has had zero effect on the content of my character." Hours later, his speech was posted on YouTube, where it went viral, quickly receiving more than two million views. By the end of the week, everyone knew his name and wanted to hear more from the boy with two moms.
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5 out of 5 stars
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You will not regret listening to this.
- By V. Brown on 06-07-12
By: Zach Wahls, and others
-
Fully Alive
- Discovering What Matters Most
- By: Timothy Shriver
- Narrated by: David Drummond
- Length: 10 hrs and 53 mins
- Unabridged
-
Overall4.5 out of 5 stars 46
-
Performance4.5 out of 5 stars 39
-
Story4.5 out of 5 stars 38
At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.
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5 out of 5 stars
-
Eye opening book
- By Robert J. Herman on 06-05-15
By: Timothy Shriver
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5 out of 5 stars
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A must read for everyone
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In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change.
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In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.
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As Good as It Gets
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Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.
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5 out of 5 stars
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AMPLIFY this type of constructive, imaginative, and uplifting voice!!
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Feminist, Queer, Crip
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Overall4.5 out of 5 stars 5
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Performance5 out of 5 stars 4
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In Feminist, Queer, Crip, Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a predetermined limit.
By: Alison Kafer
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About Us
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Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.
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5 out of 5 stars
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About Us
- By KS on 01-13-22
By: Andrew Solomon - foreword, and others
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Disfigured
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Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.
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3 out of 5 stars
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Mixed bag
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An African American and Latinx History of the United States
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Spanning more than 200 years, An African American and Latinx History of the United States is a revolutionary, politically charged narrative history arguing that the "Global South" was crucial to the development of America as we know it. Ortiz challenges the notion of westward progress, and shows how placing African American, Latinx, and Indigenous voices unapologetically front and center transforms American history into the story of the working class organizing against imperialism.
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2 out of 5 stars
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I had to return
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The Pretty One
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From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America.
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5 out of 5 stars
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She isn't pretty, she's BEAUTIFUL!
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By: Keah Brown
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A Mind Spread Out on the Ground
- By: Alicia Elliott
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- Unabridged
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Overall4.5 out of 5 stars 54
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Performance4.5 out of 5 stars 45
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Story5 out of 5 stars 45
The Mohawk phrase for depression can be roughly translated as a mind spread out on the ground. In this urgent, visceral work, Alicia Elliott explores how apt a description that is for the ongoing effects of the personal, intergenerational, and colonial traumas experienced by her so many Native people. Elliott's deeply personal writing details a life spent between Indigenous and White communities - a divide reflected in her own family - and engages with such wide-ranging topics as race, parenthood, love, art, mental illness, poverty, sexual assault, gentrification, and representation.
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4 out of 5 stars
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Important and powerful, but narrator ruined it
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By: Alicia Elliott
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What Can a Body Do?
- How We Meet the Built World
- By: Sara Hendren
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Overall5 out of 5 stars 51
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Performance5 out of 5 stars 45
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Story5 out of 5 stars 43
Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body’s stunning capacity for adaptation—rather than a rigid insistence on “normalcy”—look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.
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5 out of 5 stars
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Well written and thought provoking
- By Elza Hisel-McCoy on 02-01-24
By: Sara Hendren
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Haben
- The Deafblind Woman Who Conquered Harvard Law
- By: Haben Girma
- Narrated by: Haben Girma
- Length: 7 hrs and 30 mins
- Unabridged
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Overall4.5 out of 5 stars 317
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Performance4.5 out of 5 stars 283
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Story4.5 out of 5 stars 283
The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.
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5 out of 5 stars
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Wonderful story, told in her own voice.
- By Calucin on 08-10-19
By: Haben Girma
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Decarcerating Disability
- Deinstitutionalization and Prison Abolition
- By: Liat Ben-Moshe
- Narrated by: Margaret Strom
- Length: 15 hrs and 58 mins
- Unabridged
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Overall4 out of 5 stars 3
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Performance4.5 out of 5 stars 2
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Story4.5 out of 5 stars 2
Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the 20th century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.
By: Liat Ben-Moshe
What listeners say about Disability Visibility: First-Person Stories from the Twenty-First Century
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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Overall5 out of 5 stars
- Anonymous User
- 02-21-23
Great
I immensly enjoyed listening to this book, it was enlightening, entertaining, moving, and helped to expand my brain . I would recommend to all.
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Mel
- 08-05-20
Must read!
The authors, Both contributors and editor, wrote beautiful, transportive, transformative stories. The narrator has a shining voice. I feel represented. May as many people as possible read this book. May disabled readers feel seen and empowered, and may non-disabled readers, whether allied yet or not, step into and appreciate our world. May all readers find something to learn along the way. Many thanks to all who made this work of art possible.
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7 people found this helpful
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Anonymous User
- 07-18-20
Must read for EVERYONE!
A comprehensive education of modern day Disability Rights told through first person stories and experiences of Disabled individuals. Beautifully written and edited. Job well done to Alice Wong and all of the individuals who shared their accounts.
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4 people found this helpful
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Overall5 out of 5 stars
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Performance4 out of 5 stars
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Story5 out of 5 stars
- James Eccles
- 11-28-20
Worth Reading
The stories are informative, inspire additional reading and calls policies and social norms into question.
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2 people found this helpful
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Anonymous User
- 06-19-22
thank you
loved it! saw myself in many of the stories. eye opening. keep the stories coming
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- TJ
- 12-07-22
Insightful first-person stories
This is a vitally important book to understand individuals living with disabilities in our world better for EVERYONE to learn from. These stories gather some perspectives from a diverse group of people.
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Sarah F
- 09-23-23
Required reading!!
Everyone needs to read this book, as a starting place for cultivating empathy & language around Disability Justice, or to feel the depths of solidarity this provided for me. Thank you for this project!
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Quyen Luu
- 11-10-23
Amazing
I will recommend this book to everyone. It's such a good book that helps me to understand more about the disabled community. Each story is a unique experience, and this covers varied. I am sure that there will be one story that leaves you though
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Overall4 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Adrianna A.
- 11-19-20
Missing stories
This book is great and the narrator does an amazing job. There are two missing chapters, and I’m not sure if that’s intentional or a huge oversight. I’ve never experienced this with any audible book before this, but unlike me I know some people don’t follow along with a physical copy of a book. Those readers wouldn’t know they missed two of the essays. Besides missing “Unspeakable Conversations” & “Love Means Never Having to Say ... Anything” this book is beautifully done.
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21 people found this helpful
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- Fam Jam
- 07-17-20
So needed
The disabled and especially the abled need to read these first person narratives of discrimination and ablesim that are plaguing our world. Especially the story highlighting the need for disability to be included in civil rights fights of the day such as in black lives matter.
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3 people found this helpful