Episodios

  • Dana's PV Journey: Research, Resilience & Mental Health
    Apr 2 2025

    On the Season 2 premiere of the PV Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg introduce Dana, a therapist diagnosed with polycythemia vera (PV) at 35. Dana shares her unique diagnosis story, her experience managing PV symptoms from a young age, and the importance of self-advocacy, mental health, and community support in her journey. Dana offers insightful advice on navigating life with PV, emphasizing the need for education and a strong support system.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    22 m
  • Grounded with Purpose: Ken Stein's Journey with PV
    Feb 18 2025

    On the final episode of Season 1 of The PV Pod, we’re in conversation with Ken Stein, a 77-year-old former pilot diagnosed with polycythemia vera (PV). Ken shares his diagnosis story, the impact of PV on his life, and the importance of community and self-advocacy. He also highlights challenges in communicating the severity of his condition to others and managing his healthcare team.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    21 m
  • A Year in Review for Polycythemia Vera
    Jan 15 2025

    On this episode, Josh and Kay recap the first year of 'The PV Pod: Stories from the Marrow', reflecting on key moments from their ten episodes. They discuss polycythemia vera (PV), including insights from medical experts like Dr. Bose, Dr. Tremblay, and Dr. Gerds, and heartwarming stories from people living with PV, such as Nick Napolitano and Gary Linehan. The episode covers PV symptoms, treatments, and the importance of community support. Special highlights include Gary's inspirational outlook and Nick's metaphor of a baseball season to describe living with PV.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    21 m
  • Behind the Words: Polycythemia Vera Definitions
    Dec 11 2024

    On this episode of PV Pod: Stories from the Marrow, we welcome special guest Dr. Brandi Reeves. She helps us dive into an encyclopedic exploration of polycythemia vera (PV). They break down complex medical terms and concepts related to PV, including JAK2 mutations, allele burdens, molecular response, and more. Dr. Reeves provides clear and concise definitions, making it easier for listeners to understand this rare blood cancer and its implications.

    Episode description will accompany podcast on podcast players.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    25 m
  • Gary Linehan's Mont Blanc Adventure - Part 2
    Sep 17 2024

    We’re back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he faced, and the heartwarming connections he made along the way, emphasizing the importance of living life to the fullest despite a PV diagnosis. Tune in to hear Gary's wisdom, inspiring stories, and how he continues to thrive and advocate for the PV community.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    20 m
  • Journey Beyond Diagnosis: Gary Linehan's Hike and Hope
    Aug 26 2024

    On this episode, Gary Linehan, an experienced educator and avid hiker, shares his profound journey from being diagnosed with polycythemia vera (PV) in 2021 to embarking on ambitious hiking adventures, including the Tour Mont Blanc. Linehan discusses his initial symptoms, the challenges of misdiagnosis, and the crucial support system that includes his wife, children, and friends. He also shares insights on how he physically and mentally prepares for his hikes, and offers valuable advice for others newly diagnosed with rare diseases.

    For more information about interferons, click here.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    23 m
  • What to Know about Progression in Polycythemia Vera
    Jul 2 2024

    On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of progression. Dr. Tremblay also addresses the significant concern patients have regarding disease progression and the challenges in predicting and preventing it. Furthermore, he explores the role of the JAK2 mutation, inflammation in the bone marrow, and various treatment strategies aimed at controlling the disease and preventing its progression.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    24 m
  • What We’ve Learned So Far About Polycythemia Vera
    Feb 26 2024

    On this episode, we travel back to our previous episodes to deliver some highlights of what we’ve learned so far. Dr. Prithviraj Bose gives us an overview of polycythemia vera, patient Nick Napolitano discusses his diagnosis, husband and wife team Joe and Patty Monteleone discuss the caregiver/patient relationship, David Wallace talks about his inspiration to create the PV Reporter and Dr. Aaron Gerds talks treatment.

    Transparency Statement:


    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Más Menos
    36 m
adbl_web_global_use_to_activate_webcro805_stickypopup