On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by people living with polycythemia vera (PV) and other rare diseases. Dr. Freedman shares his personal story as a parent and professional, offering insights on coping with uncertainty, isolation, and the importance of community support. The conversation highlights practical strategies for managing mental health, both for patients and caregivers, and emphasizes the value of hope, resilience, and connection. Tune in for an honest and compassionate look at navigating life with a rare disease.

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Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her experiences with advocating for her own health, and the value of staying informed and connected within the PV community.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia Masarova from MD Anderson Cancer Center and PV patient Cheri Clark, who provide insights from both the physician and patient perspectives. The discussion highlights the essential role of patient advocacy, continual education, and collaboration between patients and healthcare providers in managing this rare disease.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.