In this engaging episode of Living with FASD, host PattiKasper welcomes back the dynamic Dr. Christie Petrenko from the University of Rochester. Together, they delve into the exciting advancements in research aimed at supporting adults with Fetal Alcohol Spectrum Disorders (FASD). Dr.Petrenko shares insights about the innovative app, My Health Coach, designed specifically for adults living with FASD, highlighting its features such as a health coach chatbot, medication reminders, and personalized tracking tools.

The discussion explores the collaborative effort behind theapp’s development, emphasizing the importance of user feedback and the role of the Adult Leadership Collaborative of FASD Changemakers in co-designing this essential resource. Dr. Petrenko outlines the app's capabilities, including symptom tracking and daily check-ins, which address the unique challenges faced by adults with FASD.

Patti and Christie also touch on another exciting initiative, the Thrive program, aimed at empowering young adults throughpersonalized support and goal setting. Listeners will learn about the importance of community engagement in research and how individuals can get involved in both the My Health Coach app study and the Thrive program.

This episode is a treasure trove of information for anyoneinterested in the intersection of technology, health, and FASD advocacy. Join us for this enlightening conversation that not only sheds light on groundbreaking research but also encourages community participation in shapingthe future of support for individuals with FASD.

As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com or visit her website at patriciakasper.com.

To participate in the research discussd in today's show, visit:

My Health Coach App study:

• https://redcap.link/6mg9srra

• 2 min video explaining study: https://youtu.be/mk5stwb8COg

• email: myhealthcoach@urmc.rochester.edu

FMF Connect Pro Study (Mental HealthProviders – US only)

No prior knowledge or experience with FASD required! Providers receive accessible trainings on how to screen and diagnose FASD and support families using the FMF Connect app· Receive free continuing education credits for participating in training To learn more: https://providers.fmfconnect.com/

· Email: fmfconnect@urmc.rochester.edu

Nursing Study (NP program directors)

Needs assessment survey with directors of Nurse Practitioner training programs across the US.

Results will help inform development of accessible training materials for NP trainees

For more nformation: lynn_cole@urmc.rochester.edu

FASD Stigma Documentary

Aiming for release September 2025. We’re working on raising the last $50k to film final shots, add animation, and put on finishing touches. Reach out: christie_petrenko@urmc.rochester.edu withany ideas for last fundraising push, showings, or distribution.

#MyHealthCoach #FASD #DrChristiePetrenko #ThriveProgram#FetalAlcoholSpectrumDisorders #Advocacy #Research #LivingWithFASDPodcast

In this enlightening episode of Living with FASD, host PattiKasper reconnects with Dr. Jerrod Brown for a fascinating exploration of psychogastroenterology and its implications for individuals living with Fetal Alcohol Spectrum Disorders (FASD). Dr. Brown shares his insights on the critical connection between gut health and mental well-being, emphasizing how the gut-brain axis plays a pivotal role in mood, sleep, and overall health.

The conversation dives into the emerging research linkinggut health issues with FASD, shedding light on how dietary choices, stress, and lifestyle factors can significantly impact the well-being of those affected.

Dr. Brown discusses practical strategies for improving gut health, including the importance of nutrition, sleep hygiene, and the timing of meals, while also addressing the challenges faced by individuals with FASD in maintaining healthyeating habits.

Listeners will gain valuable knowledge on theinterconnectedness of mental health and gut function, as well as actionable steps they can take to foster better health outcomes. Dr. Brown's passion for this field of study shines through, making this episode a must-listen for anyone interested in understanding the holistic approach to health for those living with FASD.

As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her atlivingwithfasdpodcast@gmail.com.

#Psychogastroenterology #GutHealth #FASD #MentalHealth #Nutrition #GutBrainAxis #FetalAlcoholSpectrumDisorders #DrJerrodBrown#LivingWithFASD

In this captivating episode of Living with FASD, host Patti Kasper reunites with the insightful Antonia Rathbun Lindsay to celebrate the impending release of her highlyanticipated book, Parenting Your Porcupine: Tools for Working with Children with FASD, Drug Effects, and Other Neurodiversities. Antonia shares her journey of crafting this essential resource, drawing from her extensive experience inthe field and her personal insights as a caregiver.

The conversation delves into the significance ofunderstanding the unique challenges faced by children with FASD and the importance of bridging the gap between professionals and families. Antonia discusses the innovative concept of "body culture," emphasizing how sensory dysregulation affects behavior and communication in children. Listeners will gain valuable perspectives on the necessity of empathy and accommodation in interactions with children who have neurodevelopmental differences.

Patti and Antonia explore the critical need for a commonlanguage that fosters collaboration between parents and professionals, ensuring that both perspectives are valued in the journey of raising children with FASD.

This episode not only highlights the practical tools and strategies found in Antonia's book but also underscores the power of storytelling and shared experiences in creating meaningful change.

Join us for this enlightening discussion that promises toempower families and professionals alike. As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her atlivingwithfasdpodcast@gmail.com.

#ParentingYourPorcupine #AntoniaRathbunLindsay #FASD#Neurodiversity #LivingWithFASD #Empathy #Collaboration #BodyCulture#ToolsForParents #FASDCommunity

In this episode of Living with FASD, host Patti Kasperwelcomes back the insightful Emily Hargrove, who shares exciting updates on her life and research journey. With the arrival of her second child, Emily reflects on the joys of motherhood while diving back into her doctoral studies, focusing on the intersection of faith, spirituality, and Fetal Alcohol Spectrum Disorders (FASD).

Emily discusses her dissertation, which seeks to explore howadults with FASD express their spirituality, emphasizing the need for a holistic understanding of the condition. She highlights the importance of integrating spiritual development into the support systems for individuals withFASD, challenging the stigma surrounding their experiences within faith communities.

The conversation also touches on Emily's involvement withthe Adult Leadership Collaboration of the FASD Changemakers International and her role as president of the FASD Collaborative Project. Listeners will gain valuable insights into the ongoing efforts to amplify the voices of adults living with FASD and the significance of collaborative advocacy in creating a supportive environment.

Join us for this engaging episode that not only celebratespersonal milestones but also sheds light on the essential research and community initiatives aimed at enhancing the lives of those affected by FASD.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com.

If you would like to volunteer for Emily’s research, pleasereach out to her at Emily.hargrove.fasd@gmail.com.

As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.

#Fasd, #Fetal Alcohol Spectrum Disorder, #Spirituality,#Doctoral Research, #Emily Hargrove, #Faith Development, #Neurodiversity, #Holistic Perspective, #Spiritual Abuse, #Life Tapestry Exercise, #Advocacy, #FasdChangemakers International, #Adult Leadership Collaboration, #Data Collection,#Community Support, #Stigma, #Personal Stories, #Research Participation,#Educational Resources, #Child Development

In this enlightening episode of Living with FASD, host PattiKasper welcomes back Dr. David Gilbert from the University of Salford for a deep dive into his groundbreaking research on Fetal Alcohol Spectrum Disorders (FASD) and the justice system. After a year since their last conversation, Gilbert shares updates on his collaborative research efforts aimed atunderstanding the complexities of suggestibility and confabulation in individuals with FASD, particularly in the context of police encounters.

The discussion highlights the critical need for educationand awareness among law enforcement and forensic professionals, as Gilbert emphasizes that many individuals with FASD are not inherently criminal but may face challenges that lead to misunderstandings in high-pressure situations. Patti and Gilbert explore the nuances of confabulation versus intentional lying, shedding light on how memory can be affected by stress and trauma, and the implications this has for legal proceedings.

Listeners will gain valuable insights into the importance ofincluding family testimonies in legal contexts and the necessity for accommodations that support individuals with FASD. As they discuss the upcoming FASD research conference, Gilbert expresses his excitement about connecting with families and professionals alike to foster a more inclusive understanding of FASD.

Join us for this thought-provoking episode that challengesstigmas and advocates for a compassionate approach to individuals living with FASD.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her atlivingwithfasdpodcast@gmail.com.

# DrDavidGilbert #FASDResearch #Collaboration #Understanding#Suggestibility #Confabulation #TheRoleofLawEnforcementinFASD #FetalAlcoholSpectrumDisorders #USalford #SeattleFASDConference #FASDResearchConference #FASD #FetalAlcoholSyndrome

In this episode of Living with FASD, host Patti Kasper welcomes back Deb Evenson to discuss the long-awaited release of their animated film, "Eight Keys for Adults Living with FASD." Deb recounts the journey of creating the film, which is rooted in years of experience and collaboration with adults living with fetal alcohol spectrum disorders (FASD). The conversation highlights the importance of understanding the unique challenges faced by adults with FASD, particularly during transitional life stages. Deb shares insights from successful adults who contributed to the film, emphasizing the key strategies they found beneficial in navigating life with FASD.

Listeners will gain valuable perspectives on advocacy, self-awareness, communication, and the significance of trusting relationships. The episode also touches on the importance of structure and realistic expectations for individuals with FASD. As Patti and Deb celebrate the film's release, they encourage everyone to view and share this important resource, which aims to inspire and support the FASD community.

As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and education.

The link to the original 8 Magic Keys - FASD is:
https://youtu.be/8YgluFJdFpY?si=ZyQlwGE1ilN7oHQk

The link to the sequel, as shown in this episode is (shared with permission of the Alaska Center for FASD):
https://youtu.be/mlQ_HUjHLy0?si=aWSwfronUGELsTGs

For more information, you can reach Patti at livingwithfasdpodcast@gmail.com.

As always, please remember to like, share and subscribe to my channel.

See you next week for another Candid Conversation with Patti Kasper on Living with FASD.

In episode 73 of Living with FASD, host Patti Kasper engages in a heartfelt panel discussion with returning guests Antonia Rathbun Lindsay and R.J. Formanek.

Together, they explore the profound impact of receiving an FASD diagnosis on one's identity and sense of self. Both R.J. and Patti share their personal journeys, reflecting on how their diagnoses have shaped their understanding of disability and self-acceptance. The conversation delves into the nuances of invisible disabilities, the importance of community support, and the journey towards self-advocacy.

Listeners will find solace in the shared experiences of navigating societal stigma, the quest for understanding, and the beauty of embracing one's uniqueness. This episode emphasizes the power of storytelling and connection, encouraging others to reflect on their own identities and experiences with FASD.

As always, please remember to like, share, and follow the Living with FASD podcast, as your support helps spread awareness and understanding.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com.

In this episode, Gina and Patti catch up on the latestdevelopments in the world of FASD (Fetal Alcohol Spectrum Disorders). Gina shares her ongoing work with the Alaska Center for FASD, including the positive reception of their new film aimed at raising awareness and her recent experiences advocating in Juneau. They discuss the importance of reducing stigma surrounding FASD, the significance of peer support, and the evolving understanding of disability insociety. With heartfelt stories and insights, this episode offers hope and encouragement for those navigating the challenges of FASD.

As always, please remember to like, share and follow the Living with FASD podcast, as this will help others find it.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com.