In this engaging episode of Living with FASD, host PattiKasper welcomes back the dynamic Dr. Christie Petrenko from the University of Rochester. Together, they delve into the exciting advancements in research aimed at supporting adults with Fetal Alcohol Spectrum Disorders (FASD). Dr.Petrenko shares insights about the innovative app, My Health Coach, designed specifically for adults living with FASD, highlighting its features such as a health coach chatbot, medication reminders, and personalized tracking tools.

The discussion explores the collaborative effort behind theapp’s development, emphasizing the importance of user feedback and the role of the Adult Leadership Collaborative of FASD Changemakers in co-designing this essential resource. Dr. Petrenko outlines the app's capabilities, including symptom tracking and daily check-ins, which address the unique challenges faced by adults with FASD.

Patti and Christie also touch on another exciting initiative, the Thrive program, aimed at empowering young adults throughpersonalized support and goal setting. Listeners will learn about the importance of community engagement in research and how individuals can get involved in both the My Health Coach app study and the Thrive program.

This episode is a treasure trove of information for anyoneinterested in the intersection of technology, health, and FASD advocacy. Join us for this enlightening conversation that not only sheds light on groundbreaking research but also encourages community participation in shapingthe future of support for individuals with FASD.

As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her at livingwithfasdpodcast@gmail.com or visit her website at patriciakasper.com.

To participate in the research discussd in today's show, visit:

My Health Coach App study:

• https://redcap.link/6mg9srra

• 2 min video explaining study: https://youtu.be/mk5stwb8COg

• email: myhealthcoach@urmc.rochester.edu

FMF Connect Pro Study (Mental HealthProviders – US only)

No prior knowledge or experience with FASD required! Providers receive accessible trainings on how to screen and diagnose FASD and support families using the FMF Connect app· Receive free continuing education credits for participating in training To learn more: https://providers.fmfconnect.com/

· Email: fmfconnect@urmc.rochester.edu

Nursing Study (NP program directors)

Needs assessment survey with directors of Nurse Practitioner training programs across the US.

Results will help inform development of accessible training materials for NP trainees

For more nformation: lynn_cole@urmc.rochester.edu

FASD Stigma Documentary

Aiming for release September 2025. We’re working on raising the last $50k to film final shots, add animation, and put on finishing touches. Reach out: christie_petrenko@urmc.rochester.edu withany ideas for last fundraising push, showings, or distribution.

#MyHealthCoach #FASD #DrChristiePetrenko #ThriveProgram#FetalAlcoholSpectrumDisorders #Advocacy #Research #LivingWithFASDPodcast

In this enlightening episode of Living with FASD, host PattiKasper reconnects with Dr. Jerrod Brown for a fascinating exploration of psychogastroenterology and its implications for individuals living with Fetal Alcohol Spectrum Disorders (FASD). Dr. Brown shares his insights on the critical connection between gut health and mental well-being, emphasizing how the gut-brain axis plays a pivotal role in mood, sleep, and overall health.

The conversation dives into the emerging research linkinggut health issues with FASD, shedding light on how dietary choices, stress, and lifestyle factors can significantly impact the well-being of those affected.

Dr. Brown discusses practical strategies for improving gut health, including the importance of nutrition, sleep hygiene, and the timing of meals, while also addressing the challenges faced by individuals with FASD in maintaining healthyeating habits.

Listeners will gain valuable knowledge on theinterconnectedness of mental health and gut function, as well as actionable steps they can take to foster better health outcomes. Dr. Brown's passion for this field of study shines through, making this episode a must-listen for anyone interested in understanding the holistic approach to health for those living with FASD.

As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her atlivingwithfasdpodcast@gmail.com.

#Psychogastroenterology #GutHealth #FASD #MentalHealth #Nutrition #GutBrainAxis #FetalAlcoholSpectrumDisorders #DrJerrodBrown#LivingWithFASD

In this captivating episode of Living with FASD, host Patti Kasper reunites with the insightful Antonia Rathbun Lindsay to celebrate the impending release of her highlyanticipated book, Parenting Your Porcupine: Tools for Working with Children with FASD, Drug Effects, and Other Neurodiversities. Antonia shares her journey of crafting this essential resource, drawing from her extensive experience inthe field and her personal insights as a caregiver.

The conversation delves into the significance ofunderstanding the unique challenges faced by children with FASD and the importance of bridging the gap between professionals and families. Antonia discusses the innovative concept of "body culture," emphasizing how sensory dysregulation affects behavior and communication in children. Listeners will gain valuable perspectives on the necessity of empathy and accommodation in interactions with children who have neurodevelopmental differences.

Patti and Antonia explore the critical need for a commonlanguage that fosters collaboration between parents and professionals, ensuring that both perspectives are valued in the journey of raising children with FASD.

This episode not only highlights the practical tools and strategies found in Antonia's book but also underscores the power of storytelling and shared experiences in creating meaningful change.

Join us for this enlightening discussion that promises toempower families and professionals alike. As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.

If you would like to reach Patti, you can email her atlivingwithfasdpodcast@gmail.com.

#ParentingYourPorcupine #AntoniaRathbunLindsay #FASD#Neurodiversity #LivingWithFASD #Empathy #Collaboration #BodyCulture#ToolsForParents #FASDCommunity