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Surviving Myotonic Dystrophy
- A Mother’s Struggle to Care for Her Family with a Rare Disease
- Narrated by: Geri Murray
- Length: 5 hrs and 21 mins
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Surviving Myotonic Dystrophy
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Publisher's summary
Surviving Myotonic Dystrophy is about Ann S. Woodbury’s struggle to care for her family who have a rare disease - myotonic dystrophy (DM).
Ann’s four children and her husband have DM. In 1998, at the time of the diagnosis, even the doctors didn’t know all of the effects of DM or that it was a brain disorder.
Listening to this book will take you on a journey of understanding this disease and its effects on Ann’s family members.
Ann also includes tips and lessons learned to help parents/caregivers maintain their own health and peace of mind while caring for loved ones.
You will learn:
- DM is a multi-systemic inherited disease that affects just over one in 2,100 people in the US.
- DM is one of the most variable and complicated of the known disorders.
- How isolating it can be to have a family that doesn’t fit in and how you can better cope with this reality.
- What it means to “take care of yourself”.
- Why you should be mindful about interacting with people whose behavior seems different from yours.
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-
Story4.5 out of 5 stars 32
Imagine finding a glimmer of good news in a diagnosis of Alzheimer's. And imagine how that would change the outlook of the five million Americans who suffer from Alzheimer's disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who's been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer's by defining it as a spectrum disorder - like autism, Alzheimer's is a disease that affects different people differently.
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5 out of 5 stars
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Aging with Grace
- By Lisa F on 05-19-21
By: Gayatri Devi MD
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The Caregiver's Guide to Dementia
- Practical Advice for Caring for Yourself and Your Loved One
- By: Gail Weatherill RN CAEd
- Narrated by: Ann Osmond
- Length: 4 hrs and 45 mins
- Unabridged
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Overall5 out of 5 stars 108
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Performance5 out of 5 stars 96
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Story5 out of 5 stars 93
When caring for someone with dementia, your own mental stability can be the single most critical factor in your loved one’s quality of life. The Caregiver's Guide to Dementia brings practical and comprehensive guidance to understanding the illness, caring for someone, and caring for yourself. From understanding common behavioral and mood changes to making financial decisions, this book contains bulleted lists of actions you can take to improve your health and your caregiving.
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5 out of 5 stars
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As a RN myself I HIGHLY HIGHLY recommend
- By Amazon Customer on 01-13-21
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Surviving and Thriving with an Invisible Chronic Illness
- How to Stay Sane and Live One Step Ahead of Your Symptoms
- By: Ilana Jacqueline
- Narrated by: Lori Prince
- Length: 5 hrs and 14 mins
- Unabridged
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Overall4.5 out of 5 stars 71
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Performance4.5 out of 5 stars 64
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Story4.5 out of 5 stars 64
Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.
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5 out of 5 stars
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Great Reference Guide!
- By Heather D on 03-21-18
By: Ilana Jacqueline
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A Bittersweet Season
- Caring for Our Aging Parents - And Ourselves
- By: Jane Gross
- Narrated by: Kate Reading
- Length: 15 hrs and 35 mins
- Unabridged
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Overall4.5 out of 5 stars 84
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Performance4.5 out of 5 stars 73
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Story4.5 out of 5 stars 75
In telling the intimate story of caring for her aged and ailing mother, Jane Gross offers indispensable, and often surprising, advice for the rapidly increasing number of adult children responsible for aging parents. Gross deftly weaves the specifics of her personal experience with a comprehensive resource for effectively managing the lives of one's own parents while keeping sanity and strength intact.
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5 out of 5 stars
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Exceptional, thought-provoking, liberating!
- By Anne on 08-10-11
By: Jane Gross
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Changing the Way We Die
- Compassionate End-of-Life Care and the Hospice Movement
- By: Sheila Himmel, Fran Smith
- Narrated by: Coleen Marlo
- Length: 6 hrs and 49 mins
- Unabridged
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Overall4.5 out of 5 stars 72
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Performance4.5 out of 5 stars 62
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Story4.5 out of 5 stars 62
There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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3 out of 5 stars
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Sadly, not very engaging.
- By Debra S. Long on 06-16-18
By: Sheila Himmel, and others
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- By: Angela Garbes
- Narrated by: Roxana Ortega, Angela Garbes
- Length: 7 hrs
- Unabridged
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Overall4.5 out of 5 stars 695
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Performance4 out of 5 stars 604
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Story4.5 out of 5 stars 600
What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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5 out of 5 stars
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Microchimerism - interesting at first, then profoundly healing
- By Emily Virgil on 09-10-18
By: Angela Garbes
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Black Man in a White Coat
- A Doctor's Reflections on Race and Medicine
- By: Damon Tweedy M.D.
- Narrated by: Corey Allen
- Length: 8 hrs and 44 mins
- Unabridged
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Overall4.5 out of 5 stars 966
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Performance4.5 out of 5 stars 865
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Story4.5 out of 5 stars 868
One doctor's passionate and profound memoir of his experience grappling with racial identity, bias, and the unique health problems of Black Americans. When Damon Tweedy first enters the halls of Duke University Medical School on a full scholarship, he envisions a bright future where his segregated, working-class background will become largely irrelevant. Instead he finds that he has joined a new world where race is front and center.
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5 out of 5 stars
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Absolutely eye opening!
- By Kelene on 02-23-16
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The New Normal
- A Roadmap to Resilience in the Pandemic Era
- By: Jennifer Ashton
- Narrated by: Jennifer Ashton
- Length: 8 hrs and 42 mins
- Unabridged
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Overall4.5 out of 5 stars 27
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Performance4.5 out of 5 stars 26
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Story4.5 out of 5 stars 26
From Dr. Jennifer Ashton comes a doctor’s guide to finding resilience in the time of COVID, while staying safe and sane in a rapidly changing world. The New Normal is a holistic road map through the ongoing struggles of the pandemic, providing the guidance you need to navigate this unsettling time and take charge of your future well-being.
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5 out of 5 stars
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Live Each Day Alive
- By Barbara A. Badalewski on 06-02-23
By: Jennifer Ashton
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Early
- An Intimate History of Premature Birth and What It Teaches Us About Being Human
- By: Sarah DiGregorio
- Narrated by: Ann Marie Gideon
- Length: 9 hrs and 47 mins
- Unabridged
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Overall4.5 out of 5 stars 36
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Performance4.5 out of 5 stars 31
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Story4.5 out of 5 stars 31
The heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human? Nearly 20 years ago, Dr. John D. Lantos wrote The Lazarus Case, a seminal work on ethical dilemmas in neonatology. He described the NICU as “a strong, strange, powerful place”. The
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5 out of 5 stars
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Gripping read for this late preterm infant mom
- By R. Ash on 08-08-21
By: Sarah DiGregorio
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Dude, You're Gonna Be a Dad!
- How to Get (Both of You) Through the Next 9 Months
- By: John Pfeiffer
- Narrated by: Mike Chamberlain
- Length: 4 hrs and 34 mins
- Unabridged
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Overall4 out of 5 stars 569
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Performance4 out of 5 stars 491
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Story4 out of 5 stars 491
There are approximately 3,712 ways for a guy to look stupid during pregnancy-this book's here to help you avoid all (most) of them. And here's your first hint: Focus on what you can be doing for her rather than what's happening to her. She's pregnant. She knows that. You know that. And her one 152 baby books tell her exactly what she can expect. Your job is to learn what you can do between the stick turning blue and the drive to the delivery room to make the next nine months go as smoothly as possible.
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3 out of 5 stars
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A fun spirited, yet lacking book for the everyman
- By Frank on 12-10-13
By: John Pfeiffer
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Confessions of a GP
- By: Benjamin Daniels
- Narrated by: Eamonn Riley
- Length: 6 hrs and 1 min
- Unabridged
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Overall4 out of 5 stars 49
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Performance4.5 out of 5 stars 35
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Story4 out of 5 stars 34
Benjamin Daniels is angry. He is frustrated, confused, baffled and, quite frequently, very funny. He is also a GP. These are his confessions.A woman troubled by pornographic dreams about Tom Jones. An 80-year-old man who can't remember why he's come to see the doctor.
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5 out of 5 stars
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Very enjoyable
- By PCF on 05-27-17
By: Benjamin Daniels
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It Never Goes Away
- Gender Transition at a Mature Age
- By: Dr. Anne L. Koch
- Narrated by: Dr. Anne L. Koch
- Length: 7 hrs and 51 mins
- Unabridged
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Overall4 out of 5 stars 59
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Performance4.5 out of 5 stars 50
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Story4 out of 5 stars 50
If you are transgendered, the feeling of wanting your body to match the sex you feel you are never goes away. For some, though, especially those who grew up before trans people were widely out and advocating for equality, these feelings were often compartmentalized and rarely acted upon. Now that gender reassignment has become much more commonplace, many of these people may feel increasing pressure to finally undergo the procedures they have always secretly wanted.
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1 out of 5 stars
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Typical upper class trans-snobbery
- By jon rios on 05-03-20
By: Dr. Anne L. Koch
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The Confident Parent
- A Pediatrician's Guide to Caring for Your Little One - Without Losing Your Joy, Your Mind, or Yourself
- By: Dr. Jane Scott, Stephanie Land
- Narrated by: Susan Boyce
- Length: 8 hrs and 17 mins
- Unabridged
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Overall4.5 out of 5 stars 23
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Performance4.5 out of 5 stars 23
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Story5 out of 5 stars 23
We've all heard the complaint from parents: They're more overwhelmed than ever before - juggling demands on their time as well as conflicting advice from family, friends, frenemies, and "experts" on how to achieve parental perfection, or risk jeopardizing their little one's future happiness. Pediatrician Jane Scott has seen this parental anxiety up close, and in The Confident Parent she shares advice on how to cut through the confusion.
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1 out of 5 stars
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Read by a computer
- By Megan Ormston on 11-14-18
By: Dr. Jane Scott, and others
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Women Who Think Too Much
- How to Break Free of Overthinking and Reclaim Your Life
- By: Susan Nolen-Hoeksema
- Narrated by: Sheryl Bernstein
- Length: 2 hrs and 58 mins
- Abridged
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Overall4 out of 5 stars 524
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Performance4 out of 5 stars 432
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Story4 out of 5 stars 435
It's not a surprise that our fast-paced, overly analytical culture is pushing people - especially women - to spend countless hours thinking about negative ideas, feelings, and experiences. Renowned psychologist Dr. Susan Nolen-Hoeksema calls this "overthinking". Her groundbreaking research shows that an increasing number of women - more than half of those in her extensive study - are doing it too much and too often, hindering their ability to lead a satisfying life.
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1 out of 5 stars
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Generic tools for overcoming overthinking
- By letlet on 01-09-19
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Stopping Stress Before It Stops You
- A Game Plan for Every Mom
- By: Kevin Leman
- Narrated by: Lucille Cole
- Length: 5 hrs and 47 mins
- Unabridged
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Overall4.5 out of 5 stars 34
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Performance4 out of 5 stars 33
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Story4.5 out of 5 stars 33
You can reduce stress and enjoy your life! Homemaker, career woman, wife, supermom—sometimes the roles you have to fill all at once can get to be too much. Internationally known psychologist Dr. Kevin Leman has seen scores of women who are overcome by stress. With humor, insight, and practical solutions, this best-selling author helps you manage the six stress points in your life: kids, career, husband, housework, money, and crammed schedules.
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1 out of 5 stars
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He assumes you're married to an idiot!
- By Karen on 06-04-11
By: Kevin Leman
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Your Heart, My Hands
- An Immigrant's Remarkable Journey to Become One of America's Preeminent Cardiac Surgeons
- By: Arun K. Singh MD, John Hanc - contributor, Delos Cosgrove MD - foreword
- Narrated by: Shridhar Solanki
- Length: 8 hrs and 39 mins
- Unabridged
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Overall5 out of 5 stars 27
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Performance5 out of 5 stars 23
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Story5 out of 5 stars 23
Leaving a life marked by crippling setbacks and his father's doubt, in 1967 a 20-something doctor from India arrived in America with only five dollars and the desire to claim his American dream. Faced with an entirely new culture, racism, and the lasting effects of disabling childhood injuries, through hard work and perseverance he overcame all odds. Now having performed over 15,000 open-heart surgeries, more than nearly every surgeon in history, Dr. Singh reflects on his most memorable patients and his incredible personal life.
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5 out of 5 stars
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Remarkable!
- By Stacey on 12-01-22
By: Arun K. Singh MD, and others
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How to Be Sad
- Everything I’ve Learned About Getting Happier by Being Sad
- By: Helen Russell
- Narrated by: Helen Russell
- Length: 10 hrs and 28 mins
- Unabridged
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Overall4.5 out of 5 stars 33
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Performance4.5 out of 5 stars 30
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Story4.5 out of 5 stars 31
Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.
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2 out of 5 stars
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More an self biography
- By Jaime Murillo on 04-27-24
By: Helen Russell
What listeners say about Surviving Myotonic Dystrophy
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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Overall5 out of 5 stars
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Performance5 out of 5 stars
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Story5 out of 5 stars
- LJ
- 12-31-21
Thank You for Sharing
I have great compassion for your family demands and service. Thanks for sharing part of your story. I like your ideas about taking care of the low level of the hierarchy needs. We care takers often neglect our own basic needs. It's a challenging balance.
Thanks for your courage and persistence in so many areas. You are a great example to others of us who have many demands also. Sharing your medical knowledge will help many people.
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