Mostrando títulos en Personas con Discapacidades

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

This true love story follows Lars and Amanda, two twenty-somethings who fall deeply in love, with big plans for their future together, only to have the rug pulled out from beneath them when Lars is diagnosed with Acute Lymphoblastic Leukemia at age 24. They must learn to adapt to "medical life", putting their hopes and dreams on pause, navigating side effects and difficult emotions, and missing out on the beauty of every day moments that some may take for granted.

Mike grew up on a tree farm in Missouri and spent his childhood on horseback with dreams of becoming a cowboy. The connection he formed with horses shaped his earliest understanding of freedom and purpose. But as adulthood beckoned, he traded his saddle for a suit, building a thriving career and raising a family while his childhood aspirations faded into memory. When a devastating diagnosis of a rare genetic neurological disease struck in his mid-thirties, everything changed.

Take hold of your own personal journey. Make peace with it. Peace is truth. If you suffer from bipolar disorder (also called manic-depression), or if you love someone who does, then you already know how frustrating and baffling this mental illness can be. This book assures you that there is great hope—through all of life's circumstances. Even though bipolar disorder may put us through extreme challenges each and every day, if we are rigorous about taking the right medications and keeping an appropriate lifestyle, we can effectively stabilize the disease and choose a good life.

A powerful journey from star athlete to sudden paralysis to creative awakening, award-winning science fiction writer Nnedi Okorafor shows that what we think are our limitations have the potential to become our greatest strengths. Nnedi Okorafor was never supposed to be paralyzed. A college track...

This memoir was written to honor my youngest brother’s influence over my life—the good, the bad, and the ugly, of living with a Down Syndrome sibling. It tells the story of the children of my family, despite our parents’ frailties, remaining committed to each other through life’s many changes and separations. Who I am today is directly related to who I needed to become.

A Father, His Son, and an Unrelenting Quest for a Cure At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice...

The Life-Altering Event On October 23, 2000, at the age of thirty-six, Aithal experienced a massive stroke, which doctors attributed to an AVM (arteriovenous malformation) of the Pons area. He was given a fifty percent chance of survival. The stroke occurred at his Southern California home, and his wife quickly called 911, resulting in a timely emergency response that Aithal credits with saving his life. In the initial critical days, doctors focused on stabilizing him and managing a swollen brain with prednisone. The stroke left his right side frozen and caused him to lose his speech, ...

“Compelling…A bracing work of art and a loving tribute” (Los Angeles Times), this propulsive, stunning book illuminates the experience of living with schizophrenia like never before. Sandy Allen did not know their uncle Bob very well. As a child, Sandy had been told Bob was “crazy,”...

The New York Times bestselling memoir of the 27-year-old Boston Marathon bombing survivor and the basis of the major motion picture starring Jake Gyllenhaal. When Jeff Bauman woke up on Tuesday, April 16th, 2013 in the Boston Medical Center, groggy from a series of lifesaving surgeries and...

Randy Pierce was 22 years old, fresh out of college, and thriving at an excellent job. His promising future seemed certain. Then, in just two short and devastating weeks, an unexpected neurological disorder plunged him into blindness. Randy, believing his future had vanished in the blink of an eye, wondered, “How can my life have meaning now?” Before he could fully answer, he had further to fall. Blindness was far from the worst challenge he would face. See You at the Summit is Randy’s uplifting personal account of his journey through adversity to accomplishment.

All I ever wanted was to be normal. But when I was diagnosed with a horrible disease, my life became filled with insurmountable challenges far from normal. Terrified I wouldn’t have a life worth living, I went to an academy where everything changed for me. I was exhilarated to discover my life was just beginning. Living without my parents and dealing with my disease alone scared me. But after making friends, my temporary home was better than I could have imagined

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

NATIONAL BESTSELLER It never gets better, but it does get easier. That's the first thing Roz says to anyone who asks him for advice. Anyone who's fighting like hell, just hanging on or putting the pieces back together. When you're broken, fixed becomes an obsession. Roz is a multi-platform...

This audiobook provides insight into the life of a neurodiverse Black girl from the Midlands as she embarks on her journey through the UK school system. This book unveils and highlights the unique experiences of neurodiverse people of color and the many challenges they face. In this book, 24-year-old British-Nigerian Oluseyitan Ojedokun gives an account of her struggles through school. She shares the many dreams and goals she had, despite the feeling of constant dismay.

My stroke occurred on December 10, 2021. During the hours that my mind was deteriorating, my life was sent down an inevitable pathway that would include emergency medical intervention, brain surgery, and months of therapy addressing physical and emotional health as well as speech and cognitive skills. What was not inevitable in all of this was the unique inner duality that emerged. Buddy (right brain) embraced the realm of peace and tranquility. Sir! (left brain) controlled the management of the brain: order, details, time, and knowing the feeling of being in charge.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

This is the true story of a very special man whose life was suddenly and forever changed by a rare disease. Dealing with a severe backache for three days, he was taken to an emergency room. For five grueling months, his dignity, as well as his very self was stripped away. Trapped in a system that all too often is not healthcare, but Healthcareless.

Daddy Won’t Let Mom Drive the Car: True Tales of Parenting in the Dark is a book of short vignettes - most of them lighthearted, a few more serious - about my life as the blind mother of a sighted daughter. Welcome to my journey! My blindness has changed a few practical logistics. But in the end, kids are kids and moms are moms, and the dents and delights of parenthood are universal.

While speaking at a memorial event in 2006, Siri Hustvedt suffered a violent seizure from the neck down. Despite her flapping arms and shaking legs, she continued to speak clearly and was able to finish her speech. It was as if she had suddenly become two people: a calm orator and a shuddering wreck. Then the seizures happened again and again. The Shaking Woman tracks Hustvedt's search for a diagnosis, one that takes her inside the thought processes of several scientific disciplines, each one of which offers a distinct perspective on her paroxysms but no ready solution.