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Happy to have two good friends Ty met through Twitter (X) of all places while going through his long Covid journey. Two feisty Canadian women who hosted a spirited weekly Twitter (X) audio space to amplify education and open conversations on public health, human rights, and clean air - and who have continued their advocacy well beyond Twitter (X).

Thousands would join live and ten's of thousands would listen to their recorded spaces. As cancer disrupted Ty's life, their relationship became a true friendship with many comfort gifts from Toronto to Denver.

We cover many topics including some exciting news about their upcoming podcast; ReSisters Podcast: “No Ostriching Here.”! (Because, you know, The ReSisters don’t stick their heads in the sand for anyone.) We cover their advocacy and Ty's, including his "Man in the Robe Productions" long Covid parody videos as part of his Seeking Boston Marathon online presence.

Christine Cooper & MJ Nabuurs were excited to see the return of "guess the movie quotes." Nikki spreads awareness on National Suicide Prevention Awareness Month.

We love this episode - hope you will too!

Footnote: We fully support an individual's right to protect themselves against Covid whether that's masking, clean air, or various degrees of isolation measures. With cancer and long Covid, Ty's experiences outside the home are limited and often met with "crashes" that can last 4-5 days. We believe in "finding light in darkness" however little that experience may be. Some days that's harder than others to achieve.

Ty's long Covid journey started in early 2020 with a mild onset of Covid but within six weeks, he could no longer run. He endured a 100 day fever that year that lead to a long medical journey seeking answers at National Jewish Health, Mayo Clinic, and RTHM Long Covid Clinic. His long Covid diagnosis includes damage to his body; neuropathy, vasculitis, endothelial and mitochondria damage, blood clots, and inflammation. With a broken immune system his oncology team said that it either caused or exacerbated his stage IV cancer.

The Butterfly Pavilion Podcast--Finding Light in Darkness

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Episode four "B-Side" interview with nephew Henry. His first podcast and our first guest on The Butterfly Pavilion Podcast. In a short pod, Henry talks about his summer, his first day at school, and how to eat an Oreo.

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Season 1, Ep 4 of The Butterfly Pavilion Podcast; "Tree Hugger." In this episode, Nikki and Ty discuss fan mail (YES, we are now getting fan mail!,) introduction of the "cry jar," Nikki opening herself around her therapy journey, memories of Nikki growing up, and Nikki tests her dad, Ty with current lingo. As usual, Ty provides an update on his cancer treatment and fluctuating PSA (prostate specific antigen) levels. Ty shares quote from America's Got Talent's "Nightbirde."

https://www.youtube.com/watch?v=CoNCairOJ_M

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Ty surprises Nikki with movie trivia enhanced by his movie character impersonations. As usual, he also provides a cancer update on the clinical trial we talked about in the last episode. Nikki discusses with Ty the awkward conversations and misconceptions around stage IV cancer.

Thanks to Ty's brother and Nikki's uncle Tim for the new BPPod music.

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Second episode of "The Butterfly Pavilion" podcast. In this episode, Ty provides an update on his stage IV cancer treatment that took a setback. Daughter Nikki has big news and Ty talks about still grabbing slices of life with a surprise delivery of a Blackstone grill and picking up a paintbrush for the first time in years.

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First episode of "The Butterfly Pavilion" podcast filmed and recorded in Santa Fe, New Mexico. Nikki Godwin talks with her dad about his long covid and stage IV cancer journey and how to still manage to live live with a terminal disease.