Episodios

  • 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
    Apr 30 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).

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    13 m
  • 167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research
    Apr 28 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.

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    13 m
  • 166: An Interview With MDA 2025 Patient Ambassador Lily Sander
    Apr 15 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.

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    15 m
  • 165: An Interview With Duchenne Expert Katherine Mathews, MD, of the University of Iowa
    Apr 11 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katherine Mathews, MD, winner of the Muscular Dystrophy Association's 2025 Legacy Award for Achievement in Clinical Research for her contributions to understanding and treating genetic disorders affecting the neuromuscular system.

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    11 m
  • 164: An Interview With Generalized Pustular Psoriasis Expert Arash Mostaghimi, MD
    Apr 7 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Arash Mostaghimi, MD, an associate professor of dermatology and a practicing physician at Boston's Brigham and Women's Hospital. Dr. Mostaghimi is a recognized expert on generalized pustular psoriasis (GPP).

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    9 m
  • 163: An Interview With Clinical Hematologist and Professor Dr. Luke Chen
    Apr 1 2025

    Rare Disease Advisor correspondent Tori Rodriguez interviews clinical hematologist and professor Luke Chen, MD, about IgG4-related disease and how it mimics various malignancies.

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    16 m
  • 162: An Interview With John Anderson, MD, Expert on Hereditary Angioedema
    Mar 17 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews John Anderson, MD, chief research officer at AllerVie Clinical Research, on the complexities of diagnosing and treating hereditary angioedema.

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    11 m
  • 161: An Interview With Retired NFL Athlete and Amyloidosis Patient Advocate Art Still
    Mar 13 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Art Still, former defensive end for the Kansas City Chiefs and an NFL Hall of Famer who's now a patient advocate dedicated to raising awareness about amyloidosis.

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    17 m
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