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Rare Care Podcast

Rare Care Podcast

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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.Copyright © 2022 Haymarket Media, Inc. All Rights Reserved Ciencia Higiene y Vida Saludable
Episodios
  • 207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!

    207: An Interview With Katharine Provencher, Director of Patient Advocacy at IgG4Ward!
    Jan 12 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Katharine Provencher, director of patient advocacy at IgG4Ward!, a nonprofit that advocates for patients and caregivers affected by IgG4-RD.
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    11 m
  • 206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC

    206: An Interview With Cecilia Dueñas, PsyD, on Discrimination and Stigma She Encountered Before Getting Diagnosed With PBC
    Jan 5 2026

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cecilia Dueñas, PsyD, on the PBC Research Foundation, and the discrimination and stigma she faced for years before getting diagnosed with the disease.
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    12 m
  • 205: An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo Green

    205: An Interview With Sickle Cell Disease Patient Advocate Golie-Lorenzo Green
    Dec 30 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Golie-Lorenzo Green, whose lifelong battle with sickle cell disease led him to advocate for others with the debilitating illness.
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    13 m
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