Rare Care Podcast

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  • Resumen

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Ciencia Hygiene & Healthy Living
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Episodios
  • 168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation

    168: An Interview WIth Lisa Butler, CEO of the GBS-CIDP Foundation
    Apr 30 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Lisa Butler, CEO of the GBS-CIDP Foundation, on what her organization is doing for patients with chronic inflammatory demyelinating polyneuropathy (CIDP).
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    13 m
  • 167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research

    167: An Interview With MDA Patient Advocate Donavon Decker, WInner of the 2025 MDA Legacy Award for Community Impact in Research
    Apr 28 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, talks to Donavon Decker, who has limb-girdle muscular dystrophy. Decker is the winner of the 2025 MDA Legacy Award for Community Impact in Research.
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    13 m
  • 166: An Interview With MDA 2025 Patient Ambassador Lily Sander

    166: An Interview With MDA 2025 Patient Ambassador Lily Sander
    Apr 15 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews 17-year-old Lily Sander with Charcot-Marie-Tooth disease. The Muscular Dystrophy Association has named Sander its 2025 MDA Patient Ambassador.
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    15 m
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