This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!

Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.

Maya, Caitlin, and Elliot are back to discuss stuttering on Survivor Season 48, Episode 8, and the latest twists and turns in the episode. From alliances and drama to strategic plays and surprise advantages, they break down all the key moments you won't want to miss.

In this episode

Register for Proud Stutter's Stuttering Awareness Week event on May 8

Use promo code PROUD25 at checkout for a free ticket.

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Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Matt Didisheim, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Jason Smith, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.

Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impact

If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk.

Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.

Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.

Maya is back with Caitlin Dietz and Eliot Goldstein to talk about Episodes 6 and 7 of Survivor Season 48. Highlights include discussions about Mitch, a contestant on the show who stutters, his social game and personal story, as well as strategic plays and alliances forming among the castaways.

In the episode

Save the date for Proud Stutter's Stuttering Awareness Week event happening in San Rafael, CA on May 8. Details will be released soon!

Check out the recap of Proud Stutter's latest event in Chicago in the Daily Northwestern.

Maya is joined again by friends Caitlin Dietz, her childhood friend, and Eliot Goldstein, friend and person who stutters to talk about stuttering on the current season of Survivor!

Check out our feed for a recap of Episode 3!

Maya interviews Philip, a contestant from Deal or No Deal Island, who shares his experience with stuttering on the reality TV show and how stuttering has impacted his life and career. Philip talks about the audition process, navigating gameplay, and forming relationships with other contestants, including Survivor's Parvati. He also touches on his background as a first-generation American and educator, his transition to becoming a personal trainer, and his aspirations in motivational speaking. Catch Deal or No Deal Island on Tuesdays on NBC.

Announcements & Updates from Proud Stutter

• Support a filmmaker who stutters - Help Michael Turner celebrate the 10 year anniversary of his film during Stuttering Awareness Week
• April 9 - Register to Proud Stutter's free event in Chicago with Northwestern University
• May 8 & May 15 - Save the date for Proud Stutter's upcoming documentary events in San Rafael, CA with CA Film

Partnership corner

• March 29 & March 30: Music and Theater tell the story of life with a stutter in the premiere of Tyler Eschendal’s solo show ACTIONS.
• April 1: Enroll for SPACE's Community & Arts programs this Spring. Learn more here.

Maya is joined by friends Caitlin Dietz, her childhood friend, and Eliot Goldstein, friend and person who stutters to talk about stuttering on the current season of Survivor!

Elia Powers is a professor, podcast reporter and the author of 'Performing the News, Identity, Authority, and the Myth of Neutrality' exploring how journalists from historically marginalized groups navigate unspoken norms in the industry. Elia shares his personal journey as a journalist who stutters and his research on how the media landscape is changing, particularly through the inclusivity offered by podcasting. The conversation delves into the challenges and opportunities faced by journalists with non-standard speech, highlighting the importance of diverse voices in media.

In this episode

Elias book Performing the News: Identity, Authority, and the Myth of Neutrality

We’re grateful to Elia for sharing his story with us.

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Big thanks to Proud Stutter's recurring supporters: Jennifer Bolen, Jerry Slaff, Josh Compton, Pablo Meza, Matt Didisheim, Alexandra Mosby, Ingo Helbig, Jonathan Reiss, Paige McGill, Wayne Engebretson, Swathy Manavalan, and Martha Horrocks.

Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impact

If you can become a monthly donor at $10 or more, we’ll give you access to ad-free episodes and bonus Proud Stutter+ content as a token of our thanks! Make your tax deductible gift at https://bit.ly/3xLezBk.

Proud Stutter is proudly fiscally sponsored by Independent Arts & Media.

Want to lean more about what Proud Stutter has to offer? Sign up here to stay in the loop and take advantage of our upcoming events, actions, and educational materials.