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We share a hard summer of bathroom destruction, broken trust with family, and a support group that didn’t get it, then find relief in small wins: a playful de‑escalation, emerging words, and happy tears that we learned to name.

• family boundary breaches and safety risks
• obsessive bathroom behaviors and home damage
• product lockdowns and supervision trade‑offs
• safe medical sedation tip for procedures
• a simple co‑regulation trick that worked
• signs of speech returning after regression
• nervous system healing and calmer dynamics
• happy tears, labeling emotions, gentle support
• holiday stress, criticism, and emotional armor

Please remember to share this podcast. Check my show notes for links to products that have worked for our family. You can also become a member for private locked episodes. Share the link to my GoFundMe for our safer lifestyles blueprint for respite communities for families like yours and mine.

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Email: contact.parentingsevereautism@gmail.com

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We draw a hard line on boundaries after a “fun” day out breaks our son’s diet, a chaotic family visit disrupts routine, and grief surfaces through targeted destruction. We also name caregiver resentment without shame and share a simple tech tool that averted a meltdown.

• fundraiser links, storefront resources, and coffee support
• standing firm when family ignores diet rules
• post-visit escalation and how we confronted it
• targeted destruction as communication of loss
• clearing environmental triggers and resetting routines
• naming caregiver resentment without guilt
• the camp “primal scream” report and levity
• using phone filters as a fast regulation tool
• subscriber-only episodes on relationships and stress
• contact options for stories, questions, and support

Please share my episodes and spread the word to get more awareness around the subject of severe or profound autism, and also to let people know that they can donate to either my Safer Lifestyles Respite Community Blueprint project, which is a GoFundMe, or they can just donate cups of coffee as well

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Email: contact.parentingsevereautism@gmail.com

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A candid mention about staying when others say to leave, and how structure, safety, and short, clear language can turn daily chaos into small wins. From wall padding to therapy brushes to locks and applesauce mishaps, we share what worked, what failed, and why timing matters.

• reducing attention-seeking by replacing constant input with predictable access
• why soothing tools must be used before stress not during
• protecting space and reducing hypervigilance
• two to three word cues that cut through noise and guide behavior
• community expectations vs real support and consistent presence
• small wins
• next steps to lower ambient stress in the home environment

Check my show notes for links to tracking devices, therapy items, nervous system support, and my creator store. If you want the tea, I’ll drop more personal details in a subscriber-only episode.

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Email: contact.parentingsevereautism@gmail.com

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We share a raw stretch of our severe autism journey: the camp that finally said yes, why patient volunteers sometimes trump credentials, and what it costs to hold your home together when your child unravels. Along the way, we ask for community help and outline what support should look like.

• subscriber‑only truth‑telling episodes and why we lock some content
• GoFundMe for Safer Lifestyles Respite communities and how sharing helps
• the “word accident” memory and self‑awareness moments
• finding safety at a special needs day camp after rejection
• why untrained, compassionate volunteers often succeed where pros don’t
• survival routines, timed “cookies,” and car‑ride de‑escalation
• violent escalations at home, property protection, and caregiver safety
• the grandparents’ intervention and the need for real training for parents
• the arcade story, limits, and humor as coping
• self‑injury patterns, deterrent ideas, and community requests
• interview policy, fees for self‑promoters, and listener‑driven topics
• preview of shifting family support and next stories

Please keep an eye out for my link to the GoFundMe that I started for the Safer Lifestyles Respite communities. I would love it if you would just share that link. You can always reach me at contact.parentingsevereautism@gmail.com. Send me a fan mail on BuzzSprout at PSA.buzzsprout.com.

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Email: contact.parentingsevereautism@gmail.com

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We face the change in the story since moving back to Illinois: the first sign of aggression that changed everything between us. We also share GeneSite results, ask about Leucovorin, weigh group homes vs “never,” and find a quiet win by the river.

• impact of the Illinois move on behavior and family strain
• the car attack as a turning point in safety and trust
• losing verbal leverage and rebuilding boundaries
• GeneSite insights, med tweaks, and timelines
• curiosity about Leucovorin and real-world outcomes
• cannabis dosing as a flexible regulation tool
• group homes vs institutions and future-proof care
• building respite networks and care continuity
• a small victory: silent connection and calm outdoors

Please remember, if you would like to support this podcast, you can click the support the podcast link and buy me a coffee and buy me as many coffees as you like
You can reach out to me at contact.parentingsevereautism at gmail.com
You can also drop me a fan mail message at psa.buzzsprout.com

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Email: contact.parentingsevereautism@gmail.com

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Moving to Illinois with our severely autistic son brought unexpected challenges, including his increasingly violent behavior and our struggle to find appropriate medical and community support. Rejection has become an abnormally normal occurrence, but this is where it started.
• Our son developed concerning rage behaviors in public
• Housing search
• Parent support group silence
• Theatre program
• Despite rejections, our son continues to show creativity and new skills
• We're exploring disc golf as a new family activity
• Looking for positive recreational activities remains an ongoing challenge

If you'd like to share your own experiences or what activities your child enjoys, email me at contactparentingsevereautism@gmail.com. Support the podcast through the "buy me a coffee" link on your player or check out merchandise at psabuzzsprout.com.

Support the show

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https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/

Email: contact.parentingsevereautism@gmail.com

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Shannon shares the challenging journey of relocating from Wisconsin to Illinois with her severely autistic son, highlighting the unexpected difficulties they faced and the small victories that kept them going through the transition.

• Preparing requires extensive preparation, ideally with videos of new locations
• Transitioning to living with grandparents created significant challenges, including disrupted sleep patterns
• Learning the ropes of medical cannabis in Illinois for Autism
• Seeking special needs theatre opportunities
• A stranger's understanding in a grocery store
• Her son's attachment to his "Snowflake" obsidian rock shows his ability to connect and remember important details

Please support the show by sharing episodes with others who might benefit, as Shannon cannot advertise in parenting groups due to strict rules. You can also click the "support the show" link to help keep the podcast free for those who need it.

Support the show

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Email: contact.parentingsevereautism@gmail.com

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Shannon continues sharing emails between herself and her son Jacob's teachers in Wisconsin, revealing the challenges of advocating for a child with severe autism in the school system.

• Ongoing battles with teachers about using food as a motivator despite Shannon's opposition due to potential eating disorders and specific dietary restrictions
• Frustration with teachers repeatedly asking for guidance already provided in Shannon's comprehensive instruction letter
• Teachers demonstrating defensiveness when Shannon suggests someone might be "unwittingly" triggering Jacob's behaviors
• Failed experiment with CBD oil
• Safety concerns with school van driver
• Hilarious and endearing story about Jacob shaving
• Recent breakthrough moment
• Importance of scheduling IEPs as often as needed and bringing advocates to meetings

Please share this podcast with anyone who might benefit, email your experiences to contact.parentingsevereautism@gmail.com, or support the show through the "buy me a coffee" link to help keep this resource free for those who need it.

Support the show

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Get Podcast Merch at the following link: https://psapodcast.creator-spring.com/

https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/

Email: contact.parentingsevereautism@gmail.com