Episodios

  • Stages and Brain Foundation
    Nov 19 2025

    Welcome Back Podcaast Family!
    This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like for Podcast Linda with the Brain Foundation and Lewy research.

    We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

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    49 m
  • Compulsive Behaviors and New Hallucinations- Part 2
    Oct 22 2025

    This week we continue part 2 as Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com


    Support the show

    Más Menos
    29 m
  • Compulsive Behaviors and New Hallucinations- Part 1
    Oct 15 2025

    This week Curry shares how he is feeling and discussed the new hallucinations he is having and how he is feeling overall including not remembering visitors. We also discuss compulsive behaviors people with LBD may have as this was a big discussion during one of the zoom meetings.


    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com



    Support the show

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    23 m
  • Lewy is in Charge Right Now
    Aug 22 2025

    Hello Everyone! Thank you for your patience.

    Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his wife Linda as she helped him describe his current symptoms.

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

    Más Menos
    40 m
  • The Last Goodbye: Planning Your Funeral Before Lewy Takes Over
    Jun 2 2025

    This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages.

    "I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, and devastating sleep disruptions—he still prioritized this difficult task. The contrast is striking: even as Curry struggles with Lewy's daily challenges, he's thinking ahead to ease his wife's future burden.
    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com


    Support the show

    Más Menos
    46 m
  • Zoom Meeting: Part 3
    May 7 2025

    This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com


    Support the show

    Más Menos
    22 m
  • Zoom Meeting: Part 2
    Apr 30 2025

    This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    ZoomA shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

    Más Menos
    27 m
  • Zoom Support Meetings: Part 1
    Apr 23 2025

    This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

    Más Menos
    31 m
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