Navigating Life with Amyotrophic Lateral Sclerosis

De: Mark B. Bromberg MD PhD FAAN, Diane Banks Bromberg JD

Narrado por: James Anderson Foster

Duración: 6 h y 13 m

Resumen del Editor

Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS, a disease that affects approximately 5,600 Americans every year, with as many as 30,000 people managing the disease at any given time. ALS is a difficult disease for the patient and is also challenging for the caregiver and family as there are many questions, issues relating to care, and problems to manage. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs.

Navigating Life with Amyotrophic Lateral Sclerosis is unique because it covers two perspectives: one author is a neurologist with thirty years of experience treating ALS patients, and the other author experienced first-hand the issues in providing care for a parent with ALS. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.

©2017 American Academy of Neurology (P)2023 Tantor

So thankful for this book

My father is possibly facing an ALS diagnosis. This book provides a well laid out explanation of the disease in terms one with no medical background can understand. I am still apprehensive and praying for the best but have a better understanding of what he, my mom, and my siblings may be facing in the near future. Sincere thanks!