Disability Memoir

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in, such that he now sees the world as if through a narrow tube. Soon—but without knowing exactly when—he will likely have no vision left.

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

John Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself “crippled and dependent” and in search of care.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

Divided Minds is a dual memoir of identical twins, one of whom faces a life sentence of schizophrenia and the other who becomes a psychiatrist after entering the spotlight that had for so long been focused on her sister.

From being a little girl in a village in China with polio to a tech executive at Apple, Libo Cao Meyers has had quite a journey in life—a journey steeped in rich family legacy and powered by determination, growth, and love. Over the years and the miles, she’s embraced her differences and has allowed no one—including herself—to set limitations on what she’s able to accomplish. But just because she’s been successful doesn’t mean it’s been easy. Not by a long shot.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

This is Nadina LaSpina's story - from her early years in her native Sicily, where she contracts polio as a baby, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness, to her adolescence and youth in America, spent almost entirely in hospitals where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her, and to her rebellion and her activism in the disability-rights movement.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Close your eyes and get ready to see the world in a new and more positive way. As a child in Toronto, Molly Burke was diagnosed with retinitis pigmentosa and became completely sightless as a teenager. Now an award-winning YouTube star and global influencer, Molly shares what it’s like to be a purple-haired, pink-obsessed fashion and makeup lover in a seeing world. She speaks with authenticity and candor about how she tackles the preconceived notions we have around blindness; Molly has made it her mission to make us see her - and ourselves- in a wholly empowering way.  

For years, Emma Carey was a regular young adult who would wake up and go about their day on autopilot, someone who would look at a sunset and feel unaffected, someone who was living, but not really alive. That is, until something happened that enabled her to really see life for the gift it is. Emma was in a skydiving accident that made her a paraplegic. This book is not just about Emma's fall from the sky and how she learned to walk without ever regaining feeling in her legs but also about the beliefs and ideas that helped her survive.

On the precipice of starting her adult life, aged eighteen, Sophie, a rebellious and incorrigible wild child, crashed her car and was instantly paralysed from the chest down. Rushed to hospital, everything she had dreamed for her life was instantly forgotten and her journey to rediscover herself and build a different life began. But being told she would never walk again would come to be the least of her concerns.

This inspiring autobiography by Helen Keller is an account of her life from her family history up to her last years of college, supplemented by her personal letters from age 7 to 21. This edition includes letters and reports contributed by her teacher, Anne Sullivan, and the editor, John Albert Macy.

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.