Lewy Body Roller Coaster Podcast Por Linda and Curry arte de portada

Lewy Body Roller Coaster

Lewy Body Roller Coaster

De: Linda and Curry
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Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com© 2025 Lewy Body Roller Coaster Enfermedades Físicas Higiene y Vida Saludable
Episodios
  • The Last Goodbye: Planning Your Funeral Before Lewy Takes Over
    Jun 2 2025

    This week, Curry shares with us his and his wife Linda's experience going to a funeral home to plan their funerals in advance so their children did not have to later on. He shares how he felt during the process and why he wanted to share with our listeners and members of our Facebook pages.

    "I would hate to have left Linda to decide all that in a day or two," Curry confesses, his voice carrying the weight of nine years living with LBD. During a recent period when his symptoms have intensified—increased confusion, slurred speech, and devastating sleep disruptions—he still prioritized this difficult task. The contrast is striking: even as Curry struggles with Lewy's daily challenges, he's thinking ahead to ease his wife's future burden.
    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com


    Support the show

    Más Menos
    46 m
  • Zoom Meeting: Part 3
    May 7 2025

    This week is part three of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com


    Support the show

    Más Menos
    22 m
  • Zoom Meeting: Part 2
    Apr 30 2025

    This week is part two of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    ZoomA shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed

    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show

    Más Menos
    27 m
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I am so excited at the prospect of having the film "Facing the Wind" come out soon. My husband has had LBD for a few years and I believe that education and community support is key to understanding, getting treatment, and coping with Lewy Body Dementia. I have listened and re-listened to the podcast Lewy Body Dementia Roller Coaster since about month 2. Curry and Linda have created a life changer for me and I believe for anyone who will listen. I wd rate it much higher if that was possible.

Real people are giving real hope.

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I love that people are allowed to tell their Lewy Love stories. The journey is so different for each one.

Real stories - unscripted!

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