Lewy Body Roller Coaster  By  cover art

Lewy Body Roller Coaster

By: Linda and Curry
  • Summary

  • Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com
    © 2024 Lewy Body Roller Coaster
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Episodes
  • REM Sleep Disorder
    May 29 2024

    This week, Curry and I share about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns.

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Show more Show less
    33 mins
  • What Would You Want Dr. to Say?
    May 15 2024

    This week we share comments from question posted in the groups on what you would have wanted the doctor who diagnosed you to tell you about LBD - more than to just get your affairs in order?

    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Show more Show less
    32 mins
  • Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 2
    May 1 2024

    Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With laughter and vulnerability, Carl peels back the layers of his life to reveal the onset of severe depression and other debilitating symptoms that came with his diagnosis, challenging his once high-energy existence. His story is a stark reminder that success on paper doesn't shield us from the battles within, and it's a journey we're honored to share with you, filled with the truths of walking the tightrope between professional demands and personal health.


    Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

    Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support for the podcast, you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.

    Support the Show.

    Show more Show less
    36 mins

What listeners say about Lewy Body Roller Coaster

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Real people are giving real hope.

I am so excited at the prospect of having the film "Facing the Wind" come out soon. My husband has had LBD for a few years and I believe that education and community support is key to understanding, getting treatment, and coping with Lewy Body Dementia. I have listened and re-listened to the podcast Lewy Body Dementia Roller Coaster since about month 2. Curry and Linda have created a life changer for me and I believe for anyone who will listen. I wd rate it much higher if that was possible.

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