The LEMS Aware Podcast is a new series created to celebrate and support people affected by LEMS, whether they’re patients, caregivers, or medical professionals. Hosted by Amy Grover, Executive Director of Patient Advocacy at Catalyst Pharmaceuticals, the podcast aims to shed light on the everyday realities of this rare neuromuscular condition.

In this trailer episode, Amy introduces the purpose behind the series and what listeners can expect: insightful conversations with individuals navigating LEMS, and expert perspectives from clinicians and researchers in the field.

Whether someone is newly diagnosed, supporting a loved one, or providing care as a healthcare professional, this podcast offers a trusted space for learning and connection.

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Presented by Catalyst Pharmaceuticals
www.catalystpharma.com

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On this episode of the LEMS Aware podcast, we are joined by Patrick, who shares his challenging journey to receiving a LEMS diagnosis. As someone dedicated to serving others through work and church, Patrick struggled with suddenly needing to rely on others for help. His diagnosis process forced him to take significant time off, burning through his sick leave. Like many of our guests, Patrick's experience taught him the importance of being in tune with his body, recognizing when something feels "off," and persistently advocating for himself to seek answers about his health.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS. Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone.

Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.