Chronic Illness Memoir

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?

In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.

Alan Gordon, a psychotherapist and the founder of the Pain Psychology Center in Los Angeles, was in grad school when he started experiencing chronic pain and it completely derailed his life. He saw multiple doctors and received many diagnoses, but none of the medical treatments helped. Frustrated with conventional pain management, he developed Pain Reprocessing Therapy (PRT), a mind-body protocol that eliminated his own chronic pain and has transformed the lives of thousands of his patients.

MEDICAL GASLIGHTING MEMOIR by author Anneke Vliegen, diagnosed with a combination of chronic, rare, barely visible and fluctuating diseases. Anneke describes her journey to happiness, after a misdiagnosis of chronic fatigue syndrome (ME/CFS) brought her condescendence, humiliation and neglect. For twenty years, this medical gaslighting continued until she was close to death. The discovery of adrenal insufficiency, lupus and hypermobile Ehlers-Danlos syndrome (hEDS) led to improved care and respect. The medical world had heard Anneke’s hooves, and assumed she needed to be treated like a ...

It’s 2006. After a string of rejections from men who tell her they could never, ever, ever see her “that way,” awkward third-grade teacher Micaela Blei signs up for a mysterious course called “The Divine Feminine,” and feels like she might have found the key to the perfect life. Turns out if you’re an A student, you can get an A in anything–including men. Pretty soon she’s learning to "conjure" her desires with vision boards, flirtations, and even a daring jumbotron viewing party for her, ahem ... "divine center."

After a number of years of being chronically ill with Lyme disease, Jenny Rush had a momentary realization that she was overlooking a lesson that was resulting in continued ill health. As she went into her last year of dealing with chronic illness at a physical level, Jenny shifted her primary focus from the illness itself to addressing the multitude of experiences that the illness was provoking.

A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.

"From the cover to the words in between, this book is a triumph & a learning tool for those with chronic illness & their families." - Jennie Louwes - Reedsy Discovery Once a person who seemed happy and healthy, Lisa Peachey's world was turned upside down as chronic illness crept in, shifting her focus from carefree living to the constant management of her body's needs. With raw honesty, Lisa shares hard-earned lessons learned on a long, painful, and expensive road. She seeks to share this knowledge with others whose doctors don't know what to do with them, offering hope to anyone feeling ...

Rather than focusing on the medical side of long-term conditions, this book contains bespoke advice for the parts of everyday living that often go unspoken - from practical advice on friendships, dating and independent living, to more reflective guidance on rediscovering your identity and learning to self-advocate. Chronic illness affects everybody differently, but we all want to find joy where we can and make the most of what we have. This book exists to help you take accessible steps towards that goal and build a life that truly feels like yours.

Brita grew up a competitive athlete, full of happiness and excitement for life. There wasn’t much that would take her out of a game as she constantly pushed her body to the limits. When she was unable to compete due to unknown and undiagnosed illness, she entered a world that was unfamiliar, and began to sink into a darkness she could never have imagined.

One day, on her way to a date, Isabella Huffington gets hit by a bike. What begins as a concussion with a diagnosed recovery time of seven-to-ten days becomes more than two years of debilitating pain with no apparent end and a string of unhelpful doctor and specialist visits. In the wreckage, jobs are canceled. Leases are broken. There is no second date. What’s left is Isabella, her body, and her pain. Because the source of her pain cannot be located within the body, she is told over and over that her pain is psychosomatic. And Isabella believes it, over and over.

Marian Schembari was thirty-four years old when she learned she was autistic. By then, she’d spent decades hiding her tics and shutting down in public, wondering why she couldn’t just act like everyone else. Therapists told her she had Tourette’s syndrome, obsessive-compulsive disorder, sensory processing disorder, social anxiety, and recurrent depression. They prescribed breathing techniques and gratitude journaling. Nothing helped. It wasn’t until years later that she finally learned the truth: she wasn’t weird or deficient or moody or sensitive or broken. She was autistic.

Dr. Judy Mikovits is a modern-day Rosalind Franklin, a brilliant researcher shaking up the old boys' club of science with her groundbreaking discoveries. And like many women who have trespassed into the world of men, she uncovered decades-old secrets that many would prefer to stay buried.

Learning to adapt to life after being diagnosed with chronic pain and illness is extremely difficult. Life as you knew it, along with your hopes and dreams for your life, literally gets turned upside down in an instant. This comes with a lot of deep complicated emotions from grief, sadness, anger, frustration to living in a constant state of uncertainty and stress. Most people assume that if you get sick, a medical professional like Dr. House will work endlessly until they have answers and a cure so you can go back to living the life you used to know.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

Diagnosed with a disease that can't be reversed? Learn how to keep living life to the fullest. Have you received a terminal or chronic diagnosis? Can you ever find joy, peace, or fulfillment in these challenging conditions? The answer is a resounding yes. When author Jarem Sawatsky was diagnosed with Huntington's Disease, he found there were no guides for those living with incurable illness. He quit his job as a professor and devoted his life to exploring the possibilities of living with chronic conditions. Now he's bringing his findings and insights to you.

When Amy B. Scher was struck with undiagnosed late-stage, chronic Lyme disease, the best physicians in America labeled her condition incurable and potentially terminal. Deteriorating rapidly, she went on a search to save her own life - from the top experts in Los Angeles and the world-renowned Mayo Clinic in Minneapolis to a state-of-the-art hospital in Chicago. After exhausting all of her options in the US, she discovered a possible cure - but it was highly experimental, available only in India, and had as much of a probability of killing her as it did of curing her.

On July 22, 2009, a special meeting was held with 24 leading scientists at the National Institutes of Health to discuss early findings that a newly discovered retrovirus was linked to chronic fatigue syndrome (CFS), prostate cancer, lymphoma, and eventually neurodevelopmental disorders in children. When Dr. Judy Mikovits finished her presentation the room was silent for a moment, then one of the scientists said, "Oh my God!" The resulting investigation would be like no other in science.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.