This week, Landis sits down with Jason — a longtime nurse and fellow person with epilepsy — to talk about what seizure action plans really look like in real life. Not the perfect-on-paper version. The messy, human, constantly evolving one.

Jason shares his own epilepsy journey, what it’s like as a school nurse, caring for hundreds of kids while managing seizures himself, and why seizure action plans matter more than most of us realize.

They unpack what should actually be included, how plans change over time, and why not having one (yes, even as an advocate 👀) is way more common than we admit. Note: Landis openly admits she didn’t have one at the time of recording… but swore she would by the time this episode came out. Accountability, baby.

👉 Want help creating your own seizure action plan?

Copy & paste into your phone: https://www.whattheefpodcast.com/resources

More templates: https://seizureactionplans.org/sap-examples/

Shout out to sponsors Neurelis & SK life science AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America! Thank you for supporting “What the Ef?!” podcast!

Hosted on Acast. See acast.com/privacy for more information.

If you’ve ever Googled your symptoms at 2 a.m. and immediately decided it was “probably fine but also definitely fatal” — this one’s for you.

Landis sits down with neurologist and epileptologist Dr. Jessica Lowe — aka Dr. Brain Barbie — to talk about the messy middle between medicine and social media. From meeting patients where they already are (hi, TikTok), to the fear doctors have around posting publicly, to why showing personality — pink nails and all — can actually help patients feel safer, heard, and more confident walking into appointments.

Make sure to follow the podcast on all channels for more convos!

Instagram, YouTube, TikTok

Learn more here: whattheefpodcast.com

HUGE shout outs to the folks that continue to keep this podcast going! Sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, the Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

Anyone else been told their seizures were “just stress”? That’s what doctors told Lakesha Floyd for DECADES until she was finally diagnosed with epilepsy at 45.

Lakesha shares how her seizure years of being dismissed, the complicated emotions that come with an adult diagnosis, and what happens when denial stops feeling safe. It’s a conversation about finding self-trust when your world is turned upside down and not letting “it’s just stress” be the final answer.

Because if you need to hear it today: epilepsy is not the end.

Be sure to follow the podcast on Instagram, YouTube, and TikTok! @whattheefpodcast

Learn more here: whattheefpodcast.com

Shout out to the folks who help keep hope alive in the epilepsy community! Thank you sponsors SK life science & Neurelis AND community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America.

Hosted on Acast. See acast.com/privacy for more information.

In this convo with Mukki Gill, founder of ZOR!, she talks about changing the game in epilepsy apps by synthesizing all of that data into one clear, usable place. After watching her mom take notes that look like “Santa’s list” for her brother’s Dravet’s Syndrome, Mukki wanted to create a simpler, more useful format for people with epilepsy.

My seizure info seems to be everywhere—Notes app, calendars, wearables, half-remembered symptoms, and “I’ll explain it to my doctor somehow.” Enter the ZOR! app, which takes data from your Apple Watch to coexist with your epilepsy info. No matter searching for patterns–this app does it for you!

Oh, and have you ever wondered how seizure alert dogs know when a seizure is coming? Mukki has, too–and is planning on elevating the ZOR! app to use that science to *predict* our seizures! Get ready to be inspired and excited about some life changing tech!

Learn more and sign up for ZOR! app: https://zor.llc/

Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com

Huge shout out to the people who believe in this podcast! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

This week I’m joined by Spenser Jaye—a former D1 and professional soccer player who’s been navigating epilepsy since she was 13. We get into what it really looks like to chase big goals when your nervous system has its own agenda: the decision points, the fear, the disclosure question, the stuff people don’t see… and the ways support can change everything.

We also talk about why Spenser built 1in26 Athlete Foundation—a space for athletes and active people with epilepsy to feel included, capable, and genuinely safe (without being told “you can’t” as the default).

If you’ve ever wondered, Can I still do the thing? — this one’s for you.

Learn more about 1in26 Athlete here: oneand26athlete.org

Be sure to follow @whattheefpodcast on Insta, YouTube, and TikTok for more on the good, the bad, and the hilarious parts of living with epilepsy.

Learn more here: whattheefpodcast.com

THANK YOU to these folks for keeping the podcast kicking! Sponsors SK life science & Neurelis and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

Every year, my brain has a fun holiday tradition of doling out seizures. Like my epilepsy is Santa but with a very dark sense of humor.

So this year I came up with 5 strategies to (hopefully) mitigate the holiday seizen. From bathrooms to booze to holiday blues--I'm hoping these tips help!

Tune into this 5-minute What the Elf?! episode and let me know if any of these work for you!

But above all, remember no matter how many strategies we put in place, seizures are not our fault. They happen when we do everything "right." So please be kind to yourself. I promise you are not alone in this.

Thank to you the amazing support we had in 2025 from sponsors Neurelis & SK life science and community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America!

Hosted on Acast. See acast.com/privacy for more information.

Ever sit in your doctor’s office like, “Wait… what did you just say?” Dr. Claude Steriade, an epileptologist at NYU, is here to translate the medical jargon and hand over her playbook for better communication with your doc.

She shares the *one magical thought* she wishes every patient could have, explains autoimmune epilepsy (the sneaky diagnosis that hides in plain sight), and shows how to ask for the right tests.

Oh, and don’t miss her 3 game-changing tips for making conversations with your doctor way less awkward.

Follow on YouTube, Instagram and TikTok for extra clips and community convos!

Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, Epilepsy Alliance of American AND our sponsors Neurelis and SK life science! Thanks for helping bridge the communication gap in the epilepsy world!

Hosted on Acast. See acast.com/privacy for more information.

What happens when thousands of epilepsy nerds take over Lisbon? Tune in for chats with people from all over the world–Argentina, UK, Australia, Colombia, Kenya and more! Convos about the ethics of AI in epilepsy treatment, the move from pediatric to adult care, to how gut health affects seizures.

Turns out, the biggest conference in the world isn’t just about science—it’s about connection, curiosity, and a whole lot of hope. 🌍💜

Subscribe YouTube, follow Instagram and TikTok for extra clips and community convos!

Shout out to community partners Epilepsy Foundation of America, Danny Did Foundation, and Epilepsy Alliance America AND our sponsors Neurelis and SK life science! Thank you for supporting the epilepsy sphere!

Hosted on Acast. See acast.com/privacy for more information.