In this episode of Through Myeloma Eyes, Solomon explores what patient voice really means — beyond slogans, beyond tick‑box exercises, and beyond the margins of clinical documents.

Drawing on years of involvement in research design, clinical trial reviews, and patient advisory groups, Solomon highlights a simple truth: Data shows what is happening… but lived experience explains what it means.

From the hidden realities behind quality‑of‑life scores to the honesty found in patient forums, this episode uncovers why patient insight isn’t a “nice to have” — it’s essential. Solomon shares how patients bring context, clarity, and credibility to science, ensuring research answers the questions that truly matter.

This is an episode for clinicians, researchers, patients, and anyone navigating both worlds. A reminder that patient voice isn’t noise in the system — it’s wisdom at the table.

In this episode, the host shares his experience starting daratumumab (D) as the next step in long-term multiple myeloma care. He describe the decision-making conversation with his medical team, the treatment day with pre-medications and monitoring, and the emotional rhythm of living with an incurable cancer.

Rather than dramatic moments, the episode emphasises continuity: diagnosis, treatment, stability, and adjustment. Solomon encourages listeners to ask questions, take time with decisions, and adapt as the journey evolves.

Solomon Alexis reflects on how myeloma reshapes relationships — who fades away, who quietly stays, and the awkward moments in between.

He explores the cost of protecting loved ones, the value of steady presence over grand gestures, and invites listeners to notice a relationship that surprised them since illness entered their life.

Host Solomon Alexis shares a personal account of receiving a second cancer diagnosis — treatable thyroid cancer — while already living with an incurable cancer. He describes the creeping fear, the clinical realities of surgery and recovery, concerns about his voice, and the visible and invisible scars that follow.

This episode emphasizes that relief and anxiety can coexist, survivorship is not a straight line, and it’s okay to feel scared. Solomon encourages listeners to take time, accept support, and hold onto hope as they navigate unexpected chapters.

Episode 15 of Through MYeloma Eyes explores how to search for trustworthy information after a cancer diagnosis without becoming overwhelmed. Solomon guides listeners to prioritise their health team, reputable organisations, and supportive communities while avoiding late-night panic, miracle-cure claims, and harmful comparisons.

This episode offers practical advice on setting limits, asking questions of your care team, and choosing information that helps you stay present and sane through uncertainty.

In this episode Solomon Alexis shares an honest, unfiltered look at life after a multiple myeloma diagnosis, covering pain, sleep, mobility, emotions, finances, friendships, and daily routines.

He gives personal ratings for symptoms like pain, neuropathy, fatigue, and mobility, explains social and financial impacts, and describes what improves his quality of life — concluding his current overall quality of life is 7 out of 10.

Through Myeloma Eyes offers lived experience, resilience, and practical perspective for anyone navigating cancer.

Host Solomon Alexis shares a personal account of getting shingles while living with multiple myeloma, explaining how a weakened immune system and cancer treatment can allow the virus to reactivate and cause severe nerve pain and a one-sided rash.

He urges listeners not to ignore sudden rashes, to seek medical attention early (including antivirals), and to pay attention to bodily warning signs, as minor symptoms can reveal larger health issues.

Host Solomon Alexis explains why he began podcasting about his multiple myeloma — not to be brave or to set an example, but as a personal pressure valve and a way to breathe.

He contrasts public sharing with private coping and stresses that neither is morally superior.

The episode mixes honesty and quiet humour, reminding listeners that laughter and vulnerability can both help, but staying private is equally valid. The central message: cope however you need to—your journey is real whether you speak about it or not.