Raising Rosie: The Rest of the Story Podcast Por Melanie Kandzierski arte de portada

Raising Rosie: The Rest of the Story

Raising Rosie: The Rest of the Story

De: Melanie Kandzierski
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I’m Melanie, a Gen X mom raising my granddaughter Rosie, who lives with Dravet syndrome. This podcast shares the full, unfiltered story of caregiving, grief, palliative care, and parenting a medically complex child. No highlight reels—just truth, love, and the hard parts we usually keep quiet. Follow @raisingrosie_dravet on TikTok, IG, & Threads. Welcome to Raising Rosie: The Rest of the Story.Melanie Kandzierski Crianza y Familias Relaciones
Episodios
  • Inclusion Isn’t a Favor—It’s a Foundation
    Dec 12 2025

    What happens when inclusion is treated like a luxury instead of a basic right?

    In this episode, I peel back the layers of performative inclusion and bring us into the real, raw experience of fighting for access, dignity, and belonging as the caregiver of a medically complex child. From historical moments like the Capitol Crawl to personal stories about my local library and changing Rosie on public restroom floors, this episode is part history lesson, part emotional gut punch, and part rally cry.

    You’ll learn how features we take for granted—curb cuts, texting, captions—were born out of disability advocacy, and why inclusion isn’t just about disability. It’s about humanity.

    ✨ Plus: A shout-out to The Inclusion Effect podcast by Anna Kohl, where powerful inclusion conversations continue weekly.

    This isn’t about asking for too much. This is about asking for the bare minimum—and knowing you’re not alone.


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    15 m
  • The Loneliness of Doing It All
    Dec 6 2025

    This one’s for every caregiver who has felt surrounded—but still alone.

    In this episode, I’m peeling back the layers of invisible labor that come with doing it all: parenting, caregiving, managing systems, surviving systems, and holding everything together with hands that never get a break. I talk about the illusion of help, the weight of performative support, and the breaking point that led me to a deeper truth—one I think many of us know too well.

    We’ll talk about what it really takes to make life “look manageable,” the difference between parenting and caregiving, and why well-meaning phrases like “God doesn’t give you more than you can handle” often miss the mark.

    This is the episode I wish I had in my darkest, most overextended moments—and maybe it’s one you need today too.

    You’re not too much.

    You’re just doing too much, for too long, without enough support.

    You are not alone.


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    8 m
  • The Dreams We Didn’t Know We’d Have to Grieve
    Nov 29 2025

    Before we ever held our babies in our arms, many of us already carried dreams in our hearts. First birthdays and first days of school. Dance recitals and soccer games. College move-ins. Careers. Weddings. A life imagined. A future assumed.

    But when a diagnosis comes—when you’re told your child has epilepsy, or Down syndrome, or a congenital heart defect, or cerebral palsy—or a rare disease so uncommon you have to teach the doctors how to spell it—those dreams begin to shift. Sometimes they vanish. And no one really prepares you for the ache that comes with that kind of loss.

    This episode is about that grief. The kind that arrives before the meal trains, before the therapies, before the new routines. The kind that shows up long before acceptance or strength or even language. If you’ve ever found yourself grieving the version of motherhood you never got to have… this one is for you.


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    6 m
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