How do support groups complement medical care for conditions like Pulmonary Fibrosis?

How does connecting with others living with Pulmonary Fibrosis help reduce anxiety, depression, or fear?

How can support groups help patients prepare for conversations with their healthcare team?

Jen Wescoe joins Kevin Crockett to discuss the great work her team is doing behind the scenes to help improve the communication between support groups and individuals living with ILD -- and YOU can help!! Take the survey here!

It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- get more info at Wescoe.org!

See omnystudio.com/listener for privacy information.

What happens in the body when we experience stress?

Why is it especially important to talk about stress and mindfulness in the context of living with Pulmonary Fibrosis?

Kim Hopkins, the Executive Director of the Shanthi Project, and Sarah Dennehy - Senior Director of Programs at the Shanthi Project, join the show to discuss the importance of mindfulness!

It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- get more info at Wescoe.org!

See omnystudio.com/listener for privacy information.

There was some learning to be done this year, there was some traveling to be done this year -- and there was some celebrating to do this year as well!

Jen Wescoe of the Wescoe Foundation for Pulmonary Fibrosis joins Crockett to discuss all the wonderful events of 2025, and some of the exciting and revolutionary things she learned about on the road of battling IPF and ILD!

It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- visit Wescoe.org for more!

See omnystudio.com/listener for privacy information.

An organization out there to help meet the changing needs of patients & families?! We are all about that!

Katherine Lacouture of Help. Hope. Live. (HelpHopeLive.org) discusses the mission of her team -- medical fundraising for the expenses insurance doesn't cover!

We discuss how HHL has a different fundraising model from typical crowdfunding, what community building look like both online & offline -- and how you can get more information for you and your loved ones!

It's the 'Pulmonary Fibrosis' podcast! Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

Why is palliative care so important in ILD, especially in early diagnosis? How would you define palliative care, especially in the context of ILD?

Dr. Gillian Love of the Division of Palliative Care with Jefferson Health joins Crockett to discuss these questions and more in the 'Pulmonary Fibrosis' podcast!

Brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

How does ILD typically present in women vs. men? Any noticeable difference in symptoms?

Are there types of ILD that are more common in women than in men?

These are the questions we discuss in this episode of the 'Pulmonary Fibrosis' podcast! Jen Wescoe and Dr. Rachel Criner of Temple Lung Center discuss women and ILD, the mental health of women battling ILD, and great resources you can use to join clinical trials to help beat this disease!

The 'Pulmonary Fibrosis' podcast is brought to you by the Wescoe Foundation for Pulmonary Fibrosis -- and the PAIPF Support Network -- visit PAIPFsupportnetwork.org!

See omnystudio.com/listener for privacy information.

The timeline of diagnosis, to possible transplant recipient -- to post-transplant can feel like a whirlwind for patients and caregivers.

Marion Marin, a lung transplant recipient, joins the show to discuss how that process went for her! She discusses advocating for yourself, waiting for 'the call' -- and the importance of the community around you when physically and emotionally dealing with a diagnosis!

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

See omnystudio.com/listener for privacy information.

What is the difference between Palliative Care & Hospice, and why important to discern the difference?!

Dr. Kathleen Lindell of the Medical University of South Carolina joins the show to discuss why Palliative Care can be such an important piece of both the patient and caregivers role in the ILD journey.

It's the 'Pulmonary Fibrosis' podcast! Brought to you the Wescoe Foundation for Pulmonary Fibrosis and the Pennsylvania IPF Support Network! Find this podcast wherever you get your podcasts!

Are you interested in helping advance PF research? If so, consider joining a workgroup! Visit wescoe.org or pfpatientengagement.org for more details!

See omnystudio.com/listener for privacy information.