🎙️ In this episode of the Not Just NE Cancer podcast, Neuroendocrine Cancer UK CEO and Co-Founder, Cathy Bouvier Ellis sits down with Tanya Hills, Global Patient Engagement Lead at Boehringer Ingelheim.

Together, they explore:

• Common misconceptions about the pharmaceutical industry
• How patient organisations and the industry can work collaboratively
• How effective these collaborations can be

Tanya also highlights a current clinical trial led by Boehringer Ingelheim for Extrapulmonary Neuroendocrine Carcinoma (EP-NEC). You can find more information about this trial here:

🔗 Boehringer Ingelheim – EP-NEC Clinical Trial

To learn more about ongoing neuroendocrine cancer research, visit our website:
🔗 Neuroendocrine Cancer UK – Research

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In this episode of the Not Just NE Cancer podcast, the first of 2025, Nikie Jervis, Neuroendocrine Cancer UK's Director of Support Services and NMC registered nurse goes back to basics to explain 'What Neuroendocrine Cancer' is. In conversation with CEO and Co-Founder, Cathy Bouvier Ellis, they discuss the function of our neuroendocrine system, how the cells work in that system and how they play an important role in the sending and receiving of messages from either our brain or endocrine system.

If you've been searching for a clear explanation of what neuroendocrine cancer is, look no further. We hope you enjoy this episode and please keep an eye out for future episodes which will be released every 2 months throughout 2025.

Click here for further reading on what neuroendocrine cancer is.

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In the final episode of the Not Just NE Cancer podcast of 2024, our host, Cathy, chats with Kym Winter, CEO, Founder and Director of Rareminds who some of our community may already know.

In anticipation of the festive period, the new year and everything that these months entail, Kym and Cathy discuss the pressures and expectations of this time of year and how those living with neuroendocrine cancer can navigate festivities whilst experiencing disruptive or difficult symptoms and emotions.

We also have a webinar available on this topic, which includes discussion on managing fatigue at this time of year. Please click here to watch.

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In this episode of the Not Just NE Cancer podcast, Cathy chats with International Cancer Alliance (INCA) President, Stephanie Alband about the upcoming World Neuroendocrine Cancer Day 2024, the member organisations that make up INCA and the neuroendocrine global community as a whole.

INCA Website
World Neuroendocrine Cancer Day

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In this episode of the Not Just NE Cancer podcast, our host, Cathy has a candid and heartfelt conversation with Sue about navigating grief after her husband, Ian passed away from neuroendocrine cancer.

This episode may be upsetting for some but we hope it also provides an honest and hopeful portrayal of living life with grief and supporting your loved one to have a 'good' death.

Further support:

• Neuroendocrine Cancer UK
• Dealing with grief

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In this episode of the Not Just NE Cancer podcast, Cathy chats with patients and ambassadors, Chrissie and Caroline about their coping strategies for living with neuroendocrine cancer. This is a open conversation where Caroline and Chrissie are honest about their experience of diagnosis and treatment as well as their approach to life.

Further support:

• Neuroendocrine Cancer UK
• Mental health support

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In this episode of the Not Just NE Cancer podcast, we discuss the importance and realities of self-advocacy while living with neuroendocrine cancer. Join us as we explore the challenges and triumphs of advocating for oneself in the healthcare system.

Join us for a truly insightful conversation with two of Neuroendocrine Cancer UK's Ambassadors, Lisa and Alan. Lisa and Alan share their personal journey, offering an honest account of navigating medical appointments, seeking the best treatment options, and dealing with the emotional ups and downs that come with being your own advocate.

Tune in for an engaging and thought-provoking discussion on the importance of self-advocacy and the impact it has on the cancer journey.

Further Support:

• Neuroendocrine Cancer UK
• Article Reference
• Neuroendocrine Cancer UK Virtual Handbook.

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In this episode of the Not Just NE Cancer podcast, Cathy speaks with Jane and Carolyn about their experiences with neuroendocrine cancer treatment.

Jane discusses her journey with CAPTEM, PRRT and now four-weekly Lanreotide, while Carolyn shares her story of initially receiving chemotherapy (wrongly), then moving to a watch-and-wait approach, Lanreotide, and finally PRRT through a clinical trial. They delve into accessing these treatments, managing side effects, and the level of autonomy patients have over their treatment options. Tune in for their insightful experiences and perspectives.

Further Support:

• Neuroendocrine Cancer UK
• Neuroendocrine Cancer Treatments
• Neuroendocrine Cancer Support

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