Navigating Life with Vision Loss

De: Aftersight
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  • Resumen

  • "Navigating Life with Vision Loss" is an AINC original podcast. In this weekly podcast, we answer your questions on a variety of topics surrounding vision loss. Need to know what to do in standing up for yourself? Wondering how to find a counselor or therapist? Do you need to know how to fill out patient forms in a crowded doctor's office? This show is for you. We're giving a voice to the challenges faced by people with blindness or vision loss. We're here as a resource for you, your family, and your friends. This service is made possible by generous donations. Consider supporting us at www.aftersight.org to help keep these resources free. Aftersight also provides free white canes, support groups, and more, all thanks to contributions from our community.
    2022
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Episodios
  • S110: Social media and understanding your rights

    S110: Social media and understanding your rights
    May 6 2025
    In this episode, Kim Wardlow is joined by Evan Starnes to explore how social media can serve as a powerful tool for advocacy, community building, and change—particularly in the blind and low vision community. Evan shares his journey from discovering digital advocacy on Twitter to becoming an influential voice in accessible tech. They dive into platform-by-platform comparisons, discuss the pros and cons of real-time posting, and offer best practices for accessible content creation. From hashtags and alt text to dealing with misinformation and going viral for the right reasons, this episode is packed with practical tips and thoughtful insights for anyone hoping to use social media as a force for good.

    ⏱️ Chapter Markers:
    00:00 – Welcome to NLVL and Introduction to Advocacy & Social Media
    01:00 – Evan’s Story: Finding Community on Twitter
    03:00 – Discovering Support and Shared Experiences Online
    05:00 – How Social Media Transformed Advocacy
    08:00 – The Pros and Pitfalls of Real-Time Posting
    12:00 – Platform Breakdown: Twitter/X, Facebook, Instagram
    16:00 – The Power of Facebook for Advocacy
    19:00 – Instagram, LinkedIn, and TikTok’s Roles
    23:00 – YouTube and Mastodon Explained
    27:30 – Tips for Responsible and Effective Advocacy Online
    31:00 – Collaboration, Group Engagement, and Reposts
    33:45 – Service Animal Denials: A Case Study in Viral Advocacy
    36:00 – Trends: Alt Text, AI, and Decentralized Platforms
    38:00 – Best Practices for Accessible Content Creation
    41:00 – Organizational Responsibility in Accessibility
    43:30 – Social Media Accountability: What Works and What Doesn’t
    45:00 – Advocacy Through Podcasting and Personal Stories
    48:00 – Responding to Misinformation with Grace and Strategy
    50:45 – Tracking Metrics: Views vs. Engagement Quality
    53:00 – Final Tips for Using Social Media Effectively
    55:00 – Where to Find Evan and Aftersight Online
    56:00 – Tease for Next Week: Youth Advocacy with Dr. Charles Powell
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    58 m
  • S109: Persistence and Progress: Creating Accessible Spaces with Darcy McLean

    S109: Persistence and Progress: Creating Accessible Spaces with Darcy McLean
    Apr 29 2025
    In this episode of Navigating Life with Vision Loss, host Kim Wardlow sits down with Darcy McLean, a Beyond Vision Skills Trainer at the Center for People with Disabilities (CPWD). Darcy shares her personal journey with low vision, the beginnings of her advocacy work, and how grassroots efforts have led to significant accessibility improvements at recreation centers and arts venues across the metro Denver area. Together, Kim and Darcy discuss how to start local advocacy efforts, overcome common challenges, build partnerships, and create change that benefits the broader community. This inspiring conversation emphasizes the importance of persistence, collaboration, and starting with activities you're passionate about.
    Darcy also offers practical advice for listeners who want to advocate for more accessible recreational and community opportunities where they live—and how small actions can ripple outward to make a lasting difference.

    Chapter Markers
    00:00 – Welcome to Navigating Life with Vision Loss
    00:26 – Introducing Guest Darcy McLean
    02:32 – Gardening with Low Vision: Spring Planting Tips
    04:55 – Darcy’s Advocacy Journey: College and Early Experiences
    07:20 – First Lessons in Self-Advocacy: Philosophy Class Story
    09:26 – What is Grassroots Advocacy?
    11:29 – Building Change Through Passion for Activities
    12:30 – The Thornton Rec Center Story: How Change Started
    14:49 – Expanding to Community Presentations and Trainings
    16:53 – Collaboration: The Key to Lasting Accessibility
    18:11 – Making Yoga Classes Inclusive for Low Vision
    20:36 – How to Start Advocacy at Your Local Rec Center
    23:03 – Planning and Expanding RecConnect
    25:30 – Expanding to Arts Venues Like the Arvada Center
    27:32 – How Advocacy Benefits Everyone
    29:54 – Long-Term Impact and the Power of Persistence
    32:20 – How to Get Involved with RecConnect
    33:59 – Preparing to Advocate: Tips and Obstacles
    36:13 – The Power of Persistence in Advocacy
    38:27 – Advocating for Hearing and Vision Accommodations
    40:38 – How Accessibility Benefits Entire Communities
    42:46 – Darcy’s Contact Information and Final Thoughts

    Contact Information
    Email: darcy@cpwd.org
    Phone: (720) 340-2088
    General Aftersight Contact:
    Email: contact@aftersight.org
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    45 m
  • S108: Family Advocacy

    S108: Family Advocacy
    Apr 22 2025
    In this heartfelt and informative episode, Kim Wardlow welcomes therapist and advocate Darran Zenger to explore the dynamics of family advocacy in the blind and low-vision community. Drawing from both professional expertise and personal experience living with Usher Syndrome, Darran dives into what it means to advocate for and within your family.
    From setting expectations and communicating evolving needs to building support systems and navigating shifting family roles, Darran offers practical strategies and emotional wisdom. The conversation also explores the emotional side of disability, the importance of peer connection, and the value of mental health support for both individuals and families.

    🕰️ Chapter Markers:
    00:00 – Welcome & Intro to the Advocacy Series
    01:20 – Meet Darran Zenger: Therapist and Advocate
    03:45 – Defining Family Advocacy in Context
    06:00 – Communication & Self-Advocacy Within the Family
    08:05 – Common Family Challenges and Emotional Struggles
    10:15 – Advocating for Inclusion in Everyday Life
    12:30 – Teaching Children Advocacy Through Lived Example
    14:35 – Balancing Support and Independence
    17:00 – Advocacy Through Layout, Routine & Environment
    19:00 – Empathy, Listening, and Perspective Shifts
    22:50 – Adapting to Progressive Vision Loss Over Time
    25:00 – Humor and Honesty in Self-Advocacy
    27:30 – Tools, Training, and Support for Families
    29:45 – Guide Dogs, Children, and Trust
    31:45 – Educating Without Exhaustion
    33:50 – Mental Health and the Need for Connection
    36:55 – Final Thoughts and Resources

    📬 Contact Information:
    📧 Email: contact@aftersight.org
    🌐 Website: www.aftersight.org
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    39 m
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Very informative-- a life changer

First of all, the host is so genuine. She really knows her subjects. The topics are life-saving for people who have lost their vision or are losing their vision. I strongly recommend this podcast for those who need to navigate to world after vision loss.

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