Episodios

  • Medical Series S1E2: Breaking the Silence with Dr. Jill McGarry: Mental Health Support for Chronic Sleep Disorders
    Jan 16 2026

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    In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health and mental health for managing narcolepsy. Dr. McGarry discusses strategies like energy level management, routines anchored by consistent wake times, and mindfulness. The conversation highlights the profound effects of psychological support, the importance of timing and sleep hygiene, and the benefits of a balanced diet. The episode underscores the need for a multidisciplinary approach in supporting individuals with narcolepsy and the potential benefits of community support.

    HIghlights:
    00:00 Welcome to Narcolepsy Navigators

    00:30 Introduction to Dr. Jill McGarry

    01:49 Understanding Narcolepsy and Mental Health

    06:32 Energy Management Techniques

    08:33 Mindfulness and Narcolepsy

    12:53 The Importance of Routine

    13:08 The Importance of Sleep Hygiene

    16:15 Sleep Hygiene and Nutrition

    35:08 Holistic Medical Support for Narcolepsy

    38:30 Challenges in Narcolepsy Treatment

    45:08 The Need for Better Narcolepsy Care

    55:29 The Role of Counseling

    55:42 Counseling and Cognitive Behavioral Therapy

    59:10 Final Thoughts and Advice for the Newly Diagnosed

    59:27 Finding Your Narcolepsy Tribe

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

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    www.napsforlife.com

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    ***If you find these symptoms relatable, please seek medical advice.***


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    44 m
  • S1E3:Advocacy Series: Advocacy in Action: A Discussion with Matt Hornsnell on Narcolepsy
    Jan 16 2026

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    In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep advocate diagnosed with narcolepsy type one and obstructive sleep apnea, who shares his extensive experiences in advocacy, public speaking, and research. Matt discusses the importance of community support, the challenges of male representation in advocacy, and the delicate balance between personal life and advocacy work. The conversation delves into topics like the impact of narcolepsy on relationships and mental health, and the necessity of setting boundaries. This episode is an inspiring exploration of how personal stories and lived experiences can drive awareness and change.

    Bio:

    Matt Horsnell is a husband, father of three, and sleep advocate living with NT1 (narcolepsy with cataplexy) and obstructive sleep apnea. As an author-advocate, he has published research on lived experience with sleep disorders. Matt also works as a consultant for the pharmaceutical industry and on behavioral sleep projects.

    Matt has presented in national conferences at SLEEP and the Society of Behavioral Sleep Medicine (SBSM). Additionally, Matt is the Co-Host of Hypersomnia Foundation’s UNIGHT.

    Matt was recognized as Project Sleep’s Inaugural Sleep Advocacy Champion in 2023. In 2025, he was recognized with Hypersomnia Foundation’s Patient Advocate Award. Matt presented on Sleep Health Equity to The White House (2023) and was featured in a CNN article about life with narcolepsy (2024).

    Highlights:

    [03:09] The Importance of Social Support

    [07:13] Challenges and Rewards of Advocacy

    [14:03] Male Representation in Narcolepsy Advocacy

    [22:02] Parenthood and Advocacy Balance

    [23:02] Setting Boundaries in Advocacy


    OFFICIAL WEBSITE
    www.napsforlife.com

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

    Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
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    ***If you find these symptoms relatable, please seek medical advice.***


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    34 m
  • S4E5: Running Half Marathons With Narcolepsy: Jayson’s Story From Taiwan
    Jan 7 2026

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    In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.

    Diagnosed as a teenager after repeatedly falling asleep in class, Jayson grew up navigating stigma, academic pressure, and deep misunderstandings — especially within a culture where performance and discipline are highly valued. Despite this, he has built a life centered around movement, self-awareness, and intentional boundaries, even running half marathons while managing narcolepsy.

    Jayson shares how suppressing emotions to avoid cataplexy affected his identity, why journaling and therapy changed his life, and how he re-designed his career to protect his health. He also gives rare insight into Taiwan’s healthcare system, cultural nap norms, military service exemptions, and what true balance looks like when energy is limited.

    This episode is honest, reflective, and deeply human — especially for anyone who has ever been told they “don’t look sick.”


    What You’ll Learn in This Episode

    • What it’s like being diagnosed with narcolepsy as a teen in Taiwan
    • How teachers misread symptoms as laziness or lack of motivation
    • The emotional cost of suppressing joy to avoid cataplexy
    • Why Jayson chose flexible work over traditional career paths
    • How exercise dramatically improves his sleep quality
    • The role of journaling and therapy in emotional survival
    • Cultural differences around naps and productivity
    • How plant-based eating helps him manage daytime sleepiness
    • Why narcolepsy is still not classified as a disability in Taiwan
    • His honest answer to the “red button” question


    Why This Episode Matters


    Narcolepsy doesn’t look the same in every country — and Jayson’s story highlights how culture, healthcare systems, and expectations shape the lived experience of sleep disorders. This conversation challenges stereotypes and proves that strength doesn’t always look like pushing harder — sometimes it looks like resting smarter.

    New Episode Out Now: https://www.napsforlife.com/podcast/episode/7f587a5c/s4e5-running-half-marathons-with-narcolepsy-jaysons-story-from-taiwan

    About the Guest

    Jayson is a PE teacher, endurance runner, and advocate from Taipei, Taiwan, living with Narcolepsy Type 1 with cataplexy. He uses movement, structure, and self-reflection to manage his condition and raise awareness across cultures.

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

    Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
    Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
    LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast
    TikTok: https://www.tiktok.com/@narcolepsynavigators
    Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

    ***If you find these symptoms relatable, please seek medical advice.***


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    35 m
  • S1E2: Advocacy Series: Lifting the Silence: Sleep Disorders Advocacy with Claire Wylds-Wright
    Dec 27 2025

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    In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.

    They’re joined by Claire Wylds Wright, a UK-based advocate whose journey into advocacy began when her daughter was diagnosed with narcolepsy at a young age. What started as a search for answers quickly evolved into a mission to create change—leading Claire to become an author, mentor, and co-founder of the Sleep Consortium.

    Claire shares what it really takes to advocate within healthcare systems, why listening is one of the most powerful tools in medicine, and how collaboration is shaping the future of sleep disorder research and treatment. The conversation also tackles misconceptions, healthcare disparities, and what upcoming treatments could mean for families worldwide.

    This episode is a must-listen for advocates, caregivers, clinicians, and anyone passionate about better sleep health outcomes.

    What You’ll Learn in This Episode:

    • How advocacy often begins at the diagnosis stage
    • Why patient voices matter in healthcare decision-making
    • The mission behind the Sleep Consortium
    • Differences between UK and US healthcare systems
    • Racial disparities in sleep disorder diagnosis and care
    • The future of narcolepsy and hypersomnia treatments
    • Advice for new advocates entering the space

    🎧 Listen now and join the movement shaping the future of sleep health.

    Bio:

    Claire is an award-winning author and patient advocate for people living with sleep disorders. After her daughter Mathilda developed Type1 Narcolepsy in 2010, her family moved from England to California to secure treatment and expert care for Mathilda under Professor Emmanuel Mignot at Stanford. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy was published in 2017 and tells the story of parenting a young child with Narcolepsy and the impact of Mathilda’s diagnosis on her life and her family. She lives in Los Angeles with her son, daughter, and cat Mochi.

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

    Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/
    Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
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    TikTok: https://www.tiktok.com/@narcolepsynavigators
    Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

    ***If you find these symptoms relatable, please seek medical advice.***


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    56 m
  • S4E4: Microsleeps, Hallucinations & Homework: Wendy’s Daily Fight
    Dec 10 2025

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    In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy triggered by laughter, hallucinations vivid enough to call the police, and the emotional toll of being a teenager who never gets to “just be a teenager.”

    Through humor, honesty, and incredible resilience, Wendy talks about friendships, family, school accommodations, dating with narcolepsy, and what it means to walk into adulthood with a chronic sleep disorder — completely unmedicated.

    Her story will break your heart, make you laugh, and leave you inspired.

    In This Episode, We Discuss:

    • Early symptoms and Wendy’s shockingly fast drop into REM (1.5 minutes!)
    • Managing 10+ cataplexy episodes a day
    • Being a teen with a hidden disability that classmates don’t understand
    • The fear and reality of hallucinations
    • Microsleeps, automatic behavior & writing dreams in school notes
    • Why Wendy chose to stay unmedicated
    • Accommodations in school and the struggle to be believed
    • Navigating friendship, dating & self-worth
    • Her dream of creating films that portray chronic illness accurately
    • Advice for teens with narcolepsy who feel alone

    New Episode Out Now

    Link: https://www.napsforlife.com/podcast/episode/7e049ba0/s4e4-microsleeps-hallucinations-and-homework-wendys-daily-fight

    Wendy is a passionate teen advocate and the creator of the narcolepsy awareness page @undyingnoir, where she designs educational infographics and shares her journey. She is beginning her college path in Film Production and hopes to create media that reflects real, misunderstood conditions like narcolepsy.

    Follow Wendy:

    Instagram: @undyingnoir

    Support the Podcast

    Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
    Visit: napsforlife.com

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

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    Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
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    Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

    ***If you find these symptoms relatable, please seek medical advice.***


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    59 m
  • S4 E3: Beyond Narcolepsy: A Journey of Consciousness and Healing
    Dec 9 2025

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    Trigger Content Notice:

    This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.

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    In this powerful and vulnerable episode of Narcolepsy Navigators, we sit down with Alexander, a 28-year-old from Pennsylvania who shares one of the most unique and spiritually profound narcolepsy journeys we’ve heard yet. Diagnosed at 17, his story moves through misdiagnosis, heavy stimulants, sleep paralysis, terrifying hallucinations, dopamine-seeking behaviors, pre-workout amphetamines, and how he rebuilt his life by shifting his mindset — spiritually, psychologically, and physically.

    TOPICS COVERED:

    • Narcolepsy diagnosis experience
    • Sleep paralysis + hallucinations
    • Dopamine regulation & reward cycles
    • Pre-workout supplements & hidden stimulants
    • Trauma + head injuries
    • Spiritual awakenings
    • Mushrooms as spiritual tools
    • Self-healing mindset
    • Cataplexy experiences
    • Redefining narcolepsy as “adaptation” instead of “disease.

    CONNECT WITH ALEXANDER
    IG: @sleepy.b.woke

    New Episode Out Now: https://www.napsforlife.com/podcast/episode/7efd5676/s4-e3-beyond-narcolepsy-a-journey-of-consciousness-and-healing


    Support the Podcast

    Join our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch.
    Visit: napsforlife.com


    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

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    Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/
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    TikTok: https://www.tiktok.com/@narcolepsynavigators
    Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

    ***If you find

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

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    ***If you find these symptoms relatable, please seek medical advice.***


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    49 m
  • S4E2: Firefighter, EMT, Advocate: Tara O'Connor Redefines What’s Possible with Narcolepsy
    Oct 9 2025

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    In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.

    Episode Out Now!

    Link: https://www.napsforlife.com/podcast/episode/81863df7/s4e2-firefighter-emt-advocate-tara-oconnor-redefines-whats-possible-with-narcolepsy

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

    Follow and support Narcolepsy Navigators:

    www.napsforlife.com

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    Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast

    ***If you find these symptoms relatable, please seek medical advice.***


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    43 m
  • S4E1: Kleine Levin Syndrome: Parenting Through The Challenges
    Oct 1 2025

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    In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.

    The conversation touches on:

    • The challenges of finding a diagnosis in rural Maine.
    • Navigating school, healthcare, and family life with a rare sleep disorder.
    • What support systems truly mean for children and parents.
    • Why raising awareness of KLS is critical to changing perceptions.

    This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.

    Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.

    Episode Out Now

    Link: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges


    #KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunity

    Support the show

    Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.

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    ***If you find these symptoms relatable, please seek medical advice.***


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    1 h y 17 m