S2E12 Jacquie & IH: The Reality Beyond Just ‘Tired’

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Summary

️ What if it took a decade to get answers?

In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, lab work, and daily life, Jacquie shares how she advocates for herself and others while juggling a demanding scientific career.

Key Takeaways:
✔️ The challenges of getting diagnosed with a rare sleep disorder
✔️ What it’s like managing IH in a high-pressure work environment
✔️ The mental toll of constantly feeling exhausted
✔️ Why raising awareness is crucial for funding future research

For Jacquie, science and advocacy go hand in hand. She refuses to let her condition define her future and is using her voice to create change.

Listen now!

Chapters

(00:00) Navigating Life With Sleep Disorders
(12:58) Navigating Life With Invisible Disabilities
(19:41) Accidental Journey Into Science
(22:43) Navigating Career Aspirations With IH
(26:26) Advocating for Research on Sleep Disorders
(31:41) Navigating and Advocating for Invisible Disabilities
(39:45) Navigating Hope in Adversity

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***If you find these symptoms relatable, please seek medical advice.***