Episodios

  • EP 44: Resonate 2004 - Adventure Without Limits
    Apr 28 2025

    Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant for their family to be part of an inclusive adventure experience where barriers were broken, and limits redefined. From climbing walls to zip wires, canoeing to abseiling, the Boltons share how the weekend opened doors to activities they never imagined possible. This is more than just a trip down memory lane – it's a celebration of possibility, accessibility, and the joy of trying something new. Come be reminded of the power of adventure, community, and the lasting impact of creating spaces where everyone can thrive.

    🔔 Don’t forget to like, comment, and subscribe for more content on living with SMA and thriving as a parent! #LivingWithSMA #Motorhood #ParentingWithDisability #SMA #AdaptiveParenting

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️

    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul..

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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    37 m
  • EP:43 - Motherhood, My Way: Parenting with SMA
    Apr 7 2025

    Motherhood & Living with SMA: Everything You Need to Know

    Description:
    Becoming a parent is a life-changing journey, and when you’re living with a long-term condition like Spinal Muscular Atrophy (SMA), it comes with its own unique set of challenges and joys. In this video, we dive into

    Motherhood—the experience of parenting while managing a disability.

    Join us as we discuss:
    ✅ Preparing for parenthood with a long-term condition
    ✅ Adaptive parenting techniques & equipment
    ✅ Navigating healthcare & support systems
    ✅ Overcoming challenges & embracing the joys of parenting

    Whether you have SMA, another disability, or just want to learn more about inclusive parenting, this video is packed with insights and real-life experiences to support you on your journey.

    🔔 Don’t forget to like, comment, and subscribe for more content on living with SMA and thriving as a parent!

    #LivingWithSMA #Motorhood #ParentingWithDisability #SMA #AdaptiveParenting

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk

    Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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    32 m
  • Ep 42: Uni the practical stuff
    Oct 31 2024

    Uni Life: Disabled and Thriving*

    In this episode, host Ross Lannon is joined by Molly Everitt and Zoe to dive into the real, practical side of university life as a disabled student. Together, they discuss everything from navigating campus accessibility to dealing with accommodations, managing workloads, and finding support networks. With personal stories, tips, and advice, this conversation covers what it’s really like to balance studies, independence, and disability. Whether you're a student or ally, this episode provides insights and practical advice to make university a more inclusive and empowering experience for everyone.

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    32 m
  • Ep 41: Getting ready for Uni
    Oct 4 2024

    Uni Bound: Navigating University Life with a Disability

    In this insightful episode of *Uni Bound*, host Ross Lannon is joined by guests Molly Everitt and Zoe Henderson for a candid discussion on preparing for university while living with a long-term disability. Together, they explore the added pressures of managing university life, from securing accessible accommodations in halls to coordinating support from carers. The conversation dives into the emotional and logistical challenges that disabled students face, while offering practical advice on advocating for your needs, navigating university services, and building a support network. If you're a student with a disability or simply want to understand the complexities of university life from this perspective, this episode provides invaluable insights, empathy, and encouragement.

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    33 m
  • Ep 40: Celebrating Pride
    Jul 2 2024

    Join host Steven on this special Pride episode of *Pride and Possibility*, where we celebrate the vibrant intersection of the LGBTQIA+ community and disability pride. Steven is joined by three incredible guests: Shelby, Emily, and Jordanne, who each bring unique perspectives and experiences as individuals living with disabilities and proudly identifying as part of the LGBTQIA+ community.

    In this heartfelt and empowering episode, Shelby, Emily, and Jordanne share their personal journeys, discussing the challenges and triumphs they have faced in navigating their identities. They delve into the importance of representation, the power of community, and the ways in which their disabilities and LGBTQIA+ identities have shaped their lives.

    Listeners will hear inspiring stories of resilience, advocacy, and joy as our guests talk about what Pride means to them. This episode is a celebration of diversity, inclusion, and the strength found in embracing all aspects of one's identity. Tune in to *Pride and Possibility* for an uplifting conversation that highlights the beauty of living authentically and the importance of solidarity within the LGBTQIA+ and disability communities.

    Celebrate Pride with us and discover the incredible stories of Shelby, Emily, and Jordanne as they inspire us all to live with pride and possibility.

    #PrideAndPossibility #DisabilityPride #LGBTQIA+ #Intersectionality #celebratediversity

    HIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk

    Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    Más Menos
    39 m
  • EP39: Festivals and Gigs
    May 29 2024

    Get ready to roll into the beat of festival vibes with our latest podcast episode, where we explore the world of festivals and gigs through the eyes of wheelchair users Jordanne, Mollie, and Ross, all living with SMA! 🎶✨

    Join us as we navigate the highs and lows of festival accessibility, from the thrill of inclusive experiences to the challenges faced by wheelchair users. Jordanne, Molly, and Ross will share their firsthand accounts of navigating festival grounds, accessing venues, and interacting with fellow event organisers.

    While the journey may have its bumps along the way, our guests will also shine a spotlight on the positive moments that have lit up their event experiences. From unique and special experiences to the triumph of overcoming accessibility barriers, these stories remind us that every obstacle is an opportunity for growth and empowerment.

    So grab your gear, tune into the rhythm of inclusivity, and join us for an insightful exploration of festivals and gigs from a wheelchair user's perspective. This episode promises to be a celebration of resilience, community, and the power of music to unite us all! 💃🕺🎉

    #LivingWithSMA #AccessibleEvents #WheelchairAdventures #InclusiveMusic

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    43 m
  • Ep 38: #KnowNoBounds making the outdoors more accessible
    Mar 28 2024

    Get ready to witness an incredible feat of determination and resilience in our latest podcast episode, where two powered wheelchair users, Maxwell and Joshua, talk about an awe-inspiring journey to race up Snowdon and raise £100k for a worthy cause. 🏔️💪
    In this exhilarating episode, we'll delve into the inspiring story behind their ambitious mission, aptly named #KnowNoBounds. Join us as we follow Maxwell and Joshua's incredible journey, from the initial spark of inspiration to the rigorous preparation and training required for such a monumental challenge.
    Through their unwavering spirit and determination, Maxwell and Joshua defy expectations and demonstrate that no obstacle is too great to overcome. Their mission not only showcases the limitless potential of individuals living with disabilities but also serves as a powerful reminder of the boundless strength of the human spirit.
    Tune in as we hear first-hand accounts from Maxwell and Joshua about their motivations, aspirations, and the impact they hope to make through their extraordinary journey. From heart-warming anecdotes to adrenaline-pumping moments, this episode promises to inspire, uplift, and ignite a sense of possibility within us all.
    Join us as we cheer on Maxwell and Joshua every step of the way, celebrating their courage, resilience, and unwavering determination to reach new heights—both literally and figuratively. Don't miss out on this unforgettable adventure! 🌟🎧
    #KnowNoBoundsChallenge #RaceForACause #InspiredByDetermination

    Donate here: https://smauk.org.uk/fundraising/2-powered-wheelchair-users-will-race-up-snowden-to-raise-100k-knownobounds/

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    #Resonate #OutdoorAdventures #SMACommunity

    If you would like to participate in any of our podcasts please email luis.castro@smauk.org.uk

    Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    Más Menos
    35 m
  • Ep37 Transport for All in 2024
    45 m