Living With SMA Podcast Por Spinal Muscular Atrophy UK (SMA UK) arte de portada

Living With SMA

Living With SMA

De: Spinal Muscular Atrophy UK (SMA UK)
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The charity SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.© 2025 Living With SMA Economía Gestión Gestión y Liderazgo
Episodios
  • EP 44: Resonate 2004 - Adventure Without Limits
    Apr 28 2025

    Resonate 2004: Adventure Without Limits – A Look Back at 2024 Join us as we rewind to one of the most inspiring moments of Resonate 2024 – Adventure Without Limits at Calvert Trust Exmoor. In this special reflection, we sit down with brothers Sam and Alex Bolton, who took part in a weekend full of excitement, courage, and firsts. With heartfelt input from their PA, Natalie, we hear what it meant for their family to be part of an inclusive adventure experience where barriers were broken, and limits redefined. From climbing walls to zip wires, canoeing to abseiling, the Boltons share how the weekend opened doors to activities they never imagined possible. This is more than just a trip down memory lane – it's a celebration of possibility, accessibility, and the joy of trying something new. Come be reminded of the power of adventure, community, and the lasting impact of creating spaces where everyone can thrive.

    🔔 Don’t forget to like, comment, and subscribe for more content on living with SMA and thriving as a parent! #LivingWithSMA #Motorhood #ParentingWithDisability #SMA #AdaptiveParenting

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️

    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul..

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

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    37 m
  • EP:43 - Motherhood, My Way: Parenting with SMA
    Apr 7 2025

    Motherhood & Living with SMA: Everything You Need to Know

    Description:
    Becoming a parent is a life-changing journey, and when you’re living with a long-term condition like Spinal Muscular Atrophy (SMA), it comes with its own unique set of challenges and joys. In this video, we dive into

    Motherhood—the experience of parenting while managing a disability.

    Join us as we discuss:
    ✅ Preparing for parenthood with a long-term condition
    ✅ Adaptive parenting techniques & equipment
    ✅ Navigating healthcare & support systems
    ✅ Overcoming challenges & embracing the joys of parenting

    Whether you have SMA, another disability, or just want to learn more about inclusive parenting, this video is packed with insights and real-life experiences to support you on your journey.

    🔔 Don’t forget to like, comment, and subscribe for more content on living with SMA and thriving as a parent!

    #LivingWithSMA #Motorhood #ParentingWithDisability #SMA #AdaptiveParenting

    THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️
    You can contact SMA UK on the following social media platforms ⬇️⬇️
    ▶ | INSTAGRAM: https://www.instagram.com/sma_uk
    ▶ | TWITTER: https://twitter.com/SMA_UK_
    ▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul...

    If you would like to participate in any of our podcasts please email gary.edgecombe@smauk.org.uk

    Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

    Más Menos
    32 m
  • Ep 42: Uni the practical stuff
    Oct 31 2024

    Uni Life: Disabled and Thriving*

    In this episode, host Ross Lannon is joined by Molly Everitt and Zoe to dive into the real, practical side of university life as a disabled student. Together, they discuss everything from navigating campus accessibility to dealing with accommodations, managing workloads, and finding support networks. With personal stories, tips, and advice, this conversation covers what it’s really like to balance studies, independence, and disability. Whether you're a student or ally, this episode provides insights and practical advice to make university a more inclusive and empowering experience for everyone.

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    32 m
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