Episodios

  • 2026 National Conference: What to Expect in San Antonio

    2026 National Conference: What to Expect in San Antonio
    Apr 5 2026
    Emma Mertens and Megan Messick discuss the Immune Deficiency Foundation's upcoming 2026 National Conference. Click here to register: https://web.cvent.com/event/098b166d-370c-4dda-b02e-f7d80d76a5c5/websitePage:190e3719-e947-4da1-8dc7-e18fd2abd955?environment=P2 Katherine Taylor: https://primaryimmune.org/resources/news-articles/muralist-cvid-spreads-joy-through-her-art Your support of the Immune Deficiency Foundation makes our content and events possible. Click here to donate: https://primaryimmune.org/donate The information, terminology, and opinions presented in this forum do not necessarily reflect the views of the Immune Deficiency Foundation, its Board of Trustees, sponsors, or donors.
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    13 m
  • "Make your own path as you walk." | CEO Jorey Berry introduces medical director Dr. Paula Henao

    "Make your own path as you walk." | CEO Jorey Berry introduces medical director Dr. Paula Henao
    Mar 25 2026
    TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Jorey%20and%20Paula.pdf On this episode, CEO Jorey Berry sits down with the foundation's new medical director, Dr. Paula Henao to discuss her career, her new role, and the state of immunology. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of the Immune Deficiency Foundation, its Board of Trustees, sponsors, or donors. Your support of the Immune Deficiency Foundation makes programming like this possible. Visit https://www.primaryimmune.org/donate to further our mission.
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    35 m
  • Exploring "Compromised: Life Without Immunity" | Behind the documentary

    Exploring "Compromised: Life Without Immunity" | Behind the documentary
    Feb 20 2026
    On February 27, the Immune Deficiency Foundation's first documentary feature ("Compromised: Life Without Immunity") will be available for all to watch on YouTube, free of charge. To celebrate, this podcast episode will feature a panel discussion amongst cast members Kim and Ben Everett, Yvette and Jerry Shorten, Victoria Medl, Shane Brisson, Dionne Stalling, and Ironmouse, who performed the film's theme song. The discussion is led by our foundation's Board Chair, Tracy Shaw. You can watch a video of this panel here: https://youtu.be/qKBjZRSBrl0 The information, terminology, and opinions presented in this forum do not necessarily reflect the views of the Immune Deficiency Foundation, its Board of Trustees, sponsors, or donors. Your support of the Immune Deficiency Foundation makes programming like this possible. Visit www.primaryimmune.org/donate to further our mission.
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    1 h y 3 m
  • Why PI affects the skin: Common rashes, infections, and immune dysregulation (dermatology deep dive)

    Why PI affects the skin: Common rashes, infections, and immune dysregulation (dermatology deep dive)
    Feb 3 2026
    TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20-%20Dermatological%20issues%20podcast.pdf Dr. Alexandra Freeman and Dr. Heidi H. Kong discuss dermatological manifestations of primary immunodeficiency. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors. Your support of the Immune Deficiency Foundation makes programming like this possible. Visit https://primaryimmune.org/donate to further our mission. To view a PDF of this presentation, click here: https://primaryimmune.org/sites/default/files/For%20WEB%20-%20IDF_DermTalkJan13.pdf
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    1 h y 32 m
  • Primary immunodeficiency & dental health: Protecting your mouth when your immune system is fragile

    Primary immunodeficiency & dental health: Protecting your mouth when your immune system is fragile
    Jan 13 2026
    Transcript: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20PI%20and%20oral%20health.pdf Click here to view a a PDF of this presentation: https://primaryimmune.org/sites/default/files/FOR%20WEB%20-%20Oral_Health_Arce.pdf Dr. Roger Arce provides a presentation on the links between primary immunodeficiency and oral health. Join us June 25-27 for the 2026 PI Conference in San Antonio, TX! www.primaryimmune.org/conference. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors. Your support of the Immune Deficiency Foundation makes programming like this possible. Visit primaryimmune.org/donate to further our mission.
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    1 h y 37 m
  • Undiagnosed: Reuben & Sherri Johnson on CGD, chronic illness, and the fight for healthcare

    Undiagnosed: Reuben & Sherri Johnson on CGD, chronic illness, and the fight for healthcare
    Dec 17 2025
    TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT.Undiagnosed.Reuben.pdf Reuben Johnson was diagnosed with chronic granulomatous disease, or CGD, at the age of ten. So much of his story takes place after his family had found some of the answers that are often elusive for others. Reuben learned early in life that joy is essential and simple. However, he would soon have to confront the cruelty of sickness and the cold realities of a medical system that either didn't understand him or didn't care. These things formed a perfect storm in the center of his life that threatened to wash away the joy that once came so easily to him. Find Reuben and Sherri on LinkedIn: https://www.linkedin.com/in/flyduo/ Your support of the Immune Deficiency Foundation helps ensure that people like Reuben get the education, advocacy, and support they deserve. To learn more about our mission and to donate, visit primaryimmune.org/donate. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
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    31 m
  • Cancer risk in primary immunodeficiency (PI): Lymphoma, screening, and treatment explained

    Cancer risk in primary immunodeficiency (PI): Lymphoma, screening, and treatment explained
    Dec 2 2025
    Transcript: https://primaryimmune.org/sites/default/files/Transcription%20-%20PI%20and%20cancer.pdf Dr. Charlotte Cunningham-Rundles provides a presentation on the link between primary immunodeficiency (PI) and cancer. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
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    1 h y 10 m
  • Job Hunting With Primary Immunodeficiency: HR Advice on Disclosure, Accommodations & Benefits

    Job Hunting With Primary Immunodeficiency: HR Advice on Disclosure, Accommodations & Benefits
    Nov 24 2025
    TRANSCRIPT: https://primaryimmune.org/sites/default/files/TRANSCRIPT%20Job%20hunting%20with%20PI.pdf On this episode of ChronicXTwenties, Myles Temple joins Chris Duckett (Director of human resources at the Immune Deficiency Foundation) to discuss the ins and outs of job hunting with primary immunodeficiency. Myles's website: www.mylestemple.com Your support of the Immune Deficiency Foundation helps us spread the word about primary immunodeficiency and those who live with it. To support our work, please donate at primaryimmune.org/donate. The information, terminology, and opinions presented in this forum do not necessarily reflect the views of IDF, its Board of Trustees, sponsors, or donors.
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    54 m