This week, co-hosts Sophia and Bernadette take you inside Sophia’s third year at Headache on the Hill, a biannual advocacy event where patients, neurologists, researchers, and headache advocates travel to Washington, D.C. to meet directly with lawmakers and push for stronger federal migraine and headache policy!
In this episode, we share and react to powerful stories from 15 inspiring advocates that Sophia interviewed at Headache on the Hill. From a high school student fighting for the next generation facing migraine and a cluster headache patient navigating an often invisible condition, to a trigeminal neuralgia advocate and her dedicated partner, each voice highlights the strength and diversity of the headache community.
You’ll also hear expert insights from neurologists on how to access the right diagnosis and care, plus the life-changing wisdom that helps keep our community strong, supported, and, of course, Chronically Peachy!
Timestamps
00:00 — Welcome & intro to Chronically Peachy
00:43 — What is Headache on the Hill?
01:56 — The migraine funding gap & why advocacy matters
03:03 — This year's three legislative asks: Headache Act, Safe Step Act & Connect for Health Act
04:10 — Advocate stories: Keely, Isabella, Heather & Sharon
06:50 — Reflecting on hope, grief & finding purpose in pain
09:54 — Hearing from the medical community: Dr. Baha, Dr. Barbara & Isaac
11:35 — Reframing self-blame & the migraine threshold
14:07 — Migraine beyond head pain: nervous system dysfunction
16:28 — Beyond migraine: spotlight on all headache disorders
17:29 — Advocate stories: Michael (cluster headache), Lisa & Chris (trigeminal neuralgia)
20:01 — Caregiving, navigating the ER & intersectional barriers to care
22:15 — No place for Pain Olympics: every story belongs
24:26 — Life-changing advice from advocates: Alicia, Christy, Jacqueline, Mandy & Montana
26:08 — Learning to say no without apologizing
28:44 — Cheryl's chronically peachy secret: her "sugar honey iced tea" playlist
30:00 — Sophia reflects on her favorite moments from the event
31:43 — How to get involved with Headache on the Hill (in person & virtually)
33:10 — Outro & where to find us
Follow us on social media
🎙 Chronically Peachy IG: @chronicallypeachypod
✨ Bernadette’s IG: @ChronicAccounts
✨ Bernadette’s TikTok: @ChronicAccounts
✨ Bernadette’s Threads: @ChronicAccounts
🍑 Peachy Day website: www.peachyday.co
🍑 Peachy Day TikTok: @peachyday.co
🍑 Peachy Day IG: @peachyday.co
Music: honey jam by massobeats