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All Access DNA

All Access DNA

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 What is DNA anyway? Should I consider genetic testing? Can my genes tell my future? All Access DNA honestly answers the questions you have about genetics, healthcare, and popular issues in precision medicine as it relates to our daily lives. We may even veer into territory that is no longer science fiction but science reality. Host Kate Wilson utilizes her genetic expertise and experience to interview leaders and specialists in genomic medicine and research.Constellation Genetics LLC, Copyright 2025 All rights reserved. Ciencia Ciencias Biológicas Enfermedades Físicas Hygiene & Healthy Living
Episodios
  • How do budget cuts impact genetic medicine?

    How do budget cuts impact genetic medicine?
    Jun 10 2025
    In this conversation, Eric Green discusses the role of the National Human Genome Research Institute (NHGRI) in leading the Human Genome Project and advancing genomic research. He shares his journey at NHGRI, highlighting the significant progress made in genomic medicine, including the All of Us Research Program, which aims to collect genomic and health data from a diverse population. Dr. Green emphasizes the importance of public sector involvement in data sharing and the challenges faced in genomic research. He also addresses the potential impact of funding cuts on future research initiatives. Dr. Green discusses the importance of public advocacy for genomics research and the need for a more equitable approach to genomic medicine. We highlight the growing relevance of genomics in healthcare and the necessity for better public understanding and communication of genomic information. Key Takeaways: The NHGRI was established to lead the Human Genome Project.Genomic information can improve disease diagnosis and treatment.The cost of sequencing a human genome has drastically decreased.The All of Us Research Program aims to collect genomic and health data from a million participants.Public sector involvement is crucial for data sharing in genomics.Funding cuts to NIH could severely impact genomic research initiatives.There is a risk of losing a generation of young scientists due to current policies.Healthcare professionals need to be equipped to discuss genomics with patients.The future of genomic medicine depends on continued research and public engagement. Dr. Eric Green is a genomics researcher, Human Genome Project participant, and former Director of the National Human Genome Research Institute (NHGRI) at the U.S. National Institutes of Health (NIH). He was the third NHGRI Director, having been appointed by NIH Director Dr. Francis Collins in 2009. He served as NHGRI Director from 2009 to 2025. Dr. Green was at NHGRI for over 30 years, during which he was appointed to multiple key leadership positions prior to becoming the NHGRI Director. This included serving as the NHGRI Scientific Director for 7 years, Chief of the NHGRI Genome Technology Branch for 13 years, and Founding Director of the NIH Intramural Sequencing Center for 12 years. For just over two decades, Dr. Green directed an independent research program that included integral start-to-finish roles in the Human Genome Project, groundbreaking work on mapping, sequencing, and comparing mammalian genomes, and key discoveries about the genes involved in several rare genetic diseases. Dr. Green earned his M.D. and Ph.D. degrees in 1987 from Washington University in St. Louis; coincidentally, the word “genomics” was coined in that same year. Throughout his career, he has authored and co-authored over 395 scientific publications. Dr. Green has earned multiple honors and awards, including election to the National Academy of Medicine in 2023. Following his greater than 30 years of public service as a federal employee at NHGRI and NIH, Dr. Green is now using his extensive experience in leading government-funded research programs to foster the expansion of genomics in academia, healthcare, and everyday life. Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com Here are more resources related to today’s topic: National Human Genome Research Institute (NHGRI)National Institutes of Health (NIH)All of Us Research ProgramThe Human Genome Project by Francis Collins and Leslie FinkScience impacts from recent limitation efforts from current administration:Do you remember the Human Genome Project? I’m not sure the Trump administration wants you toTrump’s proposed budget would mean ‘disastrous’ cuts to scienceScientific Research is Getting Cut—and That Should Scare All AmericansCuts to science agencies undermine hope for American health and economies from the American Society for Biochemistry and Molecular BiologyPBS News Hour- Scientists sound the alarm on Trump administration’s dismantling of research funding Ways to make your voice heard on saving science and genomicsContact your representativeShare your support for science on social media, engage in conversations with friends and family, and participate in local town hallsAdvocate for individuals who support science and evidence-based decision-making in federal agencies The Bethesda Declaration: A Call for NIH and HHS Leadership to Deliver on Promises of Academic Freedom and Scientific Excellence Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any ...
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    52 m
  • Why would someone have a third trimester abortion?

    Why would someone have a third trimester abortion?
    Jun 3 2025

    In this conversation, Dr. Shelley Sella discusses her book “Beyond Limits: Stories of Third-Trimester Abortion Care” and her experiences in providing third trimester abortion care. She emphasizes the importance of understanding the circumstances that lead individuals to seek such care, the emotional and psychological aspects involved, and the need for compassionate support. The discussion also touches on the legal implications surrounding abortion, the safety of the procedures, and the necessity for empathy and understanding in the healthcare system.

    Key Takeaways:

    • Third-trimester abortion care is often stigmatized and misunderstood.
    • The emotional and spiritual aspects of care are integral to the process.
    • Legal restrictions are increasing, making access to care more difficult.
    • Support systems are crucial for patients undergoing these procedures.
    • Abortion is far safer than continuing a pregnancy in many cases due to the high maternal mortality rate in the United States
    • The stories of patients can help demystify and destigmatize the procedure.

    Dr. Shelley Sella is a retired Board Certified Ob-Gyn and the first woman to openly provide third trimester abortion care in the United States. For 20 years Dr. Shelley Sella – an OB-GYN and the first woman to openly provide third-trimester abortion care in the United States – saw patients whose diverse backgrounds and circumstances led them to the same difficult decision: to end their pregnancies. Now, in her beautifully written and compassionate first book BEYOND LIMITS: Stories of Third-Trimester Abortion Care (June 3, 2025; Beacon Press; $27.95), Dr. Sella shares deeply intimate, profoundly human stories of this widely misunderstood experience. Combining candid memoir with expert account, Sella interweaves her patients’ stories with her own personal and professional journey (including her mentorship under Dr. George Tiller) to reveal why she dedicated her life to this work.

    Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com

    Check out our Patreon at patreon.com/allaccessdna and consider donating to get bonus content, submit questions for our guests, and connect with other genetic-curious individuals.

    Here are more resources related to today’s topic:.

    • Purchase book at bookstore.org
    • Remembering Dr. George Tiller
    • Los Angeles Times piece from 2015 on Dr. Susan Robinson
    • Information on midwifery from WHO
    • Overturning of Roe v Wade from NPR
    • Southwestern Women’s Options
    • Website to share stories about abortion from the National Abortion Federation
    • Article on the high maternal mortality rate in US
    • The Turnaway Study that describes the mental health, physical health, and socioeconomic consequences of receiving an abortion compared to carrying an unwanted pregnancy to term

    Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com

    Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health.

    The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ.

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    39 m
  • Replay: Should I delete my 23andMe data?

    Replay: Should I delete my 23andMe data?
    May 27 2025
    This is a replay of our bonus episode that was released on March 28, 2025 and prior to Regeneron Pharmaceuticals purchasing 23andMe. Regeneron entered the asset purchase agreement on May 19, 2025 and states it plans to maintain the consumer genetics business. Regeneron also stated it would prioritize the privacy, security and ethical use of 23andMe's customer data. See more about the announcement here. In this episode, we explore the complexities of genetic data privacy, particularly in light of 23andMe's recent bankruptcy filing. Anya Prince discusses the implications for customer data, the legal protections in place, and the unique risks associated with genetic information. The discussion also covers the challenges of data de-identification, customer rights regarding data deletion, and the potential for data breaches. The conversation concludes with reflections on the global landscape of genetic data privacy and the importance of understanding personal values in relation to data sharing. Key Takeaways: 23andMe's bankruptcy raises concerns about customer data.New ownership of 23andMe or its data could change how genetic data is used.Security breaches pose significant risks to genetic data.Global laws on data privacy vary significantly.Understanding personal values is crucial in data sharing decisions. Anya Prince, Professor of Law, Joseph F. Rosenfield Fellow in Law Professor Prince’s teaching and research interests explore health and genetic privacy, with a particular focus on genetic discrimination, the health privacy implications of big data, and the ethical, legal, and social implications of genomic testing. Her research particularly explores the intersections of social and biological data by interrogating the ethical and legal implications of how genetic data can be used to predict social traits and behaviors and, conversely, how social data can be used to predict medical information, including reproductive information. Her interdisciplinary work has been published in legal, bioethics, and medical journals, including the Boston College Law Review, North Carolina Law Review, Iowa Law Review, JAMA, the American Journal of Bioethics, Journal of Law, Medicine, and Ethics, and Genetics in Medicine. In 2022, she was awarded a four-year R01 grant from the National Human Genome Research Institute (NHGRI) at the National Institutes of Health (NIH) to study the ethical, legal, and social implications of sociogenomic polygenic scores. In 2023, she was awarded a Bridging Bioethics, Research & Policymaking grant from the Greenwall Foundation to develop resources regarding state-level genetic privacy legislation. In addition to these grants, Professor Prince is an investigator, consultant, or advisory board member on multiple other NIH-funded projects. She had previously been awarded a Pathway to Independence Award (K99/R00) from NHGRI to examine the use of genetic information by life, long-term care, and disability insurers. Professor Prince is a former Visiting Assistant Professor of Law at Indiana University’s Robert H. McKinney School of Law, where she taught Employment Law and Genetics and the Law. Before joining the legal academy, she served as a Post-doctoral Research Fellow at the UNC Center for Genomics and Society (CGS) in the Department of Social Medicine at UNC-Chapel Hill School of Medicine. Professor Prince has also worked as a Skadden Fellow and Staff Attorney at the Cancer Legal Resource Center in Los Angeles, California. You can follow her @anyaprince.bsky.social Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com Check out our Patreon at patreon.com/allaccessdna and consider donating to get bonus content, submit questions for our guests, and connect with other genetic-curious individuals. Here are more resources related to today’s topic: Press Release from 23andMe about Voluntary Chapter 11 Initiation23andMe Privacy InformationCalifornia Attorney General Consumer Alert 23andMeHIPAA Information from US Department of Health and Human Services SNP genotyping: technologies and biomedical applicationsArticle from Slate on GEDMatch being Acquired by VerogenArticle from BBC News on 23andMe Profiles Being HackedWhat is GDPR from gdpr.edu Any inquiries on the podcast can be sent to AllAccessDNA@gmail.com Note that this podcast is for entertainment and education and is not intended to be a substitute for professional medical advice. Please consult your physician with any questions you may have regarding your health. The All Access DNA team includes: host, producer and editor Kate Wilson. The logo is designed by Designs by NKJ.
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    38 m
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