In this episode of Talking Head Pain, Sarah is joined by Nicole, a nursing student living with migraine. Nicole shares her harrowing journey, the challenges of navigating health care, and how she turned her struggle into advocacy for herself and others. Nicole's experiences highlight the power of advocacy, the impact of stigma, and the importance of community support in living with migraine.

Join Sarah and Nicole for an episode that offers valuable insights for anyone looking to advocate for better migraine care and understanding.

Among the highlights in this episode:

01:20: Nicole recounts a severe migraine attack following a concussion in 2016, detailing the array of debilitating symptoms she experienced

02:25: Nicole discusses how educating herself about migraine, joining support groups, and learning to advocate for herself were crucial steps in managing her condition

03:50: Nicole shares practical advice on preparing for medical appointments, including keeping detailed health records and symptom notes to improve communication with health care providers

06:13: Nicole and Sarah highlight the significance of finding a community through support groups, sharing experiences, and not feeling alone in the journey with migraine

07:35: Nicole discusses the challenge of advocating for herself among family and friends and the importance of sharing personal stories to educate others about the realities of living with migraine

13:31: Nicole reflects on what motivated her to seek better treatment and care, emphasizing the role of research, therapy, and the determination to live independently despite her condition

15:26: Nicole acknowledges that despite best efforts, some people still struggle with migraine management due to the unique ways migraine affects each individual

Contact Our Hosts:

Joe Coe, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Sarah is joined by colleagues Kelly Gavigan and Eric Stone as they delve into the nuances of episodic migraine care. They discuss GHLF's UpEnd Migraine Project, which aims to enhance health care provider education in primary and emergency care settings for better migraine management. Through a conversation that spans personal experiences and the project's objectives, the episode sheds light on the challenges and opportunities in treatment for those living with episodic migraine.

If you are a health care provider or a patient living with episodic migraine, make sure to listen to the episode and participate in our survey. This will help more patients like you, get diagnosed and on proper treatment.

Healthcare, Nurse & ER Practitioner Survey: https://www.research.net/r/FBDYLHM

Episodic Migraine Patient Survey: https://singuser0bd3f30c.iad1.qualtrics.com/jfe/form/SV_0OGZIOGI0mmtMsm?Source=Ext

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, recorded live at Headache on the Hill, Sarah brings together a diverse group of patient advocates to share their personal stories and reasons for advocating for migraine awareness and better treatment access. The episode delves into the importance of advocacy, the need for improved health care policies, and the power of sharing one's story to break the silence and stigma surrounding chronic migraine.

Join Sarah and her guests for an inspiring episode that highlights the collective effort of the migraine community to make a lasting impact on the hill and beyond.

Contact Our Hosts:

Joe Coe, Director, Therapeutic Area Growth and Integration at GHLF: jcoe@ghlf.org

Sarah Shaw, Senior Manager of BIPOC Community Outreach at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Manager of Programs & Special Projects at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.