In this week’s episode, we sit down with Brent and Suzette to share the story of their daughter Chloe and her journey with a rare mitochondrial disorder. What began as a typical pregnancy quickly shifted into a complex medical journey marked by uncertainty, advocacy, and deep resilience.

Brent and Suzette vulnerably reflect on receiving Chloe’s diagnosis of Leigh Syndrome, navigating hospitalizations and developmental changes, and learning how to care for and advocate for their daughter while holding both grief and joy at the same time. Now 17 years into their journey, they offer powerful wisdom on partnership, perseverance, and choosing hope in the face of the unknown.

You’ll also hear how Chloe’s life and children like her, continue to inspire a greater mission through Morgan’s–creating inclusive spaces where individuals of all abilities are seen, valued, and celebrated.

As you listen, we hope you feel seen, supported, and reminded that even in the hardest moments, you are not alone!

The Mission of Morgan’s: To improve the quality of life for individuals of all ages and all abilities through initiatives that produce fully-inclusive, Ultra-Accessible™ experiences.

To get connected with Morgan’s:
Website | Instagram | Facebook

About Brent: Brent is the Chief Executive Officer of Morgan’s, a family of ultra-accessible, fully inclusive spaces designed with individuals with disabilities in mind and built for everyone to enjoy. With over 30 years of executive leadership experience across education, healthcare, research, and social services, Brent brings both strategic vision and heart to his work. Under his leadership, Morgan’s has grown to include a theme park, sports complex, camp, multi-assistance center, and inclusion institute, impacting communities on a local, national, and global level.

To get connected with DNM:
Website | Private Facebook Group | Instagram

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It’s time for another Mamas Call In episode! Our call-in episodes are some of our favorites because it gives us the chance to hear from this remarkable sisterhood.

This month’s prompt was: “What would you tell a NICU mama who just received a new diagnosis for her baby or NICU grad? What is something you would want her to know?”

From reminders that you are not alone, to giving yourself grace in the unknown, to taking things one heartbeat at a time, this episode is filled with the words so many of us NICU mamas need in the tender seasons of NICU parenthood.

Thank you to each of you who submitted voice memos and reflections! Our next month’s prompt is, “What words of hope would you offer another NICU mama this Mother’s Day?” To call in and share your heart, head to our form here!

To get connected with DNM:

Website | Private Facebook Group | Instagram

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In this week’s episode, in honor of Cerebral Palsy Awareness Month, we’re hosting a powerful roundtable conversation sharing real, honest stories from NICU moms navigating this diagnosis with their NICU miracles. Melissa, Vilma, Andrea, and Aisha together share about what it’s like to hear the words Cerebral Palsy for the first time, why it can feel so heavy, and how that understanding shifts over time. We unpack the reality that CP is a spectrum and that no two children and no two journeys look the same.

In this episode, you’ll hear:

• How each of them processed the diagnosis and learned to hold both grief and joy at the same time
• The importance of early intervention, advocacy, and letting your child lead the way
• What it looks like to navigate therapies, school systems, and support services
• The emotional realities of motherhood, relationships, and life after the NICU

More than anything, this conversation highlights the power of community and how reaching out, finding support, and walking alongside other moms can be essential on our healing journeys.

As we recognize Cerebral Palsy Awareness Month, we hope this episode brings greater understanding, compassion, and hope. Your child’s unique story is still unfolding, and you are not alone!

To get connected with DNM: Website | Private Facebook Group | Instagram

This podcast episode is not an attempt to practice medicine or provide medical advice. All information, content, and material on this website is for informational purposes only and is not intended to be a substitute for professional medical or mental health advice, diagnosis or treatment.

To get connected with NICU Alumni: Website

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