Caregivers SHARE, a St. Jude Podcast Podcast Por St. Jude (SJCRH) arte de portada

Caregivers SHARE, a St. Jude Podcast

Caregivers SHARE, a St. Jude Podcast

De: St. Jude (SJCRH)
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A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.2023 Enfermedades Físicas Higiene y Vida Saludable
Episodios
  • Episode 5: Emotional Wellbeing

    Episode 5: Emotional Wellbeing
    Nov 20 2025
    Emotional wellbeing involves being present, having courage, and focusing on what’s important—even in tough times. But emotional health may look different when a child has a serious illness, especially if emotional health needs were there before diagnosis.

    In this episode, Clay Culp and Kendra Parris talk with caregiver Patricia LeBlanc and her daughter Sophie about emotional health while Sophie was going through treatment. Sophie was diagnosed with Ewing sarcoma at age 12. Kendra talks about the importance of taking care of yourself before you can take care of your child. Patricia discusses how her vision for Sophie’s life had to shift and explains how they embraced times to play and have fun together. Sophie talks about how her confidence grew and how she learned to manage her anxiety. The group explores the importance of sharing your burdens and getting support.

    A special thank you to our host, Clay Culp, senior social worker at St. Jude; our expert Kendra Parris, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and Patricia and Sophie LeBlanc.

    This episode was recorded August 1, 2025.

    Learn more about Sophie’s diagnosis of Ewing sarcoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about Psychology and Mental Health Services and wound vac therapy on Together by St. Jude™.

    A halo brace (or halo vest), mentioned in this episode, is a brace used to keep the spine and neck from moving and protect them after surgery.

    If you’re feeling hopeless, contact the 988 Suicide & Crisis Lifeline by calling or texting 988, or chatting online for support. 

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    35 m
  • Episode 4: Fertility Preservation Decisions

    Episode 4: Fertility Preservation Decisions
    Oct 16 2025
    Some treatments for serious illness can affect a patient’s ability to have biological children later in life, but there are ways to protect fertility. When a child is seriously ill, fertility preservation is a tough but important topic to address.

    In this episode, Mark Brown and Kari Bjornard talk with Evan Moore about fertility preservation when he was going through treatment. An elite NCAA track and cross-country athlete, Evan was diagnosed with Hodgkin lymphoma in his early 20s. Evan discusses the honest conversations he had with his mom and fiancée about preserving fertility. Kari offers insights into the timing, steps to take, talking to your care team, and other options for having a family. The group talks about staying positive and being with the people you love.

    A special thank you to our host, Mark Brown, director of Spiritual Care Services at St. Jude; our expert Kari Bjornard, director of the Fertility Program and assistant member of the Oncology faculty at St. Jude; and patient Evan Moore.

    This episode was recorded August 7, 2025. Stay tuned for a forthcoming episode on female fertility preservation decisions.

    Learn more about Evan’s diagnosis of Hodgkin lymphoma on St. Jude Care & Treatment and Together by St. Jude™.

    Learn more about male fertility and female fertility on Together by St. Jude™.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    39 m
  • Episode 3: Understanding Sickle Cell Disease

    Episode 3: Understanding Sickle Cell Disease
    Sep 18 2025
    Sickle cell disease is a blood disorder that affects patients physically, emotionally, and socially. Even though sickle cell research and treatment have improved over the last several years, many are still learning about how this condition impacts the body and daily life.

    In this episode, parents Audrey Davis and Quenton Mullins talk with Tekeima Townsend-Billups and Jerlym Porter about going through sickle cell disease with their daughters Courtney and Nia. They discuss the invisible and unpredictable nature of the disease, dealing with pain crises, the importance of therapy, and advocating for their children.

    A special thank you our host, Tekeima Townsend-Billups, senior staff chaplain at St. Jude; our expert, Jerlym Porter, associate member of the St. Jude faculty in Psychology and Biobehavioral Sciences; and parents Audrey Davis and Quenton Mullins.

    Learn more about Courtney and Nia’s diagnosis of sickle cell disease and the transition to adult health care on Together by St. Jude™.

    The statistics that Quenton mentions on sickle cell disease in the U.S. can be found on the CDC’s website.

    Discover more insights into Nia’s journey on the Together blog.

    This episode was recorded May 15, 2025.

    St. Jude does not endorse any branded product or organization mentioned in this podcast.
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    45 m
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