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BloodStream

BloodStream

De: BloodStream Media
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BloodStream is an entertaining and informational podcast for the bleeding disorders community. Each week, hemophilia patient Patrick James Lynch and former non-profit director Amy Board are joined by advocacy leaders, medical experts, and other guests to discuss the latest news, scientific advancements, policy initiatives, and so much more. Subscribe wherever you listen, or search BloodStream Podcast on YouTube to catch every episode there. Produced by Believe Limited. Presenting sponsor: Takeda. Higiene y Vida Saludable Psicología Psicología y Salud Mental
Episodios
  • What happened to HEMGENIX!? An update on gene therapy.
    Apr 10 2026

    CSL Behring just announced a global "stockout" of Hemgenix—what's happening, and what does it mean for patients? On this episode of BloodStream Podcast, we break down the news, launch our mini-series on plasma donation, and hear from Thomas Savage in our I'm Fine segment, sharing the highs, the lows, and the reality of living with a severe bleeding disorder.

    Pain, perseverance, and the lessons learned along the way give a rare, unfiltered glimpse into life behind the headlines—reminding us all that every treatment, every donation, and every day matters.

    Show Notes:

    I'm Fine is presented by @SanofiUS

    #bloodstreammedia #raredisease #bleedingdisorders #podcast #chronicdisease #hemophiliacommunity #advocacy

    Presenting Sponsor:

    Takeda, visit bleedingdisorders.com to learn more.



    Subscribe:

    The BloodStream Podcast

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on X/Twitter

    BloodStream on Instagram

    BloodStream on LinkedIn

    BloodStream on TikTok

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    34 m
  • Understanding Hemophilia A & B with Inhibitors: SEVENFACT in Focus
    Apr 3 2026

    In this special partnered episode of the BloodStream Podcast, hosts Patrick James Lynch and Amy Board speak with hematologist Dr. Tami Singleton about hemophilia A and B with inhibitors, a complex condition that changes how bleeding episodes are treated. Dr. Singleton explains what inhibitors are, why they develop, and how they impact clotting and everyday life for patients and families. The conversation also explores SEVENFACT, a recombinant factor VIIa bypassing agent, including how it works and what patients should know about dosing and treatment planning.


    Click here to learn more about SEVENFACT.

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    41 m
  • 100 Years of vWD w/ Dr. Nathan Connell
    Mar 27 2026

    This year marks 100 years since von Willebrand disease (vWD) was first described, and on this episode of BloodStream we take a closer look at how far the field has come.

    Our beloved hosts, Patrick and Amy happily welcome Dr. Nathan Connell, hematologist and leading expert in bleeding disorders, for a conversation about the past, present, and future of vWD. Together they explore how our understanding of the condition has evolved since its discovery, the challenges that remain in diagnosis and care, and why awareness still matters for the millions of people worldwide living with vWD.

    From early clinical observations to modern treatment approaches, Dr. Connell reflects on the milestones that have shaped care over the last century—and what the next hundred years could hold.

    Plus, a preview of what's coming next on BloodStream as we approach World Hemophilia Day.

    Show Notes:

    Presenting Sponsor:

    Takeda, visit bleedingdisorders.com to learn more.

    Subscribe:

    The BloodStream Podcast

    Connect with BloodStream Media:

    BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on X/Twitter

    BloodStream on Instagram

    BloodStream on LinkedIn

    BloodStream on TikTok

    Más Menos
    33 m
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