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Thriving with Neurofibromatosis
- Narrated by: Kirstianne Hopkins
- Length: 2 hrs and 59 mins
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Thriving with Neurofibromatosis
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Publisher's summary
One in 3,000 people is born with neurofibromatosis. It affects all of them in different ways. For some, neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of them are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all the effects of NF. Stereotyped, ignored, or shunned by a world who thinks they either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks, NF'ers often choose to hide from others - and end up hiding from themselves.
My name is Kristi Hopkins. In 2007, I chose to stop hiding, and start thriving. NF had become a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do you.
Thriving with Neurofibromatosis. We all have a story, this is mine.
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Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.
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4 out of 5 stars
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Loved this!
- By Daryl on 11-24-14
By: Rebecca Alexander, and others
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Before I Had the Words
- On Being a Transgender Young Adult
- By: Skylar Kergil
- Narrated by: Skylar Kergil
- Length: 7 hrs and 7 mins
- Unabridged
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Overall4.5 out of 5 stars 102
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Performance4.5 out of 5 stars 93
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Story4.5 out of 5 stars 93
At the beginning of his physical transition from female to male, then-17-year-old Skylar Kergil posted his first video on YouTube. In the months and years that followed, he recorded weekly update videos about the physical and emotional changes he experienced. Skylar’s openness and positivity attracted thousands of viewers, who followed along as his voice deepened and his body changed shape. Through surgeries and recovery, highs and lows, from high school to college to the real world, Skylar welcomed others on his journey.
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5 out of 5 stars
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So grateful to help me as grandma
- By Lisa Bridges on 11-11-20
By: Skylar Kergil
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Does This Baby Make Me Look Straight?
- Confessions of a Gay Dad
- By: Dan Bucatinsky
- Narrated by: Dan Bucatinsky
- Length: 5 hrs and 37 mins
- Unabridged
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Overall4.5 out of 5 stars 866
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Performance4.5 out of 5 stars 795
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Story4.5 out of 5 stars 794
In 2005, Dan Bucatinsky and his partner, Don Roos, found themselves in an L.A. delivery room, decked out in disposable scrubs from shower cap to booties, to welcome their adopted baby girl - launching their frantic yet memorable adventures into fatherhood. Two and a half years later, the same birth mother - a heroically generous, pack-a-day teen with a passion for Bridezilla marathons and Mountain Dew - delivered a son into the couple’s arms.
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3 out of 5 stars
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A Parenting Book with Humor and Heart
- By The Reading Date on 02-05-14
By: Dan Bucatinsky
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Chicken Soup for the Soul: Think Positive
- 101 Inspirational Stories about Counting Your Blessings and Having a Positive Attitude
- By: Jack Canfield, Mark Victor Hansen, Amy Newmark, and others
- Narrated by: Tanya Eby, Jim Bond
- Length: 10 hrs and 39 mins
- Unabridged
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Overall4 out of 5 stars 175
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Performance4 out of 5 stars 145
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Story4 out of 5 stars 148
101 True Stories about how Positive Thinking can change your life! Everyone needs a little attitude adjustment once in a while, and these amazing true life stories reveal how real people used positive thinking to improve their lives and overcome challenges. You’ll read stories about how you can make every day a special day, incorporate gratitude and joy into your daily life, count your blessings and change your outlook, use a few well-chosen words to reorient your life, manage cancer and other health challenges through a positive attitude, simplify and have a more meaningful life and more!
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5 out of 5 stars
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Great read!
- By AnAppleForEden on 02-12-13
By: Jack Canfield, and others
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I'm Walking as Straight as I Can
- Transcending Disability in Hollywood and Beyond
- By: Ted Nichelson, Geri Jewell
- Narrated by: Geri Jewell
- Length: 14 hrs and 3 mins
- Unabridged
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Overall5 out of 5 stars 28
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Performance5 out of 5 stars 26
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Story5 out of 5 stars 26
Born with cerebral palsy, Geri Jewell inspired a generation of young people when she became the first person with a disability to appear in a recurring role on prime-time television, with her groundbreaking character, Cousin Geri, on the NBC sitcom The Facts of Life. The book's title - I’m Walking As Straight As I Can - has a double meaning, referring to both Jewell's sexuality and her extraordinary struggle growing up with cerebral palsy.
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5 out of 5 stars
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Excellent! I recommend!
- By Sharlotte on 06-06-16
By: Ted Nichelson, and others
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An Uncomplicated Life
- A Father's Memoir of His Exceptional Daughter
- By: Paul Daugherty
- Narrated by: Robert McCollum
- Length: 9 hrs and 17 mins
- Unabridged
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Overall5 out of 5 stars 33
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Performance5 out of 5 stars 30
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Story5 out of 5 stars 30
A father’s exhilarating and funny love letter to his daughter with Down syndrome whose vibrant and infectious approach to life has something to teach all of us about how we can better live our own. Jillian Daugherty was born with Down syndrome. On the day Paul and Kerry, her parents, brought her home from the hospital they were flooded with worry and uncertainty, but also overwhelming love, which they channeled to “the job of building the better Jillian”. While their daughter had special needs, they refused to allow her to grow up needy - “expect, don’t accept” became their mantra.
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5 out of 5 stars
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A Story on the Beauties of DS
- By Matthew on 04-16-23
By: Paul Daugherty
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Everything You Ever Wanted
- A Memoir
- By: Jillian Lauren
- Narrated by: Jillian Lauren
- Length: 8 hrs and 16 mins
- Unabridged
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Overall5 out of 5 stars 69
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Performance5 out of 5 stars 60
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Story5 out of 5 stars 58
In her younger years, Jillian Lauren was a college dropout, a drug addict, and an international concubine in the Prince of Brunei's harem, an experience she immortalized in her best-selling memoir, Some Girls. In her 30s, Jillian's most radical act is learning the steadying power of love when she and her rock star husband adopt an Ethiopian child with special needs.
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5 out of 5 stars
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Great for adoptive families
- By berry bomb on 07-06-22
By: Jillian Lauren
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Not Afraid of Life
- My Journey So Far
- By: Bristol Palin, Nancy French
- Narrated by: Bristol Palin
- Length: 6 hrs and 49 mins
- Unabridged
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Overall4.5 out of 5 stars 33
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Performance4.5 out of 5 stars 25
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Story4.5 out of 5 stars 26
In this personal memoir, Bristol Palin opens up for the first time ever. She takes listeners behind the scenes, from growing up in Alaska to coming of age amid the media and political frenzy surrounding her mother's political rise; from becoming a single mother while still a teenager to coping as her relationship with the baby's father crumbled publicly. Through all of these ups and downs, Bristol learned how to face her challenges head-on, with courage and grace.
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5 out of 5 stars
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Forgiveness
- By Dennis on 01-16-16
By: Bristol Palin, and others
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Finding Grace
- A True Story about Losing Your Way in Life...and Finding It Again
- By: Donna VanLiere
- Narrated by: Donna VanLiere
- Length: 4 hrs and 37 mins
- Unabridged
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Overall4.5 out of 5 stars 32
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Performance5 out of 5 stars 26
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Story4.5 out of 5 stars 27
Finding Grace is the powerful, often humorous, and deeply moving story of one woman's journey of broken dreams. It is the story of how a painful legacy of the past is confronted and met with peace. This book is for anyone who has struggled to understand why our desires---even the simplest ones---are sometimes denied or who has questioned where God is when we need Him most. This story is about one woman's unlikely road to motherhood. Finally, it's a book about the "undeserved gift which is life itself."
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5 out of 5 stars
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Finding Grace... and joy, delight, and camaraderie
- By WeRLoved on 02-02-17
By: Donna VanLiere
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Instant Mom
- By: Nia Vardalos
- Narrated by: Nia Vardalos
- Length: 7 hrs and 34 mins
- Unabridged
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Overall4.5 out of 5 stars 224
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Performance5 out of 5 stars 201
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Story4.5 out of 5 stars 201
Some families are created in different ways but are still, in every way, a family. Writer and star of My Big Fat Greek Wedding Nia Vardalos firmly believed she was supposed to be a mom, but Mother Nature and modern medicine had put her in a headlock. So she made a choice that shocked friends, family, and even herself: with only 14 hours' notice, she adopted a preschooler.
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5 out of 5 stars
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A wealth of information for those who wish to adopt
- By Michele Sutherland on 01-11-23
By: Nia Vardalos
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Why I Hate Green Beans
- And Other Confessions About Relationships, Reality TV, and How We See Ourselves
- By: Lincee Ray
- Narrated by: Lincee Ray
- Length: 4 hrs and 57 mins
- Unabridged
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Overall4.5 out of 5 stars 61
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Performance5 out of 5 stars 53
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Story4.5 out of 5 stars 53
If there is one thing Lincee Ray has learned over the years, it's that the majority of women on the planet struggle with insecurities. Our skinny jeans mock us. Our just-trying-to-help mothers are just driving us crazy. Our social media feeds taunt us with everyone else's picture-perfect lives. It's enough to send you on a gummy-bear bender while binge-watching Friends reruns and not showering for a week. Lincee knows. She's been there. Right there, in fact. Gummy bears and all.
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5 out of 5 stars
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Perfect in every way!
- By Anonymous User on 10-19-22
By: Lincee Ray
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Chicken Soup for the Soul - Find Your Happiness
- 101 Inspirational Stories about Finding Your Purpose, Passion, and Joy
- By: Jack Canfield, Mark Victor Hansen
- Narrated by: Cynthia Barrett
- Length: 11 hrs and 40 mins
- Unabridged
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Overall4 out of 5 stars 50
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Performance4 out of 5 stars 42
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Story4 out of 5 stars 42
What makes you happy? Others share how they found their passion, purpose, and joy in life in these 101 personal and exciting stories that are sure to inspire and encourage listeners to find their own happiness. Chicken Soup for the Soul: Find Your Happiness will encourage listeners to pursue their dreams, find their passion and seek joy in their life with its 101 personal and inspiring stories. This book continues Chicken Soup for the Soul’s focus on inspiration and hope, reminding us that we all can find our own happiness.
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2 out of 5 stars
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I got even more depressed
- By Tom on 09-08-14
By: Jack Canfield, and others
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Inconceivable
- A Medical Mistake, the Baby We Couldn't Keep, and Our Choice to Deliver the Ultimate Gift
- By: Carolyn Savage, Sean Savage
- Narrated by: Cassandra Campbell, Danny Campbell
- Length: 9 hrs and 52 mins
- Unabridged
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Overall4.5 out of 5 stars 67
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Performance4.5 out of 5 stars 57
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Story4.5 out of 5 stars 54
A medical mistake during an IVF procedure.An unthinkable situation....you're pregnant with the wrong baby. You can terminate, but you can't keep him. What choice would you make?
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3 out of 5 stars
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"Misconception" and "Inconceivable"
- By Simone on 12-17-12
By: Carolyn Savage, and others
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Laughing at My Nightmare
- By: Shane Burcaw
- Narrated by: Kirby Heyborne
- Length: 6 hrs and 7 mins
- Unabridged
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Overall4.5 out of 5 stars 558
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Performance4.5 out of 5 stars 498
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Story4.5 out of 5 stars 498
With acerbic wit and a hilarious voice, Shane Burcaw's Laughing at My Nightmare describes the challenges he faces as a 21-year-old with spinal muscular atrophy. From awkward handshakes to having a girlfriend and everything in between, Shane handles his situation with humor and a "you-only-live-once" perspective on life. While he does talk about everyday issues that are relatable to teens, he also offers an eye-opening perspective on what it is like to have a life threatening disease
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5 out of 5 stars
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Insightful and unflinchingly honest
- By Abby Goldsmith on 11-09-14
By: Shane Burcaw
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Bloom
- Finding Beauty in the Unexpected - A Memoir
- By: Kelle Hampton
- Narrated by: Kelle Hampton
- Length: 6 hrs and 41 mins
- Unabridged
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Overall4.5 out of 5 stars 78
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Performance4.5 out of 5 stars 72
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Story5 out of 5 stars 71
When Kelle Hampton's new daughter was placed in her arms in the delivery room, she knew instantly that something was wrong. As her friends and family celebrated, a terrified Kelle was certain that Nella had Down syndrome - a fear her pediatrician soon confirmed. Yet gradually Kelle embraced the realization that she had been chosen to experience an extraordinary and special gift. With lyrical prose and gorgeous photography, Bloom takes listeners on a wondrous journey through Nella's first year of life.
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5 out of 5 stars
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Beautiful Story
- By Janelle on 03-10-24
By: Kelle Hampton
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Believing in Magic
- My Story of Love, Overcoming Adversity, and Keeping the Faith
- By: Cookie Johnson, Denene Millner
- Narrated by: Robin Miles
- Length: 7 hrs and 11 mins
- Unabridged
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Overall4.5 out of 5 stars 419
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Performance4.5 out of 5 stars 366
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Story4.5 out of 5 stars 370
On November 7, 1991, basketball legend Magic Johnson stunned the world with the news that he was HIV-positive. For the millions who tuned in as he shared his news, Magic's revelation became a seminal moment for the nation. Now twenty-five years later, Cookie Johnson shares her story and the emotional journey that started on that day - from life as a pregnant and joyous newlywed to one filled with the fear that her husband would die, she and her baby would, too, be infected with the virus.
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2 out of 5 stars
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Not the inspiration story
- By M. Mao on 07-06-17
By: Cookie Johnson, and others
What listeners say about Thriving with Neurofibromatosis
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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Overall1 out of 5 stars
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Performance1 out of 5 stars
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Story1 out of 5 stars
- michael harvey
- 12-02-20
What a waste
Please don’t waste your time on this one. Nf is barely mentioned in this story. This book is more about her life growing up where nf is barely mentioned. I have nf and found this book a complete waste of my time
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