Thriving with Neurofibromatosis
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Thriving with Neurofibromatosis
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Narrado por:
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Kirstianne Hopkins
Acerca de esta escucha
One in 3,000 people is born with neurofibromatosis. It affects all of them in different ways. For some, neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of them are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all the effects of NF. Stereotyped, ignored, or shunned by a world who thinks they either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks, NF'ers often choose to hide from others - and end up hiding from themselves.
My name is Kristi Hopkins. In 2007, I chose to stop hiding, and start thriving. NF had become a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do you.
Thriving with Neurofibromatosis. We all have a story, this is mine.
©2010 Kristianne Hopkins (P)2012 Kristianne HopkinsLos oyentes también disfrutaron...
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Lo que los oyentes dicen sobre Thriving with Neurofibromatosis
Calificaciones medias de los clientesReseñas - Selecciona las pestañas a continuación para cambiar el origen de las reseñas.
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Total1 out of 5 stars
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Ejecución1 out of 5 stars
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Historia1 out of 5 stars
- michael harvey
- 12-02-20
What a waste
Please don’t waste your time on this one. Nf is barely mentioned in this story. This book is more about her life growing up where nf is barely mentioned. I have nf and found this book a complete waste of my time
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