Surviving Myotonic Dystrophy

A Mother’s Struggle to Care for Her Family with a Rare Disease

De: Ann S. Woodbury

Narrado por: Geri Murray

Surviving Myotonic Dystrophy is about Ann S. Woodbury’s struggle to care for her family who have a rare disease - myotonic dystrophy (DM).

Ann’s four children and her husband have DM. In 1998, at the time of the diagnosis, even the doctors didn’t know all of the effects of DM or that it was a brain disorder.

Listening to this book will take you on a journey of understanding this disease and its effects on Ann’s family members.

Ann also includes tips and lessons learned to help parents/caregivers maintain their own health and peace of mind while caring for loved ones.

You will learn:

• DM is a multi-systemic inherited disease that affects just over one in 2,100 people in the US.
• DM is one of the most variable and complicated of the known disorders.
• How isolating it can be to have a family that doesn’t fit in and how you can better cope with this reality.
• What it means to “take care of yourself”.
• Why you should be mindful about interacting with people whose behavior seems different from yours.

©2021 Ann S. Woodbury (P)2021 Ann S. Woodbury

Thank You for Sharing

I have great compassion for your family demands and service. Thanks for sharing part of your story. I like your ideas about taking care of the low level of the hierarchy needs. We care takers often neglect our own basic needs. It's a challenging balance.
Thanks for your courage and persistence in so many areas. You are a great example to others of us who have many demands also. Sharing your medical knowledge will help many people.