• Summary

  • Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. At its highest level, our podcast series focuses on quality healthcare delivery, highlighting the innovative approaches kidney transplant recipients and providers are applying to improve care. Along the way, we’ll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights. We’ll also look at things like health disparities in renal transplant, identifying where and why some groups don’t do as well when compared to others, and discuss what we can do to close the gap. This will include explorations of inclusion, diversity, equity and access (also known by the acronym IDEA), which are all subjects central to the purpose of this podcast. We invite you to subscribe and let Kidney Transplant Conversations keep you connected, informed and inspired with a constant flow of new thoughts and ideas. Send suggestions for guests and topics to: rolf.taylor@projectadvocacy.com
    Copyright 2021 All rights reserved.
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Episodes
  • 3. How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 2

    Sep 8 2021
    How the UNC Chapel Hill Latino Transplant Clinic is increasing access through culturally competent care. UNC Chapel Hill Latino Transplant Clinic, Part 1 Featuring Transplant Social Worker Daniela Matz and clinic founder Dr. Pablo Serrano. In our last episode we met José and Xiomara Flores and heard about their five-year journey from kidney disease diagnosis to their live donor transplant, which took place at the University of North Carolina Transplant Latino Transplant Clinic. The clinic is the culmination of a very intentional vision, a strategic decision to integrate a Latino-focused Transplant Clinic within the Abdominal Transplant Division at UNC Chapel Hill. Since being established in 2018, they have gone on to demonstrate how workforce diversity and cultural competency go hand in hand in the delivery of quality care. In today’s episode, transplant social worker Daniela Matz and clinic founder Dr. Pablo Serrano look back on Jose and Xiomara’s story, share with us insights into how the clinic works, and how they have been able to reduce renal transplant disparities. All views and opinions expressed in this podcast reflect those of the participants. We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals. © Project Advocacy, 2021  Resources relevant to Episodes 2 & 3 of Kidney Transplant Conversations: Welcome to Infórmate             El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida. The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation. http://informate.org/ National Kidney Foundation:     La información más importante sobre la enfermedad renal. Provides lots of great information about kidney disease from prevention to transplant, including living donation. https://www.kidney.org/espanol  American Kidney Fund              Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana. Information plus financial assistance opportunities. https://www.kidneyfund.org/en-espanol/  National Foundation for Transplants     Cómo eliminar las barreras financieras para los donantes vivos. Removing financial barriers to transplantation.  https://transplants.org/resources/ Children’s Organ Transplant Association:  Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal. Fundraising and support for children and young adults with polycystic kidney disease. www.cota.org  Episode 3 Full Transcript Host:          Welcome to Episode 3 of Kidney Transplant Conversations. Our regular podcast, dedicated to the kidney transplant journey, exploring quality care delivery, inclusion, diversity, equity and access. I'm Rolf Taylor, your host and series producer. All views and opinions expressed in this podcast reflect those of the participants. In our last episode, we met with Jose and Xiomara Flores, and heard about their five-year journey from kidney disease diagnosis to their live donor transplant, which took place at the University of North Carolina – Transplant Latino Kidney Clinic during the pandemic in late 2020. For our guests today, this story is the culmination of a very intentional vision, a strategic decision to integrate a Latino focused kidney clinic with the abdominal transplant division at UNC Chapel Hill. Since being established in 2018, they’ve gone on to demonstrate how workforce diversity and cultural competency go hand-in-hand in the delivery of quality care. We’re delighted that the clinic’s transplant social worker, Daniela Matts and clinic founder, Dr. Pablo Serrano could join us today for part two, to look back on Jose and Xiomara’s story, share with us insights into how the clinic works, and how they’ve been able to reduce transplant disparities.                   So, now, we’re going to visit with two leaders from the University of North Carolina Transplant Latino Kidney Clinic, Daniela Matz and Dr. Pablo Serrano. Daniela is a transplant social worker and in addition to discussing her experiences at the clinic, she’s going to talk about her role as Chair of Multicultural Issues at the Society of Transplant Social Workers. Dr. Pablo Serrano is Assistant Professor of Transplant Surgery at UNC. He founded the Latino Kidney Clinic with a vision to ensure culturally sensitive care provision and to address the disparity of relatively low numbers of Latinx patients accessing kidney transplants.                   So, first of all, thank you so much for bringing your patients, Jose and Xiomara Flores to the podcast for the first part of our discussion about the Latino Kidney Clinic. Daniela, you mentioned during or conversation with Jose and Xiomara that it’s not just about language and translation. It’s really ...
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    31 mins
  • 2. José and Xiomara Flores share their living donor transplant journey. UNC Chapel Hill Latino Transplant Clinic, Part 1

    Aug 23 2021
    In this episode we’ll hear from José a patient, and Xiomara, his wife and donor, as they describe the challenges they experienced in their quest for a kidney transplant, and the joy they have felt since then. We’ll also hear from transplant social worker Daniela Matz, who assisted them.  The Census Bureau estimates that there are over 60 million Hispanics and Latinos living in the United States, and the Latinx population is the fastest growing minority. As many as 40 million are speaking Spanish as their first language. Although Hispanics and Latinos are more likely to experience kidney failure compared to other Americans, they are less likely to access kidney transplant as a solution, the resulting disparity means more years on dialysis, reduced quality of life, reduced life expectancy, and increased healthcare expenses.  Part of the problem is the waitlist for a transplant, there simply aren’t enough organs to go around. If a living donor can be found, then that is a gamechanger. But here we find another disparity – because the process of live donor kidney transplantation can often elude our minority populations. To address some of these issues, in 2018 Dr. Pablo Serrano established the Latino Transplant Clinic at the University of North Carolina (UNC) Division of Abdominal Transplantation, in Chapel Hill, NC, with the aim of providing culturally competent and culturally sensitive care.  August is National Minority Donor Awareness Month (NMDAM).  Founded in 1996 by the National Minority Organ Tissue Transplant Education Program (MOTTEP) to bring heightened awareness to donation and transplantation in multicultural communities. For more information and shareable resources please visit:  https://www.donatelife.net/nmdam/ All views and opinions expressed in this podcast reflect those of the participants. We thank the participants and advisors who helped create this podcast, and our underwriter, Veloxis Pharmaceuticals. © Project Advocacy, 2021 Resources relevant to Episodes 2 of Kidney Transplant Conversations Welcome to Infórmate   El objetivo de ésta página bilingüe es educar a los hispanos / latinos acerca de la donación de riñón en vida.  The goal of this bilingual page is to educate Hispanics / Latinos about living kidney donation. http://informate.org/   National Kidney Foundation:   La información más importante sobre la enfermedad renal.  Provides lots of great information about kidney disease from prevention to transplant, including living donation.  https://www.kidney.org/espanol   American Kidney Fund   Nuestra misión es ayudar a las personas a combatir la enfermedad de los riñones y vivir una vida más sana.  Information plus financial assistance opportunities.  https://www.kidneyfund.org/en-espanol/   National Foundation for Transplants  Cómo eliminar las barreras financieras para los donantes vivos.  Removing financial barriers to transplantation.   https://transplants.org/resources/  Children’s Organ Transplant Association:  Recaudación de fondos y apoyo para niños y adultos jóvenes con poliquistosis renal. Fundraising and support for children and young adults with polycystic kidney disease.  www.cota.org   Episode 2 Full Transcript Download transcript PDF  Host: Welcome to Episode 2 of Kidney Transplant Conversations. Our podcast dedicated to the kidney transplant journey and exploring quality care delivery, inclusion, diversity, equity and access. I'm Rolf Taylor, your host and series producer.  All views and opinions expressed in this podcast reflect those of the participants. August is National Minority Donor Awareness Month. Founded in 1996, by the National Minority Organ Tissue Transplant Education Program to bring heightened awareness to donation and transplantation in multicultural communities, focusing primarily on African American, Hispanic, Asian, Pacific Islander and Native American communities. We’ll provide a link with more information in the episode description. Please, spread the word, if you can. The census bureau estimates that there are over 60 million Latinos living in the United States, which is over 18% of the overall population and as many as 40 million are speaking Spanish as their first language. Although Hispanics and Latinos are more likely to experience kidney failure, compared to other Americans, they are less likely to access kidney transplant as a solution. The resulting disparity means more years on dialysis, reduced quality of life, and reduced life expectancy, not to mention the added expense. Part of the problem is the wait list for a transplant. There simply aren’t enough organs to go around, but if a living donor can be found that is a game changer. But here we find another disparity because the process of live donor kidney transplantation can often elude our minority populations disproportionately, particularly, Hispanic, Latino, Black and Asian people with kidney ...
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    35 mins
  • 1. Impact of pandemic on immunosuppressed, & the meaning of meeting people where they are.

    Jun 10 2021
    Download this episode AUDIO Episode 1: Impact of Pandemic, & Meeting People Where They Are  Welcome to Kidney Transplant Conversations. The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we welcome two guests to the podcast. Firstly, living donor recipient Risa Simon, who will share insights from the transplant patient’s point of view, and then Daryle Blackstock, PA-C, who will talk about the importance of meeting people where they are.  Links to resources mentioned in this episode: TransplantFirst Academy ASTS Patient Resources  AST Patient Resources  NKF Patient Resources  AAKP Patient Resources Kinsey's Kidney Adventure by Nadine Morsi Medical Apartheid by Harriet Washington   Transcript Kidney Transplant Conversations, Podcast series Episode 1: Impact of Pandemic, & Meeting People Where They Are Download transcript PDF The COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients, and those waiting for a transplant. In this episode we discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we welcome two guests to the podcast. Firstly, living donor recipient Risa Simon, who will share insights from the transplant patient’s point of view, and then Daryle Blackstock, PA-C, who will talk about the importance of meeting people where they are.  Host:                   Hello, welcome and thank you for joining us for the first episode of our Kidney Transplant Conversations podcast. I'm Rolf Taylor, your host, and series producer, and having been involved with health advocacy for many years, I'm honored and excited to be joining you on this journey of discovery. We'll travel across the world of kidney transplantation, through conversations with all kinds of healthcare professionals, and most importantly of all, with all kinds of people who experience kidney conditions. This podcast is a collaboration between several kidney patient organizations, professional organizations, and committed individuals, who together all share a passion for working to make kidney transplantation more accessible, more equitable, and as successful as possible in the long term. Throughout this podcast, we're going to be exploring stories and perspectives that reflect the amazing diversity across this country so whoever and wherever you are, if kidney transplantation is important to you, then we hope you'll find conversations that are meaningful and relevant inside this space. Each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. We'll explore all the stages of the kidney transplant journey and invite our guests to share their experiences and insights as well. We'll also look at things like health disparities and identify where and why some groups don't do as well when compared to others and discuss what we can do to close the gap. Our discussions will be purposefully focused on inclusion, diversity, equity, and access. Also known by the acronym IDEA, which are all subjects central to the purpose of this podcast. So, we hope you will subscribe and let kidney transplant conversations keep you connected, informed, and inspired with a constant flow of new thoughts and ideas. And so, for today, the COVID-19 pandemic has everyone asking a lot of questions, especially transplant recipients and those waiting for a transplant. So, today we'll discuss the impact of the pandemic, talk about masks and vaccines, and how the pandemic is impacting people with immunosuppression. To explore these subjects, we'll welcome two guests to the podcast. Firstly, living donor recipient, Risa Simon, who share insights from the transplant patient's point of view, and then Daryle Blackstock, PAC, who will talk about the importance of meeting people where they are. All views and opinions expressed in this podcast reflect those of the participants. So, our first guest on today's podcast is a kidney transplant patient, an author, an advocate, a mentor to other kidney patients in association with several organizations, and CEO and founder of Transplant First Academy. She's passionate about sharing her own experiences as someone who received a new kidney from a living donor. And she has helped many people follow that same path. Welcome Risa Simon. Risa Simon:         Thank you so much for having me on the podcast, it's truly an honor. And while I feel like I'm one of the lucky ones, believe me, it didn't start out that way and it doesn't start out easy for any kidney disease patient. Sadly, my father died in his early forties, struggling on ...
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    45 mins

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