If We Knew Then - Down Syndrome Podcast Podcast Por Stephen and Lori Saux arte de portada

If We Knew Then - Down Syndrome Podcast

If We Knew Then - Down Syndrome Podcast

De: Stephen and Lori Saux
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We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.Copyright 2025 - All rights reserved. Crianza y Familias Relaciones
Episodios
  • 192. Choosing A Pediatrician with Dr. Ilona Kleiner
    Sep 16 2025

    In this episode we revisit a conversation with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Sophia was born and has guided us through Liam’s journey with wisdom, honesty and compassion. Dr. Kleiner shares her perspective on treating children as whole individuals far beyond a diagnoses or statistics and the profound impact that kind of care can have on both medical outcomes and family life.

    Together, we talk about navigating the fears that often surround a Down syndrome diagnosis, the importance of preventative medicine and what it means to advocate for our children day by day. Dr. Kleiner also offers practical insights on vaccines, inclusion and supporting children’s mental health by reminding us that every child deserves to be seen, respected and treated with dignity.

    This heartfelt conversation is a reminder of the power of compassionate care and our hope that every family finds a physician who sees their child for exactly who they are.

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/09/15/192-choosing-a-pediatrician-with-dr-ilona-kleiner/2/

    Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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    58 m
  • 191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang
    Sep 8 2025

    Today we sit down with speech-language pathologist and author Janine Tang to talk about her new book "Play Dumb and Sabotage: Mindfully Under-Anticipating the Child’s Needs and Creating Opportunities to Practice Language". Drawing from more than two decades as a therapist and her personal journey as a parent of a child with a brain injury, Jeaneen shares practical strategies parents can use every day to support speech development.

    We discuss the challenges families face in accessing quality speech therapy, how to advocate for services and why creating small opportunities for communication can have lasting impact. Jeaneen also opens up about her son’s diagnosis, how it shifted her perspective as both a mother and a professional and the importance of empowering parents to see that they are doing a good job.

    Jeaneen fills this conversation with hope, compassion and actionable tools for parents navigating speech development and early intervention. She reminds us that our children can achieve more when we give them space, support and belief in their potential.

    Website: https://www.playdumbandsabotage.com

    IG: @playdumbandsabotage

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/09/07/191-play-dumb-and-sabotage-with-jeaneen-yang/2/

    Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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    1 h y 18 m
  • 190. Advocating Through The Challenges Of A New School Year
    Aug 30 2025

    In this episode, we discuss the challenges of a new school year and how we advocate to create a foundation of support for Liam, with the intentions of creating a narrative of inclusion.

    Episode Transcript: https://ifweknewthen701833686.wordpress.com/2025/08/30/190-advocating-through-the-challenges-of-a-new-school-year/2/

    Please follow us on X @ifweknewthenPOD, you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. Also join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

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    48 m
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