- helpful votes
- A Mother's Story of Grief, Grace, and Everyday Bliss
- By: Marianne Leone
- Narrated by: Marianne Leone
- Length: 6 hrs and 13 mins
Jesse Cooper was an honor-roll student who loved to windsurf and write poetry. He also had severe cerebral palsy and was quadriplegic, unable to speak, and wracked by seizures. He died suddenly at age 17. In fiercely honest, surprisingly funny, and sometimes heartbreaking prose, Jesse's mother, Marianne Leone, chronicles her transformation by the remarkable life and untimely death of her child.
- By John on 05-10-19
Wonderful book! Being a father of 2 kids on the autism spectrum and a wife who is a special education teacher with a general education license as well. She has been able to go to her district to implement an all inclusive class where she has kids on IEP’s in her classroom. This book talks about what many parents and educators deal with. Money and budgets and how the individual gets lost in the big picture. Marianne does an excellent job telling her tale of her son Jesse and how she as a parent had to fight for him to be inclusive in the classroom. She explains how both her and her husband Chris Cooper struggle with what to do when you have what you feel experts giving you advice on what to do with your child. And the struggle of knowing what a parent feels is what is right for their kid. She uses humor and her Italian heritage with that wise guy flair. I loved this book and am so glad she shared their story.